Pip assessment cerebral palsy left himepleigia

tgillions
tgillions Community member Posts: 2 Listener
edited January 2017 in PIP, DLA, and AA
Hi all

I will be applying for pip in Jan after receiving dla low rate care since 1996 (10 years old) I have never been reassessed. Obviously my disability needs have changed since then.  I am just looking to speak to someone who has been through the process for cerebral palsy only not esa.  Many thanks x

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,605 Championing
    Hi @tgillions

    Welcome to the community, there are lots of posts about CP and PIP so I hope you can find what you are looking for.

    I am moving your post over to the disability benefits category so it will be more visible to other members.

    Thanks for joining us

    Sam
  • Alex
    Alex Scope Posts: 1,282 Pioneering
    Hi @tgillions

    How are you? Have you applied for PIP yet? Let us know how you get on, and if there's anything we can do to help.

    Thanks,
    Alex
  • tgillions
    tgillions Community member Posts: 2 Listener
    Hi Alex

    Just had my letter through to claim pip,just waiting for forms now.  Bricking it, all i can see is horror stories :-( 
  • Nasmamu
    Nasmamu Community member Posts: 45 Connected
    tgillions I know how you feel. Have applied over the phone on Friday and I'm just waiting on the forms too. Soo many horror stories. I was born with CP (Spastic Diplegia) and been on HR DLA since 1992, it was an indefinite award and my needs have changed too. Im in a wheelchair and Can't walk, have crohns now too (diagnosed 11yrs ago) so need help with horrendous incontinence episodes (some days 10-12 times a day. God bless the wife!) Not seen a consultant for over 20yrs as theres nothing else they could do (or so i was told) see someone and get regular treatment for crohns. Need help to dress and bathe/shower. Just very very stressed that I'm going to fall victim to these cuts at a time when I actually need more help not less or none. Im just going to go to the assessment and be honest and hope honesty is actually rewarded. I work and use my DLA for a car to give me the "independence" to get to work. No car no work, its as simple as that im afraid. All the best to you in your pip journey, I hope we both get the decisions our disability deserves and not the decision that helps the govt shelve us and saves them money.

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