PIP, DLA and AA
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Pip

farah886farah886 Member Posts: 13 Listener
 in need of some advice. I have bipolar and emotionally unstable personality disorder, panic and anxiety disorder and other MH problems. I was getting dla since 2003 mid and low rate, last year pip pushed to get me on it and i had a meeting with an assessor my cpn attended with me. The assessor was soo rude and patronizing that it made me ill (i tryed to kill my self after).
They i scored 8 points in total, asked for MR and got only 2 points so i took it to court. After over a year on 6/8/18 i won my case in court. Today i found out they are going to appeal the courts dissition. I cant take much more m already self harming and suicidal i dnt go out im constantly on watch frm family n friends and MH cpn's i cant do this any more...... Why do they put ppl with MH problems threw this. I have enough to deal with with my mum having cancer and my self with havin the genie. .... Is there anythink that can b done to help...... I have to fight to live atm every day n the presure of all this it tipping me ova the edge. 

Sorry for long post n spelling

Replies

  • blueboy87blueboy87 Member Posts: 69 Courageous
    Hi I myself have bipolar and clinical depression my psychiatrist said no one knows what’s going on in someone else’s head you must feel at times you don’t even know fight your case and I hope you win 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    Have DWP said at this stage that they are actually going to appeal?  Or have they just said they are going to ask for a statement of reasons?  It is rare for DWP to actually appeal - though it can happen
  • farah886farah886 Member Posts: 13 Listener
    Blueboy87 every day is a struggle. But the presure of this is takin its toll. Il b fighting till the end with support frm cpn and a friend/ family. And i wish i cud show them wot gose on in my head every day a million times aday.  Iv already won the tribunal and got standard on both but they r now gonna appeal the courts dissision 
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Fingers crossed and good luck I think people with mh problems are classed as weak 
  • farah886farah886 Member Posts: 13 Listener
    Matilda they r pushing for it to be over turned. Iv been told to wait till i get my post. Dnt know wot that means but i said to day i thought it was all over the women said oooh no its far from over. 
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Hopefully as the saying goes all good things come to those that wait
  • farah886farah886 Member Posts: 13 Listener
    Blueboy87 i know we r looked at like we have two heads n made to feel worthless. . if only they lived in our heads they wud c we are nt weak or broken.  
  • blueboy87blueboy87 Member Posts: 69 Courageous
    You couldn’t have worded that any better
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    farah886 said:
    Blueboy87 every day is a struggle. But the presure of this is takin its toll. Il b fighting till the end with support frm cpn and a friend/ family. And i wish i cud show them wot gose on in my head every day a million times aday.  Iv already won the tribunal and got standard on both but they r now gonna appeal the courts dissision 
    As @Matilda has previously asked. Have the DWP actually said they are going to appeal or have they just said they are asking for the Statement of reasons?

    As it's only been 2 weeks since your hearing i would think they've just said they're asking for the statement of reasons, they do have 28 days to ask for this and they're within that time.  It's doesn't mean they're appealing. To be able to appeal they must first find an error in law and this will take time.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • farah886farah886 Member Posts: 13 Listener
    Poppy123456. I was told to wait for the post. Very rude on phone. I said i thought it was over... She said its far from over.  Il wait n see wot the letter in post says. But thanks. I just hope i dnt need to attend another court. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I would have rang again to speak to someone else. They can't just appeal, they need to request the statement of reasons first.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • farah886farah886 Member Posts: 13 Listener
    Hi Poppy123456. I hope thats what they mean. For now il have to wait as calling them only makes my moods and anxietys worse.  thanks for the info. Is it something to worrie about 
  • CharliCharli Member Posts: 49 Connected
    Can your con not help with phone calls I have to fight for my husbands pip as we used to have a con but due to budget cuts there aren’t any in our area anymore 
  • CharliCharli Member Posts: 49 Connected
    Sorry predictive text went haywire meant cpn not con
  • CharliCharli Member Posts: 49 Connected
    They only come out in crisis situations where my husband used to have a home visit every week off his cpn
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    At this stage i'd say it's nothing to worry about.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • farah886farah886 Member Posts: 13 Listener
    Charli atm my cpn has taken a week leave. I dnt trust many within MH service she deals with alot of my calls .. Just happend the week she is off this happens.

    Its the same here for my area they r cuttin there lists short and moving cpn's. Its shockin . weres the money the gov prommised in to MH ... I dnt see it . i c only cutts. Even the hospital is packed.
  • CharliCharli Member Posts: 49 Connected
    I know what you mean about trusting people my husband has a really hard time dealing with people if I didn’t fight for him, he definitely wouldn’t have been able to deal with all the stress that pip causes as it’s really getting me down
  • YadnadYadnad Posts: 2,856 Member
    farah886 said:
    Charli atm my cpn has taken a week leave. I dnt trust many within MH service she deals with alot of my calls .. Just happend the week she is off this happens.

    Its the same here for my area they r cuttin there lists short and moving cpn's. Its shockin . weres the money the gov prommised in to MH ... I dnt see it . i c only cutts. Even the hospital is packed.
    I spent years in a Mental Health Day Centre apart from the times when I was under section. It was a fantastic place fully fitted out with everything you could imagine, want and need. 
    When I was told that it would have to close due to financial cuts to the mental health department we were all assured that we would get the same care and help in the community and mainly from MIND. 

    Result, I ended up substituting the care I was having with alcohol and mixing it with my meds - hence was sectioned again for attempting to burn down a house with me in it. Never did see anyone from MIND, never had any further professional help from that day to this other than from my GP who is unable to give me what I need. I have had to get better on my own through trial and error.

    The day centre is now a large walk in med centre.
  • farah886farah886 Member Posts: 13 Listener
    Yadnad. Its a shame to think in this day and age wen MH is on the up the services are being slashed by gov.... Failing  millions.  My town had day centers that have now been closed and in recent weeks we have had a rise in deaths..  Hope u are well. 😀
  • CharliCharli Member Posts: 49 Connected
    in our area we only have locum psychiatrists and getting an appointment is nearly impossible totally understand the substituting yadnad but hope your coping ok now as I think that’s all people in a lot of areas can do is try to cope with there symptoms it’s the same where I live
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Hi I’ve just been to see a psychiatrist apparently he’s the top one I was mortified my gp wanted my meds reviewed so I was taken into a large room with a coffee table and 2 chairs as I looked round the room there was camera in every corner I felt like I was on big brother cut a long story short he asked me to do 6 things stop smoking I haven’t smoked for 2&a half years stop drinking I’m teetotal stop drinking tea join a gym I have copd and osteoarthritis and rheumatoid buy a book on mh issues I’ve forgot what else he said I stood up told him he was a joke I couldn’t open the door as it was locked I started having panic attack he opened the door and said he would see me in 4weeks to see if I have done what he asked I have never in my life heard such a thing it’s like he’s made a deal I cried all the way home and just wanted to die he has totally knocked me for 6 my son phoned the drs waiting for a phone call 
  • CharliCharli Member Posts: 49 Connected
    Omg never experienced that with my husband, he would have freaked out with the cameras alone doesn’t sound like he’d even read your notes, I’ve just read my husband what you wrote he thinks they lock you in just in case they want to section you I hope your ok and your son manages to get help of the gp please let me know your ok
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Thanks Charli and I will let you know what my Dr says 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @blueboy87 that’s awful.
    I would have freaked out totally. Iv a psychiatrist appointment on Tuesday, I hope it’s not like that!
    I hope your son gets some answers as to why you were treated in such an appalling way
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Hi Charli and susan48 my dr has been on the phone a cpn is coming to see me she’s also sorting it for me to see my usual psychiatrist apparently the one I seen doesn’t agree with medication he said it’s best to talk about your problems he should be struck off he has really brought me down my meds are to help me stay calm and lift my mood I’ve never felt the way I am now 😔
  • YadnadYadnad Posts: 2,856 Member
    Charli said:
    in our area we only have locum psychiatrists and getting an appointment is nearly impossible totally understand the substituting yadnad but hope your coping ok now as I think that’s all people in a lot of areas can do is try to cope with there symptoms it’s the same where I live
    Yes I had to learn how to cope. The choice as I saw it was to spend months at a time under section for the rest of my life or face the problems myself and try to get through each day hoping that every day would be easier than the day before.
    The excessive drinking and mixing darn nearly killed me in 2004. I had an acute Pancreatic attack that saw me in hospital for many months. That has now left me with Chronic Pancreatitis and being told that if I start drinking again I will be dead.
    I was angry at the world as the start of all of this in 1995 was not my fault - I suffered because of the actions of others.
  • YadnadYadnad Posts: 2,856 Member
    Charli said:
    Omg never experienced that with my husband, he would have freaked out with the cameras alone doesn’t sound like he’d even read your notes, I’ve just read my husband what you wrote he thinks they lock you in just in case they want to section you I hope your ok and your son manages to get help of the gp please let me know your ok
    It is very unusual to be left alone if being sectioned is being considered. My first was when attending a normal meeting with my psychologist. I described how I was feeling and the next thing he phoned someone to come in and then I was told that I was going straight to hospital for treatment. Bundled in a taxi with a CPN, and escorted to a ward and handed over. Of course all doors off the ward are locked and alarmed.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @blueboy87im glad you’v got the CPN coming to see you.
    A psychiatrist that doesn’t believe in medication!
    Thats the reason I’m going to see mine next week, on 600mg a day of antidepressants and there not working. 

    Try and rest , take care 
  • blueboy87blueboy87 Member Posts: 69 Courageous
    I found after 2 weeks when I first diagnosed bipolar and clinically depressed the tablets were helping me that was 10 years ago I’ve had numerous types of medication at the moment I’m on 600mg quetiapine 45 mg mirtazapine and diazepam and tempazpine but my behaviour has been bad for a while that’s why my dr wanted my meds changed .hope it goes well for you next week 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Thank you and you take care
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Good luck hope they get you on the right medication 😊
  • farah886farah886 Member Posts: 13 Listener
    Blueboy87. I am on quitiapine and mitazapine I have found meds wrk for so long then need tweeking. Iv had to see a pharmacist about medications because very few meds work for me or i have bad reactions. Ive even tryed lookin up RTMS treatment. I hope u get ur meds sorted and things go on the up. Take care.
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Hi farah886 nice to hear someone else who has problems with medication we take them to help us then there’s no effect then I feel as if I’m in a hole and can’t get out I hope you finally get something that works good luck and take care 😊
  • CharliCharli Member Posts: 49 Connected
    Hi blue boy pleased to hear your ok my husband was on 500 mg of quetiapine but had to have it reduced as his heart was being affected he’s now on 200mg, the 500mg didn’t stop the auditory and visual hallucinations so you can imagine how bad they are now got the assessment report two days ago saying he’s psychotic and hasn’t responded to any of the medications they’ve tried olanzapine was the one before the quetiapine and I’ve lost count of the ones before that they’ve basically said as he never get better as none of the numerous anti psychotics he’s been on haven’t worked, he’s due a medicine review in a couple of months but it sounds like they don’t know how to treat him as he’s freaked out the last twice he seen a psychologist I’m pleased you have family around you for support and to help fight your corner but so many people with mh problems are isolated and treat like they have two heads mh definitely needs more staff and funding as all people deserve support
  • CharliCharli Member Posts: 49 Connected
    Do you sleep ok as my husband hardly does and when he finally does has violent nightmares no doctors in our area including psychiatrists will prescribe benzodiazepines because they’re addictive 
  • CharliCharli Member Posts: 49 Connected
    Yadnad it seems seems to be really common that people with mh problems either drink or self medicate to ease their symptoms after seeing what my husband has gone through on a daily basis for the last 15 year I honestly don’t know how I’d manage if it was happening to me I don’t think I could your amazing people I’ve been stunned by some of the stories on this site I don’t think people with mh realise how strong they really are I wish you nothing but the best for the future 
  • YadnadYadnad Posts: 2,856 Member
    Charli said:
     no doctors in our area including psychiatrists will prescribe benzodiazepines because they’re addictive 
    So what? My wife and I are both Opioid addicted. Our GP says to me that I would have to prescribed Methadone if I ever needed to come off it. Over time the potency of it reduces which results in an increase in volume needed. 

    However taking prescription drugs of this nature does not induce the same effect as the IV version - that's good stuff! I did ask once if I could have some at home as I am well versed in giving myself infections. Unfortunately the GP, with a smile on his face, said no can do.
  • CharliCharli Member Posts: 49 Connected
    Don’t don’t ever go on methadone evil stuff gets into your bones and causes excuriating withdrawal symptoms 
  • blueboy87blueboy87 Member Posts: 69 Courageous
    [email protected] my heart goes out to you if you’ve never experienced dealing with people with mh conditions people see you as a freak I’ve been called a nutter on a few occasions when I’ve had a melt down I sleep now as I’m on MST tramadol and naproxen for osteoarthritis my mh tablets plus diazepam to relax me but going back 5 years ago I would get up in the middle of the night and go on walk abouts which resulted in keys been kept away from me I would give my right arm not to have all my medication but I know it will never happen 
  • CharliCharli Member Posts: 49 Connected
    I never knew anyone with mh conditions and my husband hid it for the first 18 months we were together your right people treat mh as freaks it’s so wrong if they knew anyone going through it surely they wouldn’t treat anyone that way, a few year ago I had to hide all the knives as he started sleeping with one under his pillow and had others stashed around the house, one night he woke from a really bad nightmare when I looked he was sitting up with a huge knife in his hand thankfully I can 99% of the time talk him down so needless to say the knives had to go, he often says I wish they ( doctors etc) could spend even a few hours in my head seeing and hearing what I do he would love to “ normal “ ( I hate that word,) to me everyone is original just as it should be,it would be a boring world if everyone was the same, back to medication, they won’t give him anything to calm him down basically it feels like they think that’s my job to treat him I wish I could I’d do anything for him to have a few hours peace
  • YadnadYadnad Posts: 2,856 Member
    Charli said:
    Don’t don’t ever go on methadone evil stuff gets into your bones and causes excuriating withdrawal symptoms 
    Not much different then withdrawal from Morphine
  • YadnadYadnad Posts: 2,856 Member
    blueboy87 said:
    going back 5 years ago I would get up in the middle of the night and go on walk abouts which resulted in keys been kept away from me 
    Hey that was a regular occurrence in my home. 3am was the time to get up and wander around. Ended up one night in an empty house and decided to set fire to the ceiling tiles in the lounge
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Hi the first time I seen a psychiatrist he was really understanding he said I don’t know what’s going on in your head I said most of the time I don’t he said everyone is different he listens and that’s what we need 
  • blueboy87blueboy87 Member Posts: 69 Courageous
    @yadnad I was picked up by police a few times walking streets in my pjs the last time I was on a bridge hence keys kept away from me 
  • CharliCharli Member Posts: 49 Connected
    Last psychiatrist he seen van helsing as he called her was ok she just had trouble trying to find an anti psychotic that wouldn’t be bad for his heart turns out any that would help him sleep are bad for the heart glad you had a dr that listened and understood 
  • YadnadYadnad Posts: 2,856 Member
    blueboy87 said:
    @yadnad I was picked up by police a few times walking streets in my pjs the last time I was on a bridge hence keys kept away from me 
    Sounds like we both had our fun! I decided one morning to get on my motorbike that had no tax or insurance or even an MOT and ride it around the country lanes for an hour or so. Had a sleep in some hay in a field, woke up about 5am and decided to go back home.
    Unbeknown to me my wife had contacted the police who by this time were trawling the countryside looking for me. Just short of home they saw me and they helped me by pushing the bike due to it being illegal and to make sure I got home safe.
     
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Most of the times I couldn’t recall where I had been 
  • CharliCharli Member Posts: 49 Connected
    Yadnad yadnad I only live in a little town but they would’ve locked you up round here defo wouldn’t have helped you’d have just gotten a court date they think the cameras off interceptors are following them, they don’t care whether you are I’ll, I’m more aware now about mh and it’s really surprising how many people in a town of around 60,000 have mh problems 
  • YadnadYadnad Posts: 2,856 Member
    Charli said:
    Yadnad yadnad I only live in a little town but they would’ve locked you up round here defo wouldn’t have helped you’d have just gotten a court date they think the cameras off interceptors are following them, they don’t care whether you are I’ll, I’m more aware now about mh and it’s really surprising how many people in a town of around 60,000 have mh problems 
    The place I lived had a population of under 2000 and this was before cameras etc. The local bobby had a bicycle!
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    I know it’s a serious problem, but your stories @Yadnad, @blueboy87 etc made me actually laugh. Iv not laughed in a long time so I thank you all.

    I know the going walk about is potentially dangerous and very worrying , thankfully it’s not happened to me.

    Please don’t be offended by me laughing and thank you
  • blueboy87blueboy87 Member Posts: 69 Courageous
    @susan48 I’m not offended if something bad had happened to me in one of my episodes then it would be different 
  • blueboy87blueboy87 Member Posts: 69 Courageous
    [email protected] just to let you know 2 cpns came to see 1 of them said I need to paint my face get my glad rags on and paint the town red I couldn’t believe what she said my son was livid and told them to get out unless you have mh or live with someone who has it they don’t understand the full effect it has 
  • CharliCharli Member Posts: 49 Connected
    Hi blueboy what kind of cpn comes out in a crisis situation and says get dressed up and have a night out. I don’t blame your son for telling them to get out, to be honest if you could do what they suggested you wouldn’t need a cpn to start with what 
  • blueboy87blueboy87 Member Posts: 69 Courageous
    Hi @Charli a few years ago I overdosed badly was in hospital 9 days they thought I needed a liver transplant but medication helped when I got home 2 cpns came to see me then the next day it went on for a week every day they were different in the end I told them not to come I was sick of saying the same thing to them I wanted to sort my problems not relive them everyday 
  • YadnadYadnad Posts: 2,856 Member
    susan48 said:
    I know it’s a serious problem, but your stories @Yadnad, @blueboy87 etc made me actually laugh. Iv not laughed in a long time so I thank you all.

    I know the going walk about is potentially dangerous and very worrying , thankfully it’s not happened to me.

    Please don’t be offended by me laughing and thank you
    Not at all, at home we both now can also laugh of the things I got up to either due to the medication I was on at the time or the condition itself or both.

    For me acceptance has been the hardest part. Always wanting to be what I was and how I used to think before the head trauma. Thankfully being of the age that I am (70) I physically couldn't be what I was no matter how much I fought against the change. Now I have found my niche in life which has helped me cope.

  • YadnadYadnad Posts: 2,856 Member
    edited August 2018
    blueboy87 said:
     I told them not to come I was sick of saying the same thing to them I wanted to sort my problems not relive them everyday 
    Unfortunately after having been through everything that the mental health system can throw at you there is one thing that only now that I have realised was one of the best bits of advice given to me.
    It doesn't matter how much medication is put into your body or how many hours of talking you do with the mental health team, there is one thing you must accept first and that is that I was ill and that I would never regain the full use of my brain. After accepting that any form of counselling that you go through will not work if you don't re-open old sores and face your demons as well as wanting for yourself to get better. Only and until then will you get onto the road to recovery.
  • blueboy87blueboy87 Member Posts: 69 Courageous
    I just want to move forward I know I will never get better there’s something’s I can’t forget but most of it is the past
  • YadnadYadnad Posts: 2,856 Member
    blueboy87 said:
    I just want to move forward I know I will never get better there’s something’s I can’t forget but most of it is the past
    The past is in the past and you should not allow it to involve the future. People do hold on to the past as a reminder of what or who you were - it is a comfort blanket of a sort.

    Take the leap to only look at the future with positive thoughts and you will get there. It's not a quick fix. For me it has so far been 23 years and it's still work in progress.
  • blueboy87blueboy87 Member Posts: 69 Courageous
    No offence but something’s can’t be forgotten really wish I could but something happened to me I will see something in the paper or on tv and it brings it all back
  • YadnadYadnad Posts: 2,856 Member
    blueboy87 said:
    No offence but something’s can’t be forgotten really wish I could but something happened to me I will see something in the paper or on tv and it brings it all back
    typical PTSD.

  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Thank you everyone who has contributed to this open discussion. I hope it has helped. If anyone feels upset or distressed by this thread then please do contact your GP or Samaritans which is available 24/7. Here on the community we do want you to be able to talk about all aspects of disability but also know that certain topics could affect other users. Thanks again. 
    Scope

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