PIP, DLA and AA
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PIP Success.

NasmamuNasmamu Member Posts: 45 Connected
Hi guys.

Just an update really. Finally got the letter from DWP. Ive been put on Enhanced Rate for Care and Mobility till 2023. Im delighted. I want to thank all the people on this forum for their continued help, support and advice. It was invaluable. Special mention to @Matilda, [email protected] @CockneyRebel and @Geoark. Thank you guys.
Also for anyone reading this who is just starting their PIP journey i wanted to say this, there are alot of horror stories online regards the entire process and rightly so in many cases BUT don't let that worry you, THERE ARE POSITIVE STORIES TOO. My PIP Journey has been plain sailing all the way through, obvs reading some stories gave me sleepless nights in the begining too. I sent in zero medical evidence as i had not seen a specialist for my cerebral palsy for near on 20yrs! But i clearly explained why in my form and at assessment. I work full time and i drive too. But again explained clearly. I recorded my assessment too which may have helped. The report was 98% accurate and to be honest any assumptions the assesor made i could see his reasoning too. THERE ARE GOOD ASSESSORS OUT THERE. You just don't hear as much about them because people are much more active when sharing negative news. Those who get positive news/experiences need to share so people are not put off or anxious/stressed about the process. YES there are negatives and YES there are Bad Assessors out there but YOU CAN DO THIS. STAY POSITIVE. 
thanks again to everyone. Just the small matter of my work situation now to worry about but thats a whole different thread!

Replies

  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    That is great news and thanks for a positive post, which I am sure will give hope to many

    CR
    Be all you can be, make  every day count. Namaste
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Great news @Nasmamu

    Scope
    Senior online community officer
  • NasmamuNasmamu Member Posts: 45 Connected
    @Sam_Scope thank you. I think ive done a dis-service to you and not thanked you in the original post. So thank you very much and forgive me for overlooking you. 
  • BenefitsTrainingCoBenefitsTrainingCo Member Posts: 2,692 Pioneering
    Hi nasmamu,

    It is fantastic to hear such positive news!

    Lee
    The Benefits Training Co:
    Paul Bradley
    Michael Chambers
    Will Hadwen
    Sarah Hayle
    Maria Solomon
    David Stickland
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Nasmamu said:
    @Sam_Scope thank you. I think ive done a dis-service to you and not thanked you in the original post. So thank you very much and forgive me for overlooking you. 
    You don't need to thank me! I am so pleased for you! :)
    Scope
    Senior online community officer
  • BenefitsTrainingCoBenefitsTrainingCo Member Posts: 2,692 Pioneering
    Nasmamu 

    I'm really really pleased to hear this! and yes it's an important message. There are good assessors out there. Of course we don't hear about them so much because people don't need advice when things go well! So thank you very much for sharing your success.

    Will
    The Benefits Training Co:
    Paul Bradley
    Michael Chambers
    Will Hadwen
    Sarah Hayle
    Maria Solomon
    David Stickland
  • Mia_ScopeMia_Scope Member Posts: 32 Connected
    Such good news for you, @Nasmamu, good for you! Thank you for your encouragement.
    Mia
    Helpline Information Officer
    Phone: 0808 800 3333
    Email: [email protected]
  • TellytubbiesTellytubbies Member Posts: 28 Listener
    I.hope.my.journey.will.go.same.way.as.there.were.things.i.forgot.to.tell.assessor.she.rushed.my.interview.at.9.00am.in.morning. I forget things and my partner was.nt able to speak she told him to shut up while typing it did.nt.go very well i.m afraid so now I am preparing the worst and planing amanadory decision as I know I have failed I can't use walking stick because of my hand so that's less points I have no aids I don't bath or shower any more my carer is always helping me so happy for you that's aweight off your shoulders now you can get on with doing things again good luck well done
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    I'm sorry to hear about your assessment experience @Tellytubbies, that sounds like it must have been upsetting for both you and your partner.

    If there's anything we can support or advise you with, either now or going forwards, just let us know.
  • BenefitsTrainingCoBenefitsTrainingCo Member Posts: 2,692 Pioneering
    Hello Tellytubbies

    I'm sorry to hear that you were rushed and that you could not give a full account to the assessor of your difficulties.  

    It is not true that you will obtain less points because you cannot use a walking stick due to your hands.  The assessment is about walking aids that you normally or could reasonably use.  If you cannot use a stick then any walking distance should be assessed on the basis that you cannot use a stick.

    Please keep us posted

    Maria

    The Benefits Training Co:
    Paul Bradley
    Michael Chambers
    Will Hadwen
    Sarah Hayle
    Maria Solomon
    David Stickland
  • TellytubbiesTellytubbies Member Posts: 28 Listener
    Thanks.maria.for.that.you.have.given.me.little.hope.but.still.in.my mind I've resignations.i attended my nurse today give full blood count as doctor is worried I have anemia plus thyroid check my nurse told me that many patients come in here and forget things I have to say to them on what about so and so and your headaches also the health professionals have to go on short course before they interview you also your family member should have been allowed to speak for you as to often you can forget things if you have medical problems the tablets do have side effects in your case you forgot to mention this.
  • TellytubbiesTellytubbies Member Posts: 28 Listener
    Does.any.one.know how long it takes for pip decision I am preparing to go back to the tribunal as I feel my face to face went badly as when she left she said for me to get in touch with occupational therapist which tells me I won't get it.i.m.not.sleeping why.keep us waiting this long
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    PIP decisions normally take 2-4 weeks after assessment.

    Have you asked for a copy of the assessment report ?
    This will give you an indication of how things went.

    It sounds more positive than anything being advised to get in touch with OT

    CR
    Be all you can be, make  every day count. Namaste
  • TellytubbiesTellytubbies Member Posts: 28 Listener
    Thanks.cockney rebel.for.your.advice.i.have.just.sent.aletter.off.to.dwp.only.thing.i.keep.thinking.about.is.due.to.my.OA.i.cant.get.in.the.bath.or.shower.any.more.so.my.sister.has.to.wash.me.down.in.a.bowl.also.i.was.ashamed.of.my.house.my.brother.took.her.out.kitchen.showed.my.mess.i don't think I will get any points for this you have to have a shower or wet room I got neither my nurse says it.s easy to forget things when someone comes into your home you are not used to that time of morning so basically I must wait will let you know outcome next week I have to go to tribunal about DWP stopping my money in march I should have kept receiving this till my pip face to face 8months without my money at lower rate advice to others when considering to putting in for extra help for care seek advice they are cleaver
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    It may be that OT can advise you on wet room and any other aids that will help you.
    Don't  let the condition of where you live trouble you, it just goes to show that you do deserve some assistance

    Please do keep in touch and we will help in any way we can

    CR
    Be all you can be, make  every day count. Namaste
  • TellytubbiesTellytubbies Member Posts: 28 Listener
    Thanks CR for your support my tribunal is on Saturday would you believe it now it.s been relisted for hearing still not heard from pip I think that they will be at hearing with my result stating I failed face to face still not sleeping feeling very unwell and my depression is worst than ever now palpatations are worst is this worth it all stress and worry I don't think so i.m begining to dought it i.am.not very nice to be around at moment  but thanks for your support.
  • cathiecathie Member Posts: 143 Courageous
    Ah telly tubby I feel every inch of ur pain no sleep  doing this call that call that letter getting doctors hospital results  again and again .. feeling up down anger all sorts of feelings heart has problem beats to fast gonna come out my chest tight  hurts are they worth my life no sod them but once on this roller coaster they won't leave you alone.   Never expected do many issues reading so many going through hell  read a report today they claim 880  people wrongly assessed  treated Un fairly admitted  lies and wringing the truth  I'd say more like 80 thousand  government  claim they are going to step in come on really when they calmed population  out a bit..b think you c..t.s .. ain't getting me but dark moments  you sew they have got ya . A bloody  riot is what needs yo take place .. but oh no not us English. Oh ok then   that's us .... keep chin up girl   stay strong in ur mind .. plan b only if it comes .. is what we should be thinking .. disgraceful  what's going on ,
    Only me .. cathie..
  • clive3314clive3314 Member Posts: 6 Listener
    hi my story....i had the usual dla is ending letter may20th 2018 rang applied for pip had my how my dissability affects me form arrive so got help filling it in at my advice centre,i was on dla for 15yrs with lumbar spondylosis,had mri scan done when first went on dla,sent form off with a medical statement from my doc and a copy of my mri scan results which showed crumbling discs etc,had my assesment date come through 4 wks later got to chelmsford and 5mins away frm center got a call it was cancelled so was told to still turn up to claim travel expenses,got a new date 3wks later went again by my neighbours car he helped me,great assesment lady polite and agreed i have problems etc said i got nothing to worry about asked some questions about my everyday coping did couple body movement tests,so came home and waited 5 weeks passed i was a bit concerned with how she said id be fine n just be transfered to dla etc after i heard how they lie,but behold a letter came frm dla i was awarded enchanced mobility and standard daily living,same as my dla was really (high rate n lower rate) she told the truth and gave me the points i needed,she was really nice to me n kept her word im well happy!

  • clive3314clive3314 Member Posts: 6 Listener
    i told assesor id heard so many people had had a bad result cause the assesor lied etc and she said the problem with reading online comments is its mostly the bad ones never the good results,guess i was lucky
  • Mum72Mum72 Member Posts: 8 Listener
    You really were lucky!

  • clive3314clive3314 Member Posts: 6 Listener
    yes last assesment i had in 2015 for incapacity to esa wasnt good got no points by assesor even though it was obvious i was dissabled to a point but dwp overturned her report and gave me 18 points (15 was needed)  i was 64 then and due to reach state pension a month after so maybe they took this into consideration,i also never had my mri scan results which showed severe back problems,but since ive got a copy this has made all the diffrence as my pip assesment lady said it shows my back is a mess,and with my struggle to get around its obvious i have problems,the hospital has made me a back support belt which helps a great deal as its moulded to my mishapen back,together with tramadol pain killers which help slightly..
  • clive3314clive3314 Member Posts: 6 Listener
    edit ...i was 65 then lol im 68 now and my condition is as the assesor said 'ongoing and not likely to get better infact worse with age' ....she said id be reviewed in 3yrs time so not to bad
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