Hi, my name is quierosd!
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quierosd
Online Community Member Posts: 1 Listener
I have and suffer pulmonary fibrosis a delibitating disease which has no cure as yet....Have coped alone as best I can.for 10 years.it is a life limiting illness coupled with osteoporosis and arthritis and I feel now so broken and lifeless can you help?i have a dear daughter and don’t ever tell her how I am really.
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Hello @quierosd and welcome to the community. Really, really sorry to hear about your difficulties. You're probably aware of it already, but I just looked up the following which is support, including local support groups, by the British Lung Foundation:
https://www.blf.org.uk/support-for-you/pulmonary-fibrosis/support-groups
If it will help just to talk about it with a friend, I'm listening, and there will be others here among the community. So, tell us more, or have a scout around the site and see what you can find. The most recent discussion I could find was from August 2016 - https://community.scope.org.uk/discussion/29689/i-have-idiopathic-pulmonary-fibrosis-would-i-be-able-to-get-help-with-dla-pip and there may be some useful bits in there. In the meanwhile, don't hesitate to ask any questions or to tell us more about yourself that might enable us to help.
Warmest best wishes to you,
Richard1 -
Welcome to the community, @quierosd! As Richard says, I hope you at least find comfort in being part of our community. You may be particularly interested in our disabled parents category.1
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