Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.

Hi, my name is Joanne Crawford

Options
JCrawford
JCrawford Community member Posts: 1 Listener
I am a disabled mother (recovering Cancer patient, Polymyalgia, mobility issues and possibly with an autistic child E (they/their) with an number of disabilities, recently turned 18.  We live in North Wales.  Our family have been fighting for years to try to get help from Schools, CAMHS, Education, SS and more since at least 2014- badly let down by all agencies except School nurse and GPs.  Recent change in LEA Chief officer has resulted in finally being heard.  Finally, late 2017, E was assessed as ASD, and got their first SEN statement early 2018 - just before E turned 18. I am awaiting an ASD assessment too.  I am trying to help others in our area having similar struggles with the various agencies, and when well enough E has also helped advocate for other kids and for change.  

Comments

  • JennysDad
    JennysDad Community member Posts: 2,298 Disability Gamechanger
    Options
    Hello Joanne @JCrawford and a warm - if slightly belated - welcome to the community. We must have been short of bodies on-line earlier. 
    I used to work as a learning support assistant with youngsters on the spectrum and I know only too well the kind of difficulties you must have encountered. I am very glad that at least the school nurse and your GPs have been supportive. And don't get me started on CAMHS... Sheesh.
    You might like to have a look through our categories, here   https://community.scope.org.uk/categories to see if there is anything of particular interest to you and, in the meanwhile (and once Easter is over!!!) I am sure people will be in touch with you who can relate to what you have been through.
    You and 'E' are clearly heroes, Joanne, and it's an honour to meet you, but please, please, please let us know if there is anything we might be able to do to support the two of you.
    Warmest best wishes to you both,
    Richard
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.