Hi my name is jul1aorways

jul1aorways
jul1aorways Online Community Member Posts: 214 Empowering
in Start here and say hello!

Comments

  • Albus_Scope
    Albus_Scope Posts: 9,653 Scope Online Community Coordinator

    Heya @jul1aorways and welcome to the community.

    So what brings you here today? If you need help with anything, please just ask away and we'll all do our best to support you.
    Or if you just fancied a light hearted chat, or a few easy games, I'd recommend checking out the coffee lounge and the games den.

  • jul1aorways
    jul1aorways Online Community Member Posts: 214 Empowering

    Hi and thanks for the warm welcome 😊

    Firstly, this seems a good place for a chat and to talk to others with similar interests to me.👍 I have CFS/ME so I feel quite isolated, despite having my partner. I also wish to join the discussion on what the government plans for us, 😠 to support other members of this forum and hopefully be supported myself. It really does help to have someone else to talk to and see what other people's experiences are of the situation we're all in.

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 11,115 Championing

    Hi @jul1aorways Welcome to the Community from me too. I hope you enjoy your time on the forum. Any questions just ask.

    Have a look around and join in when you are ready.

    Take care.

  • noonebelieves
    noonebelieves Online Community Member Posts: 704 Championing
    https://forum.scope.org.uk/discussion/131705/hi-my-name-is-jul1aorways

    Hi @jul1aorways,
    Welcome to this wonderful forum! I joined around January and have found it to be such a supportive and understanding space.
    I’m sorry to hear about your CFS/ME. From what I’ve seen, many members here live with the condition, so you’ll find plenty of people who truly understand and can offer support. You can chat about anything related to your health, and there are also discussion threads on the homepage where members share their thoughts and concerns about recent announcements.
    Personally, I’ve found this forum to be a great place to express my views without being discriminated and connect with others facing similar challenges. It’s really helped ease some of my anxiety, knowing I’m not alone.
    Above all, I just wanted to welcome you, and I hope you find this space as supportive as I have.
    Take care!

  • jul1aorways
    jul1aorways Online Community Member Posts: 214 Empowering

    @Bluebell21

    Hi and thank you for the warm welcome. 😊

    I'm getting more confident and having a look around. I'm impressed with what I've seen so far.

    You take care too.

  • jul1aorways
    jul1aorways Online Community Member Posts: 214 Empowering

    @noonebelieves

    Hi

    Thank you for your very friendly, welcoming message. 😊👌

    All the different things you mentioned are just what I'm looking for! It's very encouraging and, although I need to take my time, I'm already feeling glad I become a member. 🤗

    You take care too.

  • luvpink
    luvpink Online Community Member Posts: 2,018 Championing
    edited March 23

    Hi and a very warm welcome to the community.

  • jul1aorways
    jul1aorways Online Community Member Posts: 214 Empowering

    @luvpink

    Hi and thank you for welcoming me to this community. 😊

    Take care.

  • noonebelieves
    noonebelieves Online Community Member Posts: 704 Championing
    https://forum.scope.org.uk/discussion/comment/1005389#Comment_1005389

    You’re welcome @jul1aorways , please take you time . There’s no pressure at all 😊

  • charl1234
    charl1234 Online Community Member Posts: 242 Empowering

    Welcome I have long covid fibromyalgia amongst other issues, this is a nice community, my family a few have Me condition I have cfs it hard xxx

  • jul1aorways
    jul1aorways Online Community Member Posts: 214 Empowering

    @charl1980

    It's nice to hear from you. 😊 I'm sorry to hear that you're in the same position as me. ME/CFS/Long Covid are all very dibilitating and isolating plus they make all make life in general very difficult. 😔

    I don't know about you but I try to stay as positive as I can and try my best to concentrate on what's good about my life but it really is a challenge at times! 🦾

    On a more positive note, it would be nice to hear from you again, if you wanted to stay in contact. 👍

    Do take care.

  • Holly_Scope
    Holly_Scope Posts: 2,166 Scope Online Community Coordinator

    Welcome to the community @jul1aorways 😊

  • jul1aorways
    jul1aorways Online Community Member Posts: 214 Empowering

    @Holly_Scope

    Thank you for your warm welcome. 😊

  • charl1234
    charl1234 Online Community Member Posts: 242 Empowering
    https://forum.scope.org.uk/discussion/comment/1005526#Comment_1005526

    Absolutely would love to chat to someone in same boat feel free to msg me in here thanks x

  • jul1aorways
    jul1aorways Online Community Member Posts: 214 Empowering

    @charl1980

    Thank you, That's great to hear, I'm glad to be able to talk to someone, who knows what I go though themselves. 🤗

    I've had ME/CFS for 21 years now. It has deteriorated over the years but I've adapted to it in the best way I can. I get on with life as I've no doubt you do. I've got my partner whose also disabled, our cat and dog and I like reading historical novels and listening to hard rock and metal. I do my best to consider Chronic Fatigue as being part of my life rather than allowing it to dominate it all.

    Perhaps you would consider telling me a bit about yourself too. Only what you're comfortable with though. 😊

    I look forward to hearing from you.

    Do take care. 👍

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