If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is Smally!
Options
Smally
Community member Posts: 2 Listener
I have a whole raft of invisible disabilities; Narrow Angle Glaucoma, Dysphagia, Barrett's Oesophagus, used to have severe acid reflux which they tried to fix with Nissen Fundoplication (x2), Fibromyalgia, previous SVT now Tachycardia, Osteoarthritis, Plantar Fasciitis, Fallen Arch, recent Sleep Study shows Periodic Limb Movement Disorder and currently being investigated for Colorectal Cancer (although GP thinks it is actually Colitis or similar). Am 51 but feel at least 90 most days! Also caring for my Mum when I can! Got a PiP Assessment later so cannot sleep...
Comments
-
Scope
Senior online community officer -
Hi @Sam_Scope
Thank you for the welcome! Think the assessment went ok thanks, but you never can tell. The Assessor seemed ok but in my experience they are the ones to be wary of.
No idea how long it will take to get the decision but at least there was an Assessor there this time - my original appointment was on 15 December. Took 1.5 hours & 3 buses to get there, only to be told that the Assessor had not come back from lunch as they had gone home 'sick' and there was nobody else there who could see me that day so it was rescheduled to 04/01. I was gobsmacked to say the least!
How are you doing? -
Oh my goodness! That is terrible,.Im not sure if you are aware, but you can claim back your travel costs to and from your assessment.Scope
Senior online community officer
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.