Mental health issues
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crippscripps Member Posts: 412 Pioneering
edited April 2018 in Mental health issues
I’ve just got no fight left in me at all. My social worker and careers have won, everyone can do whatever they like I’m finished !!!

Replies

  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @cripps
    please call your doctor or a helpline the  Samaritans.

    you sound very low. I feel you really need help right now.

    can you call someone?
  • crippscripps Member Posts: 412 Pioneering
    I would love to but no one on my side anymore everyone is so  aggressive, my consultants my social worker. SORRY 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @cripps don’t be sorry, you’v nothing to say sorry for.
    Please even call your gp surgery to see if you can talk to your doctor.
    Please just try to call them.

    Sounds like you need to talk. With all due respect, do you have a mental health problem?

    Im not sure what your health problems are.
    sorry if that sounds direct I’m just concerned for you 
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  • crippscripps Member Posts: 412 Pioneering
    I really need someone to talk to all this has been going on for at least 3 years and i feel like I’m going to pop, just tried to have a conversation with my social worker about half an hour ago and see couldn’t get off the phone quickly enough. The only way to talk to a doctor is to book it a day in advance and my consultants just wants to get rid of me and wont fix my severe pain. What’s wrong with the world!! Don’t worry I’ll just carry on , thanks anyway just needed to let off at little frustration. 
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited April 2018
    If you can't talk, write.
    I wrote everything down, then when I was calmer I bullet pointed it for my gp and posted it.
    They did a ring back because I couldn't call.

    I don't know your age or what's happened. But just a heads up if you are female and going through the change, it pays with your emotions and can really make you low.
    Apologies if that's not the case.
    Also meds that decide to stop working, again can make you drop.



    Do not follow me, I don't know where I am going.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @cripps
    No if you call the doctor now and say how your feeling to reception and in sure the doctor will call you, mine did for me.
    Your situation obviously needs to be fixed, and I’d be reporting the social worker.
    The social worker is supposed to be there for you!

    i understand you need to vent but I still think you need to see a doctor 
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited April 2018
    I no longer have a social worker. It's just the team.
    If they don't answer the phone they don't call back.
    So I would do gp first off. 
    Do not follow me, I don't know where I am going.
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  • crippscripps Member Posts: 412 Pioneering
    Thanks everyone I’ll have a think and by the way I’m a 54 year male with no family and very bad temped social worker. Can’t think the last time she ever did anything good for me, every time i speak to her it’s a take it or leave it attitude. I must say what a lovely bunch you are on this forum. A big
  • crippscripps Member Posts: 412 Pioneering
    I’m back just to keep you all on your toes. 
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  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @cripps I totally agree with @Victoriad.
    I would be contacting the social work department and raise your concerns about the way your being treated, it’s not right 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @cripps Good morning so sorry this is happening to you.  Have a think what would you like to happen right now.

    Write down what are the issues that bother you.  The illness, the disability, the situation you are in.  The whole thing in plain English and make copies to give to senior people in your care.

    Understand this happened to me.  Lots of times, especially my mental health care.  Also please can I add am a 53 gent who lives on his own. Got no family, because they were the problems. In my case with my disability and health care.

    Then the mental health charities tossed out after what they thought in their own opinion .  

    What a mess. Understand this is about you. My concern is that you are being rail roaded, rolled over by the system.  This is not right and am so angry for you.

    No one is listening. Spoke to social worker on the phone.  I had one like that. So I did ring and the irritation of the women on the phone was annoying.  Told her so in no other words you will not talk to me like that please.  Or in one instant recorded the calls. So the care managers could hear what is going on.  Social Workers, Support Workers, Care Assistants, CPN all of them under so much strain and stress.  My own support had over 15 clients every fortnight could not cope.

    Under funded over burdened. As you will be like my good self do not wish to bother any body but you need help and support.

    Understand this I had to have balls and start to cause ructions amongst the support I was getting. I am not nasty, I am not horrible but arguing was pointless.

    This my strategy for dealing with the staff and care profession.

    First thing was write what I want and say what I want.  Make it clear, not angry not nasty but precise and clear what you want from a care provider.  Write to the manager in writing add.  I have a copy of this for my own records. Sent copies to various people.  If necessary.

    Understand if ignoring calls or letters or Emails go over her head which I did. Next level.

    Appointed an advocate straight away to represent me. All meetings all Doctor's Appointments, Welfare and other meetings.  Have addiction history, so fear of relapse was a possibility.

    Plenty of those around on the web or SCOPE will advise.  Understand this appointed Rethink a mental health charity.  Doctors' my best friend, mental health charities got a kick up the bum. Do not like to cause a stink or fuss.  This was me. Am old fashioned gent and expect standards.  Know you do as well.

    Part three is you. You are important and special, no 1.  Understand also I am a Christian try to put others first but . Not my health.  Have coping mechanisms, numbers to call people to speak to.  Thoughts emotional need to talk.  Because it is hurting me. So need to talk.

    Have had enough myself last mental health charity treated badly, tossed about, walked over. Left it, by the way had a Team Manager who complained all the time. About me, not because am awful, horrible. Very polite and sincere because I have ways to do things. Saw so much hurt and pain and misery from ex clients. When I left usually send a form to fill in.  Survey how was your experience. Did not send me one.

    All these charities, care providers all good on the outside. All ticking boxes. PC nuts can not say or do anything. Me and you time , generation when people cared. Not today. Absolutely all about money, schedules, conveyer belt.

    Some of the charities have to hit targets have assessments on clients all the time. 

    My concern is you right now. Being going on three years well. Understand that today it stops. Make some waves I did and look what happened to me.

    You need to start to make waves and say what is going on. No one listening start at the top.  Speak to the most senior person in the organisation.  I did and it changed for me. Then appoint a advocate.

    Please can I add me strong as a friend am here, you can do this. I had to and continue to do so.

    Take care

    Am here to listen but also as a friend need you to start believing you can do this. I can not help you have to do this.





    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • crippscripps Member Posts: 412 Pioneering
    Morning thank you that was well worth a read. I’ve just had my career in and she is supposed to stay for about 1 hour but after helping me to wash and dress and make me a brew she thought that was it and left, all that took around 30 mins so that’s it now till 5 tonight. I’ve got no drinks and no food, I’m supposed to sit in my wheelchair for the next 6 hours with nothing. Like you say i need to do something because I’m not sure how much more i can do this, oh and she was supposed to help me with my medication , I can’t get in the packet properly and really not sure what to take so let’s hope i get that right. Need to make phone call and sort this c—-p out. Thanks for the post I’ll keep hold of it and read again. NC
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  • charlenecharlene Member Posts: 555 Pioneering
    Hi Cripps, so sorry you are going through all of this.  Like your carer, my mum's carer took advantage , and left early.  If you are due to an hour of her time, make sure you get it.  I agree with others , that you should change your social worker.  All the very best CG
    When the going gets tough, the tough get going.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @cripps Sorry it is not good to hear all these stories you are telling us. Are you writing them down.

    Understand I ask right now, write down everything you have been through.  Diary keep a log and say to the support that. Why are you not saying anything to the care who arrives. Please can I have some food please can I have a drink. 

    Problem is if you do not say or even state what is happening. Then they will walk over you.

    One thing I learnt is having carers is a non stop job on to the next one. I have been there with mates.  Ring, ring my phone or mobile goes off. She aint here got no breakfast.  Up I get sling on jimjams and tired ill myself across down the road. Making tea toast, giving my mate a wash or a sort of one. Helping dress and the rest. I struggle dressing some days myself. So both of us either arguing or I am telling him you can do that.

    I do not do toilet duty for mates you can do that.  May I ask what can you do.? By the way all my mates several were in wheel chairs.

    She saunters in around hour late sees me. Who the hell are you?  I said the same thing back and next five minutes she got her eyes and ears pinned back as I am telling her.

    Point no1 you will be here at the designated time .  You do not arrive late.

    Point no2 This is a disabled friend and mate you will respect him all times.

    Point 3 You time is his time right now you need to sort him out.

    Point 4 Understand you have other clients this is the time for him. If he wants help and support. You help. Also lastly

    Point 5. He has the right to dignity and also the right to complain if you do not adhere or make feel cared for.

    Please do not be nasty or rude. Say what you want.  See my points clear, precise and straight forward.

    By the way had so many of these calls constantly . Usually met at disabled centres or associations. That had to put a block on my phone and ended up complaints numerous times to care co ordinators and such charities.

    My own support worker even her was astounded the amount of calls. Plus of cause it was concern for me. Because of stress I was receiving from my friends.

    Remember I am ill and disabled myself .  Back then had addiction plus numerous anxieties. Tried to keep in touch help them. Yet at the request of my own support.  Walked away.  Effecting me mentally and physically. Spent more time helping them as never helping myself.

    Need now to focus on me.  Been twenty years plus so have still these reminders like your story. I need to say right now, you have to if you please can try to get this sorted.

    Lost friends because of inadequate services and staff.

    Love to see in this sector performance pay. You do a job get basic salary but also performance pay based on the words of clients.  Understand they do a good job get more money. Do not do a good job removed and no money.

    Remember as I said, I know you are in a wheelchair . How and what can you do for yourself. Need to try to think and adapt best to your circumstances. I know that. Changed lots of things myself had to.

    All we can do as a community is to advise you and support you. You have the final words. People have made a loads of suggestions.

    Please can I add you have the power you do. Starting today. I know this all started because of SKY TV.  The opportunity is there to stop this mis treatment.

    Understand if you saw some one hurting what would do , think of that.

    Take care
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • WaylayWaylay Member Posts: 922 Pioneering
    *hugs* if you want them, @cripps. I'm almost there myself. It does get better.
  • crippscripps Member Posts: 412 Pioneering
    Thanks hugs good every one needs hugs
  • charlenecharlene Member Posts: 555 Pioneering
    Can I join in this group (((((hugs))))) too.
    When the going gets tough, the tough get going.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @charlene
    havecyou heard about your MR yet.

  • charlenecharlene Member Posts: 555 Pioneering
    Hi Susan, not as yet. Been waiting 4 weeks now.
    When the going gets tough, the tough get going.
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    So sorry to hear you've been feeling low, @cripps. If there's anything we can help you with, please do let us know. As the others have said, it might be worth considering changing your social worker?
  • crippscripps Member Posts: 412 Pioneering
    Thank you for your concern, I’ve had a really bad morning speaking to my social worker she wanted to cancel my career because i didn’t need them on a Wednesday because i see my councillor and I’ve been asked to go on a day out on Sunday. So what do i do for the rest of the week and am i supposed to say no to everyone because my careers are coming, I’ve got people and friends trying to help me because otherwise i wouldn’t see the light of day. I’ve tried asking the careers to take me out but they said they can’t because of health and safety, it all seems very unfair, all they have done is tried to railroad me into doing what they want me to do because it’s easy for them. Feeling very let down and very upset, I’ve had a cry
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Do you get a Direct Payment? This is for you to pay for your care and services that the social services have assessed that you need.
    When was the last time you were actually assessed? 
    It is not imo down to the social services to cancel a carer, this is down to you to reschedule etc. They come in to meet your care needs, having someone visit or going out shouldn't change this. That payment is four you to choose your services.

    As for not going out, my carers role does not extend beyond what they actually do. They do not get paid to take me out. If I wish to do that I have to use my pip and employ a private organisation. It was decided I didn't need that help, although I do- because I'm paying for it.
    Have you been assessed as needing help to go shopping? If yes then they should be taking you. 
    Sounds like you need another assessment. 
    If you are in a wheelchair, have the council put in a ramp so you can actually get out. I don't know your condition so I would only say why can't you get out, because I do not know what the carers are doing for you when they come etc.
    Do not follow me, I don't know where I am going.
  • crippscripps Member Posts: 412 Pioneering
    Thank you for your support, i am in a wheelchair but can only go out to with a career because where i live there’s lots of hills, the ramp situation was supposed to be sorted out by my social worker 2 months ago but still no joy so I’m going to have to ring the council and no they won’t give me a powered wheelchair. I’ve also been onto the manager at social Services and told her what’s going on so we’re going to have a meeting tomorrow ( thank god for that) to be honest the hole thing is a mess and a disgrace and it looks like it’s down to me (again) to sort things out. I don’t think I’ll ever trust a social worker or career again . 
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