Hi, my name is Suzyb1965! — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Hi, my name is Suzyb1965!

Suzyb1965
Suzyb1965 Member Posts: 1 Listener
in Start here and say hello!
My son is 15 years old and a wheelchair user.He has an undiagnosed bone Dysplasia and a scoliosis of the spine.He also has a four cm leg length discrepancy....also two crumbling hip balls......left is worse and needs a total replacement.Now we keep having problems at school....teachers rudely discussing how he walks fast so couldn't possibly be disabled.Another discussing with a class how my son is 2.2 foot tall......Another asking "remind me why you get transport to school Harry".We had to fight for a lift key because he cannot manage the stairs. 
We have had his DLA removed because he isn't disabled enough. My son is a typical boy who tries his best to get on as best as he can.He tries so hard to fit in with his friends but pain is stopping this now.Hopefully we can try and find some support with Scope .
· Share on FacebookShare on Twitter

Comments

  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @Suzyb1965.

    A very big welcome to our online community. 

    Yes you have come to the right place for support.

    Can I please point you to our home page where you find a lot off info which should help you.

    We also have a number off other groups for parents/carers to meet & discuss issues around there own health related conditions.

    There is also a number off Advisors to be on hand for a number off other topics.

    Please let me know if you require further support/help ??????? 

    · Share on FacebookShare on Twitter
  • Liam_Alumni
    Liam_Alumni Scope alumni Posts: 1,105 Pioneering
    Hi @Suzyb1965,

    Welcome to Scope's online community! It's great to have you on board.

    I'm sorry to hear about the problems you've been having - it sounds like a really tough time for you. Have you considered complaining to the school? You can find out more about complaints on the Gov.UK website.

    In terms of your DLA being removed, have you appealed this decision? We have lots of information about Mandatory Reconsiderations and appealing a DWP benefits decision on our website, which you might find useful.

    I hope this helps. If you have any questions, then please do get in touch!
    Liam
    · Share on FacebookShare on Twitter

Brightness

Categories

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.