Hi, my name is micky66! Looking for PPS support groups.

micky66

Hi everyone.

Ive just been looking on line to find out whether there is a forum for PPS and came across SCOPE.

My mum passed away a couple of years ago from PPS (or that's what we the family think) obviously the specialist and Dr's didn't know anything about PPS apart from one nurse who had heard about it abroad but said no one in the UK had .

I feel so much for all of you who have been brave enough to ask the question or tell there story, orbit a few years ago.

If anyone could tell me if there is a group where families have parents who are suffering or have suffered from PPS then I would love to hear about them.

I live in dorset south of UK

Many thanks and hope to hear from you soon.

Holly_Alumni

Hi @Mickey and welcome 😊 is this post polio syndrome? If so, there's a few potential groups that might be an option here -

• Post-polio syndrome - Support for neurological conditions | The Brain Charity
• Post-Polio Support Groups - Post Polio

micky66

O that's great Holly many thanks I will check them out.

Mary_Scope

A warm welcome to the community from me @micky66 😄

micky66

Hi Mary_Scope

Thank you.

What chats do you receive with being a Children and family Specialist 😀

Mary_Scope

Hi again @micky66, it can be anything really! If there are any posts that are related to children and disability and family etc I do my best to answer them and provide specialist information, advice and support😊