I suffer with debilitating osteoarthritis in almost every joint in my body — Scope | Disability forum
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I suffer with debilitating osteoarthritis in almost every joint in my body

karenfielder
karenfielder Member Posts: 6 Listener
I suffer with debilitating osteoarthritis in almost every joint in my body, just waiting on another op to my left thumb, another trapeziectomy :-( 8th Jan, nasty op and a lot of physio but at least it will alleviate the pain for a while.

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,673 Disability Gamechanger
    Hi @karenfielder welcome to the community, I am sorry to hear you are having such a rough time.  Are you getting much support? Have you seen anyone from a specialist pain clinic?
    Scope
    Senior online community officer
  • Chaoskay
    Chaoskay Member Posts: 74 Courageous
    Sorry you have to deal with this @karenfielder.  Constant pain must be horrid to live with and you have my sympathy.  
    I suffer from inflammatory arthritis, but it only flares every now and then, but when it does flare the pain drives me nuts.  I have found a lot of support from others who understand, through chatting on the Internet to fellow sufferers.  I do hope you find that a help on here too.
    Let us know how your operation goes and wishing you a swift recovery and less pain hopefully too.  
  • karenfielder
    karenfielder Member Posts: 6 Listener
    Yes Sam I have been to pain clinics; Spinal pain classes for my back, knee pain control classes for me knees and many ops on my hands - I don't think that they know what to do with me anymore :-(
  • Singers11
    Singers11 Member Posts: 5 Listener
    Hi. I also have Arthritis. I have it in my both knees, right ankle, left hip and my back now they are saying I have it in my left thumb. They are saying I can either have streiods injection or wear a splint. I know people who have had the operation but it didn't work, so for now I just wear a splint when nessesary. 
  • karenfielder
    karenfielder Member Posts: 6 Listener
    I did find tht the Trapeziectomy op on my right thumb worked brilliantly - it kept me in my job an extra 6-years before getting retired off early for ill health.  I am due to have the same op on my left thumb on Jan 8th 2018.  Usually if the injections work then the op works; they say if you get no benefit from injections then the op will rarely work.  Good luck with your decision.
  • janejr
    janejr Member Posts: 144 Pioneering
    Hi I'm new to scope and also have osteoarthritis in all of my joints. I find the constant pain very wearing and depressing and always feel worn out. Simple tasks like taking care of myself and light housework is all I manage and some days struggle to get out of bed. I have a disk desease in my back and so far have had 6 slipped disks. I haven't been to a pain clinic and would like to ask what that entails and does it help
  • Misscleo
    Misscleo Member Posts: 647 Pioneering
    Your lucky you got X rays. Most sufferers get nothing
  • deb74
    deb74 Member Posts: 782 Pioneering
    hi. i think a lot of us can sympothise. life is not easy with arthritis. cooking, general housework and even getting dressed can be a struggle not to mention getting up and down the stairs. 
  • shellybelly
    shellybelly Member Posts: 3 Listener
    Hi all I can see a lot of you are suffering with chronic pain me 2 with fibromyalgia & osteoarthritis  in all my joints it does get me down the pain, depression tried many things the lidocaine intravenous does help for about a month give 6 monthly wish could have more long term to get away from this pain as don't want to suffer 20/30 yrs more as I've suffered from 2003 It's too much I know how you must all be feeling cos until you go thru it & others like yourself suffer this is very debilitating.. & tiring xx
  • Misscleo
    Misscleo Member Posts: 647 Pioneering
    Have arthritis. Fibromyalgia.  Gout. and ibs
    Every job is a struggle and im fed up with people who visit and come up with. When did you last vacuum?  3 days before acually.
    my brother makes those sort of remarks. Iv started telling him to p.......f. 
    I thought it was because hes not got any pain. But i think theses alot of hate crime in the remarks he makes.
    The law needs to sort out people who committee hate crime. 
    No one should beable to bully you cause your disabled
  • Springtime18
    Springtime18 Member Posts: 21 Connected
    I also have had psoriatic arthritis since 21 and for the last 3 yrs osteoarthritis, my hands are deformed, my back, ankles, knees, toes and elbows are affected, I am on stelara injection, naproxen and co dydramol im also so pxxxxd off with the pain and people mainly family just not understand that it makes me so tired and depressed, this along with diabetes type2. I desperately want to lose some weight but if i. Excercise the pain is worse, and I'm always so stiff, my mobility car was taken when switching from dla to pip so I'm home most days, I would not wish this on my worst enemy

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