PIP, DLA and AA
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Poor PIP experience

Bear1Bear1 Member Posts: 3 Listener
edited March 2018 in PIP, DLA and AA
I am am in the process of having to apply for PIP having recieved DLA at the higher rate for both components. After filling in the lengthy form and fully explaining how rheumatoid arthritis effects my daily life (have suffered over 20yrs with it and it has got worse) all my joints have gone to bone on bone pain is excrutiating and walking is a labour. Unless people  it they do not fully understand. Anyway I went through my interview/assessment with the health proffessional - in fact a paramedic! However from onset I knew his interest in me was nil - on ticking his points off on his laptop and at the end I felt insulted by his interest- in fact no more than a number to him. Got my result back yesterday and only awarded the lower daily living benefit after receiving DLA at higher rate for both parts. Nothing had changed in my condition except getting worse, so what difference has changing the name to PIP been the. Difference to reduce my grant? Well I have gone back to have my decision reconsidered. If that fails I will appeal further to a tribunal.
anyone going through this has my sympathy.

Replies

  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hi Bear and welcome

    Sorry you are going through this. I know the pain you are in.

    It is important to understand the difference between DLA and PIP
    Have a look at the B&W self test to get an idea of the points system, descriptors and criteria

    http://www.mybenefitsandwork.co.uk/pip/indexxx.php

    CR

    Be all you can be, make  every day count. Namaste
  • mikehughescqmikehughescq Member Posts: 5,936 Disability Gamechanger
    Please bear in mind that there’s nothing in the PIP regs to suggest anyone on one rate of DLA ought to come out with a PIP award to an equivalent amount. If that were the case then what would be the point of a new benefit! Similarly, the fact that a condition is the same or worse is also nothing to the point. Coming out with the same amount is an understandable aspiration but largely irrelevant. Better to self assess and see if your aspiration is realistic. 
  • wilkowilko Member Posts: 2,284 Disability Gamechanger
    @Bear1, as the two previous post have stated DLA and PIP are totally two different benefits with different scoring criteria, take a self test on the benefits and work site as sujest end by CR, if you do you will see if you would or could be awarded PIP by the points scoring criteria. 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    The purpose of PIP is to try to reduce or remove disability benefits, differences between DLA and PIP apart. I was on indefinite DLA top rates both components. Reduced after assessment by a lying and incompetent Atos paramedic to standard both components PIP. Tribunal awarded me enhanced both components.

    So don't give up as 65% of appeals succeed.  Disabilty Rights UK site has a guide to PIP including appeals. And the Disabilty Rights Handbook is very good though you have to buy this - available from the Disabilty Rights site.
  • Bear1Bear1 Member Posts: 3 Listener
    From Bear1. 
    I fully understand DLA/PIP requirements, but what would be nice would be for an assessor to treat you as a person when talking to you, not one to talk at for the purpose of ticking boxes off. I do not need to be patronised, it is hard enough living with Rheumatoid arthritis every day.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    I don't know whom I had in front of me. Paramedics who turn up on a three nines haven't heard of my condition anyway. So I didn't ask.

    I think it must be subjective what they see in front of them. 
    I went from middle care low mobility, to no care and high mobility.
    When I did the self tests I made it a 6, 7 or an 8 depending on the day I was having. But always low or no mobility.

    My assessor wrote he couldnt help with anything not covered in the description. So there wasn't a doubt I did need help it just didn't slot into the boxes.
    Do not follow me, I don't know where I am going.
  • Bear1Bear1 Member Posts: 3 Listener
    Whistles. 
    It is good to know there are people out there who understand RA and that there are good and bad days, mostly the latter.  I only hope things improve. Ps awake at 3.am doing blog because woke up with pain. PIP doesn't see that. 
    Bear1.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    I think this is where pip fails some people. There is no night time care anymore.  So even though they say they are talking about daily living, if you can't sleep that effects the next day of your daily living but it might not be all the time. 
    Do not follow me, I don't know where I am going.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    There is no distinction between night and day with PIP, although many of the descriptors fit mainly with daytime but certainly help with Toileting might be needed at night

    CR
    Be all you can be, make  every day count. Namaste
  • mikehughescqmikehughescq Member Posts: 5,936 Disability Gamechanger
    edited March 2018
    That’s incorrect. Whilst PIP rates no longer use day and night to determine the rate of benefit as per middle and higher rate DLA care and both rates of AA, PiP absolutely does take night time daily living and mobility needs into consideration.

    The problem is more a procedural one. As there’s no questions aimed specifically at distinguishing between day and night people usually forget to mention where for them there are differences. If mentioned, they get taken into account.

    Edited @CockneyRebel to say that comment not aimed at your post. We obviously posted near simultaneously.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    LOL mike
    we do think along the same lines at times, I for one value your expertise

    CR
    Be all you can be, make  every day count. Namaste
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