Hi, my name is cassianne!

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cassianne
cassianne Online Community Member Posts: 1 Listener
in Start here and say hello!

I have recently been diagnosed with D I S H.after suffering for years.The extreme pain on my right side especially when I’m lying down is excruciating.I don’t think Doctors especially GP s know a lot about it as my doctor had never heard of it

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  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 12,600 Championing

    Hi @cassianne welcome to the Community. I hope you enjoy your time on the forum. Any questions just ask.

    Thank you for telling us something about yourself. If your GP has never heard of DISH who is in charge of your care?

    Have a look around and join in when you are ready.

    Take care.

  • Rosie_Scope
    Rosie_Scope Posts: 6,201 Scope Online Community Coordinator

    Hi @cassianne, warm welcome from me too ☺️

    Sorry to hear you're in so much pain with your condition. Are you seeing any specialists for pain management at the moment? It's difficult living with a rare condition sometimes, not everyone understands, but hopefully there are some specialist out there that can help you cope.

    Hope you can get some relief soon

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