PIP - zero points - how many of us?

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Nystagmite

PIP has also excluded people with certain disabilities completely. There's nothing, for example, about night time care needs. So if you've got something like nocturnal epilepsy, you won't get PIP. You also won't get PIP if your only condition is something like diabetes. It seems to be aimed very much at sensory impairments and mental health issues.

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Neil06

It's my 3rd time applying for PIP I love the assessor to go through what a lot people that are applying for PIP are going through on a day to day biases. I suffer with sever anxiety and depression and paranoia after I severely attacked I also was diagnosed in 2016 with chronic fibromyalgia and don't no what sort day am going have with the chronic pain it gives me though out my body I get server tremors that mimic Parkinson's which got my family worried thinking I did have Parkinson's to find out the tremors are part the fibromyalgia it takes me longer to do things yet when I had my PIP assessment that was done by Capita the assessor lied all though out her report and would not let me explain how my condition effects me on a day to day biases I put a complaint in to capita round this I am now having to go to tribunal as the DWP turned my mandatory reconsideration down the day after I called them to say I was requesting on and I would be sending into them in writing what I was appealing against and all the evedince that their decision maker said that their was none from any the specialist medical teams I am under. The government are not helping the people that need it and under the equality act 2010 disabled people are been singled out.

Salamka101

@Victoriad
You really need to  read what I wrote more carefully t very clearly stated that the 75,000 have lost their vehicles since the changeover to PiP began . ..I also made it clear that while I do not begrudge a single penny of the extra money you and millions of others are getting as a result of PiP that was never the intention of the Governmen t . If all was as intended why did the Courts have to step in to declare illegal changes on mental health the Government tried to impose? 

Spending on disability is, according to their own figures up by a third (£10 billion) and 1.6 million rejected claims are having to be reviewed. This drastic overspend has resulted in drastic, even frantic steps by the DWP to slow the whole process and it is these steps, particularly delaying tactics, lies and deceits that are bringing pain and suffering to thousands.

Just because you personally are better off as a result of the mess the government have got themselves into you should not be so quick to take an 'I'm alright Jack' attitude to those who have lost out.

 For the record I too am financially better off under PiP, I get almost £80 a week into my bank account as against the £55 a week my mobility vehicle was costing BUT the consequence for me is that I am a virtual prisoner in my own home 

I stand by my assertion that PiP is a disaster, while many have gained, you included, a significant number have lost their independence and that is what the 'i' in PiP was supposed to stand for. 

Neil06

@lillybelle yes I totally agree you need daily care as you have got to have someone to care for you on a daily biases in case you have a seizure how are you meant to administer your medication when your having a seizure or to has you have said change sheets when soaked the government make out that they care about people with MH or a disability but really they don't they see us has a burden on society but that is my opinion that is why they brought in PIP but under the Equality act 2010 the government was found in the high court to be discriminating against desabilit people and not given them the benefit they need for their disability.

Matilda

I don't think night-time care need have been excluded from PIP, just that PIP does not separate night and day needs as DLA used to.  For example, if you need help using the toilet during the night then that counts under PIP.

Nystagmite

A friends daughter is diabetic. I'm sure she'll be glad to know that her condition can be managed by her diet...

Oh sorry, they do that. It doesn't stop the hypos or having to visit the hospital because they can't control her blood sugars.

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CockneyRebel

Victoriad said:

Hello @Salamka101
I also fail to understand how you are a prisoner in your own home if your vehicle costs £55 but you get PiP at £80.

Why not use £55 from your Pip award to pay for your vehicle so that you can keep your independence, as I assumed that PiP was to help us with our daily living and should be used accordingly.

It is only possible to swap enhanced rate mobility for a motability car. You cannot opt to pay for a motability vehicle from any other source.

CR

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whistles

jaycee6 said:

Another problem is Dla had  3 rates now we are down to 2.So you can see they have got rid of those on low care.Also now walking distance has been reduced so they can get rid of cars.What is the future just 1 rate where only severe cases get benefit.and people who cant walk at all get a car.It makes you wonder what the furure will be.

I realise the dla and pip benefits are meant to be different.
One assesses your ability to work and the other to " live" in quotes because I do not believe the system is actually designed for any kind of life. If you have a friend that's communicating and 0 points. 
I have gone from middle care and low mobility to no care and high mobility ( still waiting for the assessment report) 
Anyone who gets the ESA disability premium add on, I believe this is linked to receiving middle/ high rate DLA. So if I actually do not get standard care I think I will lose my premium as well? 
If this is the case isn't PIP secretly cutting TWO benefits. 

whistles

Victoriad said:

Hello @Nystagmite

Night time care needs have been excluded from Pip because this award is designed for daily living.

Which is why I was awarded care before and likely nothing now.
My conditions don't care what the time is, they effect me whatever it is. 

whistles

Can I make a suggestion to the financial issues this country has.

Stop sending money overseas that we haven't got. No offense here I realise that their are people living a lot worse that us, yes there are disasters- but if we are falling apart under debt- we cannot afford to send in the first place. 

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wilko

@ whistles, we all know where your coming from on this, what annoys a lot of people is with all the money that is donated by the public and government alike why are people still drinking dirty water?? Everyday we see adds for water aid ect funeral plans save the Tigers where does it stop or end.

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Waylay

@Victoriad, you really need to do a bit more research, and maybe try not to be so judgy. Some diabetics are helped by adopting healthier diets, but some aren't. My friend's blood sugar is all over the place, despite the fact that she eats extremely healthily, tests often, and has an insulin pump. She's 34, was diagnosed at age 10, and had cataracts in both eyes by the time she was 28. She had surgery on both eyes last year. She had nerve damage and pain in her feet and legs by the age of 20. She's on 2 meds for high blood pressure, eats very healthily, is skinny as a rake, and exercises, and yet her blood pressure remains a little bit too high. Her kidney function is at about 30%, and her consultant is predicting that she'll need a transplant in the next 5 years.

Obesity is *much* more complicated than you appear to think. For example, many medications cause weight gain (I'm skinny as hell, and always have been, but when I went on Mirtazipine I gained 2 stone in 5 weeks!). If one is in severe pain, severely fatigued, or severely depressed, exercise is extremely difficult, and weight gain can easily result. Obesity also has a fairly major genetic component, which lifestyle changes won't do anything about, as well as a huge emotional/mental health component. Several studies have found that a fair percentage (I think it was about 9%, but my memory sucks) of obese women subconsciously become overweight or obese because they've experienced rape or childhood sexual abuse, and they subconsciously think that being overweight will make it less likely that it'll happen to them again. Many people overeat to deal with difficult emotions (which often result from childhood neglect and/or abuse, trauma (including poverty and loss of a parent in childhood), domestic violence, rape, mental health problems, etc. etc.), just as many of the rest of us do other destructive things: drinking, drugs, driving fast, self-harm, obsessive cleaning, perfectionism...

By the time you have COPD, a change in lifestyle ain't gonna make much difference. Stop smoking, of course, but that won't cure the COPD. Perhaps they smoked a ton in their 20's, but then stopped. I did some really stupid stuff in my 20's, which is my responsibility, but I don't blame myself for it. I was younger, stupider, and far more suicidal then. Also, 20% of COPD sufferers didn't smoke.