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Hi, my name is mk76!

mk76mk76 Member Posts: 85 Connected

Replies

  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Hi @mk76 welcome to the community!

    Would you mind telling us a bit about yourself? :)
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    Hi im mark  father of seven six girls and one boy , 6 years ago i i had the snip plus a lump removed from  between my privates and leg   and from then on iv .been in constant pain with lymphoedema and my leg swells four and half cm bigger than the other leg 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Sorry to hear this, can your doctor do anything for you?
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    I can't walk or put any pressure on my leg  im on more tablets than boots the chemist , i cant cope with the pain anymore  being past around from consultant to consultant, i just want to  stop the pain  and need some one to talk to as i keep forgetting iv taken my tablets and if it wasn't for my wife i would of died
  • mk76mk76 Member Posts: 85 Connected
    My surgery changes doctor's every time im up there and all they seem to do is changey tablets im on strong antibiotics and can't do direct sunlight  and suffer black outs and can't remember what day it is 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    I can only imagine how frustrating this is for you :(

    Do you have a doset box? This might help you to remember and reassure yourself that you have taken your tablets :)
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    My wife does them daily for. Me  it's not fair on her or the kids when i black out im out for hours  and can't remember anything 
  • mk76mk76 Member Posts: 85 Connected
    If i was a animal they would of shot me ages ago 
  • mk76mk76 Member Posts: 85 Connected
    Sorry ami2301 i don't normal talk about everything 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    It's not your fault, please try not to feel guilty. Your wife and children love you :)

    The doctor/consultant who dealt with removing a lump, do you still see this doctor/consultant?
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    Iv changed consultants  8 times now not one of them told me what was wrong it took a lymphoedema nurse to tell me i had it and the next words where it can spread throughout your body and kill u 
  • mk76mk76 Member Posts: 85 Connected
    I have the vains in my leg swelling and bursting   some mornings i geget up and full of blood 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Don't apologise, we are here for you

    I really think you would benefit from seeking professional emotional support, understandably what you've been going through would create a great deal of anxiety. 

    I don't know what to say in reply to what they said...all I can say is that they should have not said that and I'm so sorry.
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    I don't go out side the house any more apart from the doctor's in can't even get up stairs to go to the toilet but it's been two years and they just started my extension with bath room 
  • mk76mk76 Member Posts: 85 Connected
    Can u see any off the pics i.v posted
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    I can't see any pictures, if they are of graphic content they may or may not have to be approved my admin.

    Have you tried contacting the Samaritans? You can phone or email them :)
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    My legs {==  it's pointless as we all got problems and nobody listens to mine 
  • mk76mk76 Member Posts: 85 Connected
    My legs always like this  apart from theres normally more swelling
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    I am sorry, I'm not a professional, all I can do for you is to be here for you, getting things off your chest, I wish I was a consultant who was able to help you.
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    I  just  need  some one to listen  but we all got problems  im a good listener two, what u think of my profile pic 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    I can now understand more about how this alarms you

    Hopefully this will make you chuckle, I am a good listener too.....but I'm deaf lol
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    Well told u we all got problems  but u found away to adjust to yours  well done , the only thing i got left is my humour  let me know if u find a spare leg  lol
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    edited October 2018
    For me, a good sense of humour helps loads! 

    Believe me I have my days where I wallow in self-pity but I try and snap out of it otherwise it will drive me nuts!
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    My wife's band me from answering the phone lol  i always put my foot init ! My mum rung me and i answered hello the mortchary u kill them we grill them lol 
  • mk76mk76 Member Posts: 85 Connected
    And the pasta from my church rung and i was having a turn .and i answered the phone hello this is sex line  and  he asked have i any heaters cos the heating had gone off in the church
  • mk76mk76 Member Posts: 85 Connected
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Due to my role in the online community, and to prevent offending members, that was very inappropriate. Please keep in mind that this would upset members.

    I am glad that you seem more relaxed now as to begin with I could sense you were really stressed and frustrated.
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    I promise to behave !! It's been a bad day with a new doctor telling me he's going to stop my tramadol which im taking 100mlg 4x aday to 10mls of  plane morphen  and IL go back in 2 week to have a different doctor give me something else im in constant pain and they don't know what each other says and they work in the same building  x
  • mk76mk76 Member Posts: 85 Connected
    I apologize  for having a sense of humour if i lose that i may as well just give up 
  • mk76mk76 Member Posts: 85 Connected
    Just put the little monsters to bed so now in chilling 
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    It's awful that they are treating you like this!

    Its OK, we all have our bad days. I really hope tomorrow and the days after are good to you :)
    Disability Gamechanger - 2019
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Honestly there is no need to apologise for having your own sense of humour. It's like saying you're sorry for being you. I don't want you to feel like you can't be yourself here, you seem like a lovely guy and I'm happy that you felt comfortable to open up! Like I said, I wanted to prevent members being offended.
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    Constant pain daily can't sleep cos of it  but thank u got the chat and the welcome i can't stay as my eyes are going funny looking at a small screen X i i can feel my self having a turn
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Is your wife with you?
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    She goes out one night a week to play darts all the rest of the time she s home XX i have to go eyes  playing up
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    OK, I hope you sleep well and remember we are always here! :)
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    God bless u all  night
  • SharonHearnSharonHearn Member Posts: 13 Connected
    Hi Mark :)I'm afraid I know nothing about Lymphodema other than what I have seen on the television but it doesn't look very nice (I'm master of the understatement haha). From looking it up on Wikipedia I see that it's something that maybe is a 'side effect' of the lump you had removed. All I can find for treatment on the NHS site though is massage, compression bandages and exercise :-( I hope you can get somewhere with your doctors though, doesn't seen fair not being able to see the same dr, is it something you can request when you make an appointment? Non stop pain is the worst :-(
  • mk76mk76 Member Posts: 85 Connected
    Hi Sharon
    I have got stockings but they won't fit over my leg when it swell up so big and the creams don't work   but thank u for talking to me 
  • SharonHearnSharonHearn Member Posts: 13 Connected
    You're welcome :-)
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    How are you feeling today @mk76 :)
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    Tired and still in pain   didn't sleep much  but least in breathing. How are u ?
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    I am OK thanks :)

    I have to wear the dreaded stockings too :(
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    The worst thing with them is they measured me when my leg wasn't swollan, when my leg swells i can't get them over my ankle let alone my full leg
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,733 Disability Gamechanger
    Has your doctor(s) mentioned anything about fluid retention medication?
    Disability Gamechanger - 2019
  • mk76mk76 Member Posts: 85 Connected
    Im on antibiotics and  keep getting infections  iv iv te everything  but nothing helps 
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