Hi
Badbunny
Online Community Member Posts: 5 Connected
I have ME, Fibromyalgia and mild arthritis and asthma and allergies. I look 'normal' but am in pain, become easily fatigued and going out and eating out can be problematic due to my allergies. Even friends don't understand my needs properly and I get frustrated at being invited out to events which are unsuitable for my disabilities and find people often won't make allowances, e.g will choose a coffee shop in the city centre which is further than I can walk from a car park.
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Comments
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Hi @Badbunny,
Welcome to Scope's online community! It's great to have you here.
There's plenty of groups and discussions which you can get involved with, whether it be just for a chat, or to ask for some advice and support. Do feel free to get involved in one of our conversations!
If you have any questions, then please do get in touch!0 -
Hi @Badbunny Welcome to the community, do you really share with your friends just how difficult you find things? I have an invisible disability and I think I am guilty of not always being totally open with my needs. It's not easy to admit that you need a little more help sometimes but I have found that when I explain "I can't do X if you are going to Y because of Z" that people are often surprised.
I think because people may see me out and about, they dont understand all of my needs, yes I may have been out on Saturday but X,Y and Z needed to happen to get there, and A, B and C will happen as a consequence.
Have you heard of the Spoon Theory? It can be really useful to explain chronic illness and fatigue to others.
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Welcome badbunny. Hopefully you can gain helpful insights here which may help you to deal with the type of issues we all face.
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Do you ever suggest places to go that are accessible?0
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