Hi, my name is Phyllis_Graham3!

Phyllis_Graham3

Hello, I'm from Tyrone but now in Belfast for 39 years now.. and would like to meet anyone with Aniridia in N. Ireland please?

Pippa_Alumni

Hi @Phyllis_Graham3, and welcome! You may like to chat to @welleyenever who also has Aniridia.

welleyenever

Thanks for the tag @PippaScope!

Hi @Phyllis_Graham3! My name's Glen and I have aniridia and nystagmus. I live in London, but am very happy to chat to you or anyone else with the condition. I also blog about my condition and experiences, which is how Scope found me.

Are you aware of Aniridia Network UK? I'm a member and give a bit of voluntary help with their communications and social media. There are a few Irish members. I can't put you in touch with them myself, but if you contact the charity using the links below, someone can advise you accordingly:

Website: https://aniridia.org.uk
Contact Form: https://aniridia.org.uk/contactus/
Facebook: https://www.facebook.com/AniridiaNetworkUK/
Twitter: https://twitter.com/AniridiaNetUK

You might also want to say hello in the Aniridic Family group on Facebook if you're not aware of them either. It's pretty active and they've got members from all over the place:
https://www.facebook.com/groups/aniridicfamily/

Hope that helps, but if you have any questions for me, feel free to give me a shout.