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Not to worry. I joined X as that seems to be where most info is. Not sure I will last long in there though as I can't even figure out how to read comments.
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Hi @secretsquirrel1 - the 'severe conditions' criteria is that which is already in the WCA handbook for Healthcare Professionals, so nothing new. It does say that the following is an example of a claimant that might not qualify:
'Conditions which might be severe at times, but recovery of function might be present for substantial periods, such as recently diagnosed relapsing non-progressive forms of Multiple Sclerosis.'
This was why I previously gave you an example of someone who might have MS, but had had a long period of remission.
I think the use of the word 'remission' could however be open to question. I was reading a paper about fibro this afternoon, & it seems in this medical context, no-one has actually defined what this is, how long it lasts, & that even someone considered to be in remission still likely has a background of some fibro symptoms. And, those who have a comorbid condition (like your ME) are usually those who are worst affected anyway.
So many of us have more than one disorder like mine. It's been found (from medical papers) that those of us with Chiari 1 Malformation associated with Ehlers-Danlos Syndrome (EDS) are worse affected than with 'just' EDS. This will be so true for many claimants.
Please don't worry, if you have never been in remission (& I think this would have to be for years), then your ME doesn't 'fluctuate,' tho everyone will be different.
We'll have to wait until 1 July to see what's going to happen. Last I heard was that 137 MPs (not all Labour) were against the Govt's proposals. I think the Tories will also oppose, but we'll have to wait & see.
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Thank you 🙏
I know having so many conditions and all their symptoms you don’t get a break for a single day . We simply wouldn’t know if the fatigue is for which condition on any particular day if that makes sense .
Hopefully this won’t even go through. 🤞🤞When I was being treated for ME I was told the main symptom is fatigue and for fibromyalgia it’s pain . That’s when I was assessed for fibromyalgia due to my pain being as prevalent as the fatigue.
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SWEARING AN AFFADAVIT
Since knowing about the Green Paper, I've often thought that if the changes come in, and I was to have any benefits stopped relating to being fit enough to work (either because PIP or LCWRA were stopped due to then not meeting changed criteria etc or UC), I would not 'sign or agree to commitments to look for a job/work' in order to receive UC/JSA. That is because I am not going to lie and say that I'm fit/well and able to work, when I'm not. I'm not averse to sticking my neck out when I have to, not when it's a matter of truth, integrity or fairness.
I am not a legal expert by any stretch of the imagination but I plan to go to a solicitor to notarise an Affadavit. All I know is it's a brief Statement of Fact/Truth that is done [usually] in order to then take or support legal proceedings. It is brief (one page). It is inexpensive to do. The person signing/witnessing it, does not have to see all the evidence (it would cost me a fortune for a Notary to see mine and wade through it all as it's circa c 500 pages and growing 🙄).
I will write it myself, soon, and post a copy here so you can see what it is and what I put. I only intent to use it, as and when any of my benefits are cut, and upload on my Journal at any point I'm requested to 'agree commitments' in the future which I won't be doing.
If anyone writes one and it is false they can be subject to fines and/or imprisonment.
Might sound a bit off the wall and simplistic but, to me, truth is important and I am not planning to tow the line, but to disrupt/delay where I can, and keep true to myself, both to my wellbeing and my health.
As I have no money to take legal action it is likely totally all irrelevant but I would still use it to state and support my case.
Just thought I'd put this out there. If anyone has legal knowledge that it's a waste of time to do this I'm very happy to read comments although I'll likely still do it anyway as it seems to me the only 'legal way' of stating the truth officially.
I sometimes have an idea or, as I call it, my 'Eureka' moment! I'm not naive enough to expect my benefits to then be restored but the truth is important and I believe should just be stated and conveyed, in the fullest way possible.
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134 MP's so far.
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Wow thanks for sharing this !
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Only one Labour MP withdrew their name.
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@YogiBearI like that they've left spaces for additional names. I wonder who took themselves off it 🤔!
I won't bother checking it but what came to my mind was that are all the c 300 or so not signed the same ones who've voted for the updated Abortion Act and Assisted Dying (ie the ones who don't care so much at unaliving as many as possible. Just one of my random thoughts, probably no correlation!
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They did say who the Labour MP was on line. I tweeted this to her 'Your entitled to withdraw your name. Now you're going to have to go back and explain yourself to your constituents (many who are vulnerable). Your constituents will not forget this come GE time.'
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Got it, thanks, she stated i think it said she's 'sorry for any confusion or distress ' it's caused. What a very mealy-mouthed person. Yes lot of explaining to do to her constituents. Gosh some of them are excruciatingly embarrassing, and I'm being polite!!
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I didn't want to say her name. However it's all over X.
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Sure, I understand. I found it but thank you 😊
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That's good.👍️
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I've never used X lol googles my go to 😅 but bit longer winded!
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Says we can win today ?
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Thank So much for this post! 😃. It has lifted my spirits somewhat.
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It will be interesting to hear PMQT's today with Rayner
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This on dpac website
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Well I think that's why we need to really fight now to show them
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