Hi, my name is Suzyb1965!
Options
Suzyb1965
Community member Posts: 1 Listener
My son is 15 years old and a wheelchair user.He has an undiagnosed bone Dysplasia and a scoliosis of the spine.He also has a four cm leg length discrepancy....also two crumbling hip balls......left is worse and needs a total replacement.Now we keep having problems at school....teachers rudely discussing how he walks fast so couldn't possibly be disabled.Another discussing with a class how my son is 2.2 foot tall......Another asking "remind me why you get transport to school Harry".We had to fight for a lift key because he cannot manage the stairs.
We have had his DLA removed because he isn't disabled enough. My son is a typical boy who tries his best to get on as best as he can.He tries so hard to fit in with his friends but pain is stopping this now.Hopefully we can try and find some support with Scope .
We have had his DLA removed because he isn't disabled enough. My son is a typical boy who tries his best to get on as best as he can.He tries so hard to fit in with his friends but pain is stopping this now.Hopefully we can try and find some support with Scope .
Comments
-
Hi @Suzyb1965.
A very big welcome to our online community.
Yes you have come to the right place for support.
Can I please point you to our home page where you find a lot off info which should help you.
We also have a number off other groups for parents/carers to meet & discuss issues around there own health related conditions.
There is also a number off Advisors to be on hand for a number off other topics.
Please let me know if you require further support/help ???????
-
Hi @Suzyb1965,
Welcome to Scope's online community! It's great to have you on board.
I'm sorry to hear about the problems you've been having - it sounds like a really tough time for you. Have you considered complaining to the school? You can find out more about complaints on the Gov.UK website.
In terms of your DLA being removed, have you appealed this decision? We have lots of information about Mandatory Reconsiderations and appealing a DWP benefits decision on our website, which you might find useful.
I hope this helps. If you have any questions, then please do get in touch!Liam
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions