If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Hi, my name is NatzG20!
NatzG20
Member Posts: 3
Hey, I am a mum of 3, two daughters and one son who was recently diagnosed with severe PVL as it is on both sides of the brain. My son is a twin but his sister shows no signs. They are now 5 months (2 corrected) and growing well, however ethan is starting to show signs of stiffness in his arms and legs and cries a awful lot as he is never settled. I was devastated at his diagnoses which i got pretty early on around 4 weeks old as they were NICU and had constant brain scans. He is my world but i just don't know what to expect, is my son disabled? Will he ever walk, talk and learn like his sisters? What can i do to help...the questions keep going on and i don't know where to start. Natalie xxx
Replies
Welcome to the community