Hi, my name is olivia_m!

olivia_m
olivia_m Online Community Member Posts: 1 Listener
in Start here and say hello!

hello! I’m brand new to this so I hope I’m using this correctly lol. I’ve recently been awarded LCWRA and I also get standard daily living PIP. I’m planning to leave my job in November as my mental and physical health have gotten worse and I just can’t cope with working at this moment in time. I’m 31 and still living with parents but would love to be able to move out but worry that I’m never going to be able to because I’m not well enough to work full time and I’m not sure I’m getting enough benefits to be able to afford moving out. Gutted to be leaving my job but I know it’s the right thing to do for my mental and physical health. I do believe I should be getting more from PIP especially since my physical health has gotten worse since I first applied but I’m scared to do COC in case they take my PIP away completely. I’m meant to be due a review next year so wondering if I should just leave it until then? Amy advice would be greatly appreciated 😊

For context I have autism, adhd, hypermobility, chronic fatigue and chronic pain

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Comments

  • Rachel_Scope
    Rachel_Scope Posts: 1,856 Scope Online Community Coordinator

    Hi @olivia_m and welcome to the community! You've used it perfectly 😊

    I'm sorry you feel you need to leave your job. It's a big decision to make and I hope it means your health improves. I can't advise on what you should do with PIP as that is your decision. It's good that you are aware that doing a COC could mean you lose PIP entirely as that will be a major factor in your decision.

    I would suggest looking at the https://benefits-calculator.turn2us.org.uk/ . You could input your details as if you lived alone and it can give you an idea of what you could claim outside of PIP. Just be aware that it's just a guide and the amounts may change once you apply.

  • Santosha12
    Santosha12 Online Community Member Posts: 2,617 Championing
    https://forum.scope.org.uk/discussion/138595/hi-my-name-is-olivia-m

    Hi Olivia and welcome to the forum.

    I received LCWRA in 2023 and, after being turned down for PIP in December 2022, was awarded standard (daily living) at Tribunal in March 2024. I 'should' have received for mobility but didn't. The panel said I can appeal but that I could lose what I'd been awarded so I didn't appeal.

    My award was for 5 years so to Aug 2027 so I expect to be reviewed if not later this year, then next year. I would appeal then if not awarded for mobility which is much worse now and I'd go to Tribunal again if needed.

    I had applied to the council for a bungalow and that was in 2019 after fractures and I could no longer get upstairs in my cottage. I kept getting told it's a waste of time (c 8 year waiting list). I stuck with it and only waited 2.5 years to get the bungalow where I live now. I'd been assessed by occupation therapy at home.

    I'm sorry I can't answer exactly your question. I am 62. Even at only 31 and with your health issues, I would consider 'future-proofing' in whatever way you can, including applying for council housing if that is something you would be happy to do.

    I was dismissed from my job in June 2023 after many sickness absences. I'd caught Covid three times and was very ill after one of those occasions (nurse/no PPE) so I was very lucky that I had gone onto the housing list.

    If I should have done anything different it would be to have left my job far sooner and protected my health.

    Good luck and very warmest wishes to you in whatever you decide to do.

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