lady with son who has autism needs help

jjdd70

hi all im posting here my story is today i met lovely lady jodie is her name.I met her whilst in a supermarket in bradford leeds lovely lady she was having a terrible day today i stopped to ask her if she was ok, And she told me this week she's only had 2 hours sleep with her son he is 12 yrs old and has autism,Becasue its term holidays his routine has gone to pot so hes been pulling her hair biting her kicking and banging his head.All becuase its term holidays so hes routine has gone.she was in a right state,She told me her social worker was supposed to be sorting restate out for her but she's gone on holiday and didnt even sort anything out,The pram she uses is falling to bits and to replace it would cost over £2000 but his pip money barely she gets by she has a car on the scheme so that takes most of pip then buying nappys for him for the week is over £100 then paying for petrol his food his clothes etc ,I did tell her ill put it here and she if there's anything available for grants etc to replace the pram that is urgently needed and if there is any where she could buy cheaper nappys for him i just thought id reach out here for her she was in such a state i felt the need to stop her and just ask if she was ok?I know she's even waiting for his room to be padded by the council but the guy that was dealing with it didnt even put it forward HE FORGOT she she's had to apply again and now waiting its crazy how people are treated by society especially when they need help with kids

rubin16

I don't know if were allowed to promote other charities, so please remove if not allowed mods.

But it might be worth contacting NAS (National Autistic Society). They are more equipped for these things.

https://www.autism.org.uk/

Hope you can find a better solution for her, routines can be hard. I don't know if it can be arranged in future to work with the school to try changing routines slightly before holidays actually come. like have 1 then 2 hours off in the afternoon from school etc building him up for it.

Its all about finding a new routine during holidays, It can throw us in meltdowns if our routine is suddenly gone. Building up to an event if you prepare us for it, say slightly change routine over time not suddenly. It should be alot easier.

Hope that site helps, take care.

OverlyAnxious

Hi,

PIP is for people over 16. Perhaps it's DLA that he gets at 12?

The mobility payment is the same on both, £77 a week. High rate care is £110 a week though, so the Motability car shouldn't be taking even half of the total DLA/PIP, let alone most of it. Unless he is on the low rate for that? If he is on the low rate then I would say that should be challenged for longer term financial increase.

If the mother is on Universal Credit then she should apply for the Disabled Child Element if not already getting that.

Not sure I can offer any practical advice unfortunately. If they have some storage space then buying nappies in larger bulk orders should make those cheaper per item. Asking local charities or disability advice services for any help replacing the pram would be a good idea if not done already.

Mary_Scope

Hi @jjdd70

You're a very kind person for stopping and checking on her and I'm sure it meant a lot to Jodie!

There are a few organisations that might be able to help with a new buggy such as Family Fund, Newlife the Charity, Caudwell Children and Whizz Kids. They offer all offer grants for things like specialist prams and essential equipment.

If her son is over 4 then she might be able to get free nappies through the NHS continence service depending on where she lives so it's definitely worth her asking her GP or health visitor for a referral if they have this in her area!☺️