Hello again

rubin16

I just saw the consultant, I don't know what to think. He's said the same what my camera report said but said theres no fix for it apart from painkillers. I don't know what that means, will I never be able to eat or walk again, cause if thats the case I might as well end things.

rubin16

I'm crying my eyes out, I had a meltdown and basically dragged myself off the ward and outside before collapsing in pain and staff had to bring me back in a wheelchair.

Rachel_Scope

@rubin16 I'm so sorry. I can't imagine what an awful time you're having at the moment. Are you feeling any better now?

rubin16

https://forum.scope.org.uk/discussion/comment/1086396#Comment_1086396

Not really, I asked for some anti-sickness at 11:20am so I could try some soup again, Soup came at 11:45am, still no anti-sickness, after buzzing 3 times, nurse finally comes at 12:50 with anti-sickness after letting it get in my system for 10mins, I take some sips of freezing cold soup after only taking like 4 small spoons of cold soup, I started feeling really ill again and just spent the past hour being sick.

They still haven't got me a dietician either.

Strawberry1

I really hope they get you the help soon @rubin16 .

Sounds like you are having a lot to deal with

Im so sorry you are having all of this stress

Sorry the progress is slow from the doctors .

My biggest wish is for you to be so much better soon

Best wishes always

Rachel_Scope

I can't believe they left you waiting for so long and you had to have cold soup! Did you tell them it was cold because you'd waited so long?

Strawberry1

Really do hope they get you better soon @rubin16

Sending well wishes

Strawberry1

Really hope they get you better soon @rubin16 .

Sending loads of empathy and compassion your way

Quick and swift recovery wanted for you

rubin16

https://forum.scope.org.uk/discussion/comment/1086566#Comment_1086566

Thanks for your kind words, sorry i've not responded much today I've not been feeling the best and spent 5 hours being sick and then was sleeping. I hope you're okay though

Strawberry1

So sorry to hear how ill you have been today @rubin16 .

That sounds awful

You really need something to help with that situation .

Nothing to apologise for

You are not well

Strawberry1

Bless you

Your not well and asking how i am @rubin16 .

I really really really want you to get the help you need .

I really hope you are better soon .

Its not nice being as poorly as you are .

The doctors need to act a bit more swiftly to get you better .

Wishing you a swift recovery .

Sending loads of well wishes your way

Strawberry1

Im still feeling teary @rubin16 .

Its just gonna take time for me to get my head straight .

All i wish is for u to be better soon

Everyone will be wishing you well and rooting for a quick recovery for you .

rubin16

https://forum.scope.org.uk/discussion/comment/1086588#Comment_1086588

Thanks, My care-cordinator is coming tomorrow to find out whats happening. So hopefully I get a better idea as I don't process information well and will freak out/ have a meltdown.

Strawberry1

Hope that all goes well @rubin16 .

We are all rooting for you and hoping for a very good outcome

Hopefully people will be gentle with you so stress isnt caused as you already have alot to deal with

rubin16

https://forum.scope.org.uk/discussion/comment/1086589#Comment_1086589

We'll be rooting for you too, yeah unfortunately healing is a slow process but we'll be here supporting you every step of the way. You've got this.

Strawberry1

Thank you @rubin16 .

Im not sure i deserve your kindness but i will accept it .

I wish for brighter and healthier day ahead for you

Nightcity

I hope this all settles down soon Rubin, it must be so dreadful and exhausting .

Strawberry1

Hope you manage some sleep tonight @rubin16

Keep us all updated

Trevor_PIP

@rubin16 Just seen this thread and sorry you are going through all this. A few people with Crohns I know from another forum are on biologics like infliximab and others, which have sorted them out.

You should be getting better looked after too in hospital. Those nutritional drinks they give you, there is a watery one and a thicker one, the thicker one in better. Think it is more like a thin yogurt.

There are meal substitute drinks like Complan (needs mixing), HUEL etc that could be brought in if your stomach could handle them.

If you feel you could handle a sandwich, there will be some in a fridge in your ward.

Hope they get you better, I know it isn't a quick process reading about the people from the other forum I frequent.

Get well soon!

rubin16

https://forum.scope.org.uk/discussion/comment/1086608#Comment_1086608

Hi, thanks for your message,

I'm on biologics, but I don't really respond well on them. I've triad adalimumab which my body built up antibodies too so won't work, I tried infliximab which I had a severe allergic reaction too and it stopped me breathing, and now i'm on Ustekinumab which causes my Liver ALT to raise.

I've been asking for a dietician since I came in, as they are the only ones who can put you on and try different substitutes, but I've not seen one yet. Its been 13 days now without food, each time I try to eat, even if I just take a few sips of either soup or a fortisip I feel ill for hours and won't stop being sick even if I have antisickness beforehand. Each day I try though and am sick.

I had psysio come assess me yesterday, and said theres nothing wrong with my walking, and i'm strong its just the pain im in, she was quite angry and basically went to "speak/yell" at the doctor who then has supposedly put me on a longer lasting pain med, but i'm still yet to receive it.

I don't know what the answer is, but i'm scared something is going to happen to me, I don't know how long a person can go without food. I came in here quite chunky now i've gone skinny and lost all my fat, my clothes don't even fit anymore.