Hello again
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I really hope you get that help you need Asap @rubin16
Wishing you well soon
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Im debating rolling up the wallpaper and trying to smoke that haha
@Strawberry1 were here for you, we all have our problems but knowing we have people there that care means you never have to face things alone. Facing things alone can be scary but united we can conquer anything.
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When i was in hospital they offered my the stop smoking stuff
I wonder if they could offer you something similar @rubin16
You dont have to stay stopped its just something that could get you through .
Ive been quit over 3 months now
Unfortunately im still using the inhalator at the moment feeling as I am @rubin16
I should have stopped using it by now
But im stressed etc
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@rubin16 I'm sorry things are so difficult for you right now. The hospital staff should be looking after you properly and making sure you're getting some nutrition. It's appalling that the consultants are contradicting each other. Do they not have a meeting together to go through everything?
Stay strong and speak up for yourself if you need something.
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I don't actually have an issue swallowing, its keeping things down me. As soon as anything hits my stomach I'm in agony and I feel really ill and end up being sick. i'm on anti sickness but that just stops me from being sick, the rooms still spinning like on the waves of the ocean and horrific pain. I've not been put on a drip, and my blood pressure is low 90/65
I had 1 xray when I arrived in a&e since then consultants have been deciding for over a week what to do.
Also another issue, becuase of my autism i'm not allowed to make my own decisions. I'm classed as vulnerable so they can veto decisions aslong as they discuss it with my care team. Which is scary.
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Thinking of you @rubin16
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Get well soon @rubin16
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Sorry to hear this rubin I wish you a speedy recovery
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Okay finally I know whats happening, just managed to speak with a nice doctor. I'm waiting for some camera tests (up and down) and on waiting list. He said could happen at end of week or next week. Hes requested a dietician and put me on regular anti-sickness and to try liquids for now like soups/drinks and see how I get on. Lets hope they don't change their mind tomrrow again.
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Fluids I can handle, but anything thicker and my stomach rejects. I've asked my nan to bring me some lucosade as I need the energy.
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Glad to heat there is a plan in place @rubin16, I hope it goes okay
Hopefully your nan will be at the hospital soon with the lucozade0 -
So today has been productive, there was a cancellation so ended up having my camera tests. Good news is I don't currently have any active crohn's. Bad news is I have a bended slightly twisted colon/bowel caused by adhesions that have formed from previous surgeries. So could mean I have to have surgery to fix it. I'll get the full picture tomorrow when consultant comes but atleast were getting somewhere.
I've also been put on regular anti sickness and on just a liquid diet for now. but touch wood I have managed to keep abit of soup down me.
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That's sounding positive @rubin16! I hope you don't have to go through anymore surgery, but I'm really glad you've managed to have some soup.
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Rubin, I have just read about nicotine lozenges which are NHS approved. They come flavoured in 1mg doses. Easier still would be patches - also NHS approved.
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Thanks for this, my nan wheeled me out for 5mins yesterday so I managed alittle vape and fresh air before pain set in again. but if I need an op i'll prob ask for something as it'll be impossible to move afterwards for abit. i'll find out today whats the next plan is.
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I've not been on for a while (ill) but seen that you're in hospital @rubin16. I am so sorry but pleased the Crohn's is not active. Good luck today with the Consultant - I'm very glad you've been able to at least have fluids; most pleased that you're being kept updated and informed properly as you should be. And glad the 'dreaded' camera procedures are done now.
If you end up needing surgery, have you considered the nicotine inhalatior? (Little white thing /nothing to exhale though like a vape but at least you get nicotine).
Thinking of you and wishing you well and all the very best ❤️.
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Thankyou for your kind message. I'll might see what what options they have but kinda abit anxious this morning anticipating what the next plan is.
I'll keep you all updated.
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@rubin16 Your situation is troubling. If you can't cope with Fortisips asks about other products of this nature.
Also, could you manage a thin, fortified yoghurt or fortified ice-cream?
Drink as much as you're able. Even plain water will keep your body going for when they try something that helps.
Blessings, Zipz
PS. I don't know where you are but if things remain unsatisfactory ask/insist on transfer to a cerebral of excellence in the field of most concern.
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