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Hi, my name is Joanne Crawford
I am a disabled mother (recovering Cancer patient, Polymyalgia, mobility issues and possibly with an autistic child E (they/their) with an number of disabilities, recently turned 18. We live in North Wales. Our family have been fighting for years to try to get help from Schools, CAMHS, Education, SS and more since at least 2014- badly let down by all agencies except School nurse and GPs. Recent change in LEA Chief officer has resulted in finally being heard. Finally, late 2017, E was assessed as ASD, and got their first SEN statement early 2018 - just before E turned 18. I am awaiting an ASD assessment too. I am trying to help others in our area having similar struggles with the various agencies, and when well enough E has also helped advocate for other kids and for change.