chronic migraine — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

chronic migraine

loubielou47
loubielou47 Member Posts: 2 Listener
edited February 2018 in Chronic pain and pain management
Hi everyone. I don't know if I should be on here but I'm exhausted from the constant pain from chronic migraine. I get at least 15 a month so one rolls into the other. I'm already on warnings at work ( I work for the NHS by the way ). I have lost 15 years due to this and am drowsy with drugs and have BOTOX therapy for it too. I'm on my own with my daughter who is in 6th form preparing to go to university so pressures are high for me to keep working.  Is there any help out there to make my life less difficult xx
· Share on TwitterShare on Facebook

Comments

  • Lasian_Alumni
    Lasian_Alumni Member Posts: 659 Pioneering
    Hi @loubielou47!

    We have had previous discussions about chronic migraines in this group, so hopefully some of our members with similar experiences can offer some advice and support.

    I'm sorry you're having a tough time, please do let us know if you have any questions.
    · Share on TwitterShare on Facebook
  • juals
    juals Member Posts: 9 Listener
    Hi I used to suffer too and would have a mild stroke with mine. I was told to have a certain piercing done in the ear. So I decided I wasn’t going to loose anything by having it done. It was the best thing I ever did. I haven’t had a migraine since. The other day I had the usual squggly lines, I pulled my ring backwards and forwards and they went. No migraine afterwards. I thoroughly recommend everyone who suffers to have this done. Hope this helps? If you get it done it will help believe me. 
    · Share on TwitterShare on Facebook
  • Nystagmite
    Nystagmite Member Posts: 603 Pioneering
    The piercing is called darth.

    I've heard mixed views about that one.

    I get them sometimes. Currently take Maxalt and Topiramate, which for the most part work.
    · Share on TwitterShare on Facebook
  • loubielou47
    loubielou47 Member Posts: 2 Listener
    Thank you for the comments I take topirimate and the Masala during an acute attack. also BOTOX every 3 months and trigger point injections from the pain team. my daughter had a daith piercing didn't work for her. Also neurologist didn't want me to have it done as it would give false readings in the headache diaries x
    · Share on TwitterShare on Facebook
  • juals
    juals Member Posts: 9 Listener
    sorry it didn't work for your daughter but everyone I have spoken to who have had the piercing said it has worked for them. But I suppose we all take different medication for the same reason.
    · Share on TwitterShare on Facebook
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,799 Disability Gamechanger
    Hi @loubielou47, I just wanted to add my sympathies as I've suffered badly with chronic migraines in the past. Whilst your neurologist is the best person to offer medical guidance, you might also want to look at The Daily Migraine which can be a great place to find peer support and encouragement.
    · Share on TwitterShare on Facebook

Brightness

Categories

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.