Hi, my name is geetee73! I have fibromyalgia and over the past 6 years it has...

geetee73

I have fibromyalgia and over the past 6 years it has gotten worse to where my mobility is terrible most days and I haven’t worked for 2 years! I have been getting standard rate daily living ADP and I done a change of circumstances in January ..I was awarded enhanced daily living but challenged it as I think I should be awarded the mobility element..they decided to put me back down to standard daily living and still 4 points for mobility..I’m waiting in a date for 1st tier tribunal..any tips?? I’m not holding my breath!!

Holly_Scope

That's awful, @geetee73 - I'm shocked that it's taken that turn. What an ordeal to have to go through as well. I wish you the absolute best for your tribunal. I'd say make sure you've got your ducks in a row and all the relevant evidence you need.

This link might be helpful to have a read through too - Get help with going to court or tribunal | Disability charity Scope UK

geetee73

Thank you @Holly_Scope 🙏🏼❤️

SwiftFox

I think they're doing this to people on benefits because some say they can work with illnesses, but not everyone is same with their symptoms. Examples and websites for fibromyalgia :

https://www.fibromyalgiaresearchuk.com/fibromyalgia-and-work

https://brianbarr.co.uk/about/blog/working-with-fibromyalgia-what-are-my-rights/

https://www.rcn.org.uk/Get-Help/Member-support-services/Peer-support-services/Long-Term-Conditions/Fibromyalgia