Find out how to let us know if you're concerned about another member's safety.
Hi, my name is raymo69!

raymo69
Member Posts: 10 Listener
i find that no one believes your in pain when you tell them so i tend to keep to myself when its up for discussion anyone else
Comments
-
Hello @raymo69 Pleased to meet you welcome.
Sorry you are in pain. This community we are friendly and supportive.
Anytime want to talk about how you are feeling.
Ready to listen, care and share.
Have you seen our posts on Chronic pain.
Please do not suffer. When you are ready all of us in the community are here.
I am like yourself have pain every day. Please can I ask are you receiving support and help and advice how to deal with this.
Hope you can find the information helpful. On threads and posts on Chronic Pain.
Take care
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes -
Hello @raymo69 and welcome to the community.
Yes to some extent in my personal life. In most cases though because I try to just carry on where people do accept that I'm in pain they often do not understand the amount of pain I can be in.
At work it has been mixed. In general they have understood, but then have given me tasks to do which have made things worse. My current team are fantastic, as half of them have disabilities of their own. They easily pick up when I'm in a lot of pain without saying anything, and will stop me doing anything which is likely to aggravate my pain. At times it can be a little agravating, but most of the time I do appreciate it.As an individual I stood alone.
As a member of a group I did things.
As part of a community I helped to create change! -
Hi @raymo69
“Welcome”
Its great to meet you this morning.
I have had “Chronic Pain” since 2005.
Yes it’s a constant “Battle” too “justify” what/how “Chronic Pain” effects us 24/7.
Because we have “Hidden Disablititys”
They all think that we are all “fine”
Please please let me know if there’s anything that I can help/support you with????? -
i dont think so Steve its life long thing, i was a gardener for 40 years thats where most of my chronic pain come from i have diabetes2 and painful neuropathy in my feet so with all this going on i have depression and this from a man that used to run marathons, tennis, football climb munro`s etc it really is sole destroying and to beat it all i walk about like a zombie........happy new year eh
-
Hello @raymo69 and a warm welcome to the community.
I don't want to give any of the careless and the thoughtless a free pass, but I think part of the problem is that we don't really have words that can convey pain. The most painful experience I can remember was when my appendix ruptured. I remember it was awful, but the word awful would be pretty meaningless, especially to someone who had never experienced it.
There is no way that I can convey in words what it felt like.
This is a problem with language when it comes to dealing with major issues, whether they are pain, depression, bereavement, the joy of being a first time parent.
What matters, I suppose, is that there are those who can't be bothered even to try to understand.
Warmest best wishes,
Richard
@JennysDad -
thanks for that richard
-
Hi @raymo. Just hoping it helps a little.
-
I rarely mention pain though sometimes people will ask if I am alright because they see it in your face or the way you move.
-
Hello @raymo69 I was going to add the amount of pain no one thinks anything wrong. On this community.
Understand we all share and care.
All of those who like myself have pain. Aches and muscle pain constantly.
Levels of pain and issues with it. I struggle on but know there are those who are fighting a battle every day.
My thoughts go out to them all the time. Dealing with this
The most important person is you. Not what others think.
How do they know.? Why should they know.?
Can come on here and we all of us support and give the necessary comfort or to ease the situation.
Understand being a gardener done a lot volunteering. Now looking after my own little herb garden. Which I can manage.
Take care
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes -
Scope
Senior online community officer
Brightness
Categories
- 53K All Categories
- 10.4K Start here and say hello!
- 4.8K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities to get involved in
- 149 Community updates
- 12K Talk about your situation
- 1.7K Children, parents, and families
- 756 Work and employment
- 575 Education
- 1.1K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 277 Dating, sex, and relationships
- 264 Exercise and accessible facilities
- 21.2K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.3K PIP, DLA, and AA
- 2.4K Universal Credit (UC)
- 4K Talk about your impairment
- 1.3K Cerebral palsy
- 674 Chronic pain and pain management
- 700 Rare, invisible, and undiagnosed conditions
- 751 Autism and neurodiversity
- 928 Mental health and wellbeing
- 298 Sensory impairments
Complete our feedback form and tell us how we can make the community better.