PIP, DLA and AA
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What does PIP do for you?

AlexAlex Scope Posts: 1,324 Pioneering
You may have seen in the news that the Government has announced plans to tighten up access to Personal Independence Payment (PIP). At Scope, we're concerned that this could lead to people missing out or facing a reduction in support to manage extra costs.
 
It's really important right now that we talk about why PIP and other benefits are so vital to disabled people and their families.
 
If you receive PIP, what difference does it make to your life?

Replies

  • MarkmywordsMarkmywords Member Posts: 421 Pioneering
    It goes towards;
    • Topping up the low paid job I had to take.
    • The aid devices I need
    • Paying for professional cleaners and tradesmen as I can't clean or maintain the house.
    • Subsidising a big SUV car as I cannot bend to get in or out of a normal car.
    • Entertainment equipment and media as I can't leave the house much except for work.
    • Healthy ready meals as I can't prepare food from scratch.
  • [Deleted User][Deleted User] Posts: 689 Listener
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  • MarkmywordsMarkmywords Member Posts: 421 Pioneering
    "Personal Independence Payment (PIP) helps with some of the extra costs caused by long-term ill-health or a disability if you’re aged 16 to 64."

    Extra costs are extra costs.

    Thankfully my drugs are free as cancer and its after-effects has an exemption. Otherwise most of my PIP would go on drugs alone :(
  • WaterLilyWaterLily Member Posts: 55 Courageous
    Now I am receiving the standard rate of care and my husband is receiving carers allowance, we are able to save to have a downstairs toilet installed. 
    This will make a huge difference to my home life.
  • Janmadill28Janmadill28 Member Posts: 15 Connected
    I have been for my PIP Assessment today and none of my illnesses are visible except for hiccups that I've had since 2009. I now have to wait 4/6 weeks to see what their decision is.  That alone is stressful. 
  • clairclair Member Posts: 5 Listener
    When u appeal wt happens do u have to go in person 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    You can either ask for a paper hearing or a hearing you attend in person.  But I understand that chances of success are far higher if you attend in person.
  • mossycowmossycow Member Posts: 495 Pioneering
    Am so grateful for PIP! 

    - used to pay £10 towards prescription certificate for cheaper medicine. 
    - transport: car fuel,  emergency taxis, parking (as even with blue badge there are charges) 
    - Grocery delivery. I pay £35 year to tesco for free delivery on Tues, wed, Thurs. Life saver! 
    -our printer ink. £2 per month, as I can't handwriting so have to print out any form of written communication
    -aids such as my electric pan that sits on table, food processor etc as using knives etc hard
    -some healthy ready meals and some foods important to my diabetes and weight loss
    -clothes such as lots more warm clothes for going out in wheelchair. Different boots and socks as gabapentin medicine makes my feet cold. My old clothes didn't work on a wheelchair
    -camping stools... I have 8 at £15 each, One in each room, one in car so I can sit inside. 
    -energy bills as I am in the house more 
    -electric blankets for bed and for sofa. 
    -cheap microwave for upstairs for during the night heat pain relief 
    -special cups to drink from


    But more recently, we had the miracle of being finally awarded the higher rate of mobility and therefore a power wheelchair through motobility. Absolute LIFE CHANGER! e. G. Today, husband has the car, I'd be in from 7.30am to 6pm alone and unable to get further than my back gate..... But today I can go as far as 10 miles away! I'm going out to shop, see people and tomorrow I'm put doing a few hours voluntarily at my daughter's school. I am a teacher so that is huge for me. 

    I also have mental health problems and agree that PIP should be accessible to those who need it. 

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • mossycowmossycow Member Posts: 495 Pioneering
    @DannyMoore. You can get a prescription certificate where you basically pay about £10/£11 per month then all prescriptions are free. This is open to anyone.  And if you get more than 1 prescription a month it saves a fortune. 

    http://www.nhsbsa.nhs.uk/1127.aspx

    Or ask the chemist or doctor. 

    "I'm trying to live like a random poem I read that ended 'to bloom where we are planted"

  • nanof6nanof6 Member Posts: 200 Pioneering
    i use my pip for help with  housework, window cleaning, food prep, cooking,help to wash my hair ect, also car, without it i would be house bound,im very thankful
  • nanof6nanof6 Member Posts: 200 Pioneering
    it goes without saying, heating because lack of movement, and tv and internet for something to keep my mind active.and my phone line. 
  • jakey1953jakey1953 Member Posts: 3 Listener
    edited March 2017
    hi im eileen my son gets pip his autistic and in supported living the money helps him have days out etc . i wasent aware of any changes its wrong 
  • SerapheniaSeraphenia Member Posts: 6 Listener
    Without my PIP payment, I will not be able to do the following things 
    Eat
    Go to appointments 
    Live in the flat I am currently in.
    Have my Computer my one source of entertainment and communication with my family. I am also Agoraphobic so the only way I can get the items I require to live.
    Have a Phone
    Pay for the clothes I require.
    Online Shopping to secure my dental implant because the NHS does not cover the dental work I need
    To have my scooter to actually try to eventually get outside in the summer.
    Pay my Bills 
    In fact, without my PIP payment, I will not be able to survive at all if it was taken off me I am not sure what I would do since it is now apparent I really need a part-time carer although I am not sure how to go about this. 
  • SerapheniaSeraphenia Member Posts: 6 Listener
    Oh and be able to heat my small flat and pay for the Electricity from my Landlord who put a token Meter in my property where I can only purchase cards from him at an inflated cost.

  • samparrot123samparrot123 Member Posts: 50 Courageous
    The government doesn't realise that when we are saying we are disabled the cost is very high ,I need a gardener to cut my lawn cut my hedge ,someone to clear up all the leaves ,the extra cost of heating the home (gas) electric,etc.online shopping ,someone to clean ,make the beds ,help prepare meals etc.someone to help me dress and undress , and the list goes on ,
  • wildlifewildlife Member Posts: 1,314 Pioneering
    PIP will help to buy gluten free food, car running costs as I cannot walk far or use public transport, aids i.e. pressure cushions, walking stick, vitamin suppliments as I can't eat a lot, heating bills as I am inactive and feel the cold more than an able bodied person, spinal heat pads, dental costs.  
  • NystagmiteNystagmite Member Posts: 609 Pioneering
    - someone to take me to hospital plus parking and petrol
    - pre prepared food
    - glasses every 6-12 months
    - nasal strips so I can breathe at night
    - money to get to and from a group I go to once a week, plus food
    - lock laces

    A load of one of things, such as noise cancelling headphones, my hat with uv filter.
  • bendigedigbendigedig Member Posts: 254 Pioneering
    PIP is my only source of income.

    What does it do for me?

    NOTHING

    Oh Im lying.... Actually it makes me feel ashamed

    Ashamed to be so powerless as a man

    Ashamed to be made to beg for Muandy Money

    Ashamed that I cant give my son the life that I hoped I would

    Oh and ASHAMED TO BE BRITISH.
  • Janmadill28Janmadill28 Member Posts: 15 Connected
    Please don't feel like that. We all need help during our hardest times due to disability 
  • samparrot123samparrot123 Member Posts: 50 Courageous
    I sent my filled in forms from DLA to PIP. on 6th Feb ,I am 68 yrs old and be 69 in Aug ,and I haven't heard a thing ,my money goes on paying someone to cut my hedge and lawn ,my heating and electric ,petrol , paying for someone to clean the house ,cut my nails ,my hair ,my son showers me ,and my daughters showers my wife ,unfortunately my wife has/had inoperable bowel cancer and had to have radical chemo and radio which has left her with a huge hernia and a illiostomy bag after seven operations because of hernias,I have rheumatoid arthritis .also emphases chronic heart disease ,fibrosis of the lungs ,copd,we could well do without this worry and I feel like ending it some day's,does anybody feel like this.
  • Janmadill28Janmadill28 Member Posts: 15 Connected
    Just please keep talking. I'm so sorry u feel like this. We're all here to support u as best we can. 
  • Janmadill28Janmadill28 Member Posts: 15 Connected
    I've just had my motobility taken off me and taken down to standard rate in care allowance. They said that if I drove my car they were sure I could do an emergency stop and hold the steering wheel ok. I haven't even got a car and haven't driven for 8 years because of feeling unsafe In my ability to do so.  I still have a current licence But I don't use it. I have had hiccups since 2009 and there is no cure for it. I have tried so many times to tell the Drs that this drains my energy. But they never record it. I am seeing a consultant at the hospital in the 21st April to see if there is any different treatments. Thsts after 8 years. I just need them to confirm how exhausting this condition is besides my polycythaemia . Feel sometimes like I'm bashing my head against a brick wall.  Anyone know what else I can do to prove my motobility is affected by exhaustion.? 
  • samparrot123samparrot123 Member Posts: 50 Courageous
    I am really at my wits end ,I use my car to go to my hospital appointments ,and to take my wife to Velindre cancer hospital ,if I lose the mobility part I don't know what I will do ,although my car is automatic and power steering ,it is vital to enable us to get around .
  • Janmadill28Janmadill28 Member Posts: 15 Connected
    All this PIP is putting so much stress on people who could do without it. Someone needs to step in and put a stop to this farce. 
  • bendigedigbendigedig Member Posts: 254 Pioneering
    @Janmadill28

    I couldnt agree more with your statement :)

    What I find deeply worrying is that NOBODY is doing anything about this farce!

    The sollution to this problem certainly does not lie in conformity and allowing oneself to surrender to this system.

    People need to reject this before it goes too far.  There is more at stake here than we all know.

    We all must do whatever lttle we can to reject this system.....  It is our country!  Not theirs!  They serve us, not the other way around.

    This isnt working.

    It must stop.
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