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interested to talk to anyone who has a child with audio process

Hi my name is Tanya. I have 3 children
My middle child Georgia was diagnosed with Narcolespy and cataplexy at the age of 8. My son has learning difficulties what they are i dont know really don't know what to say feel abit lost with him to be honest.. the doctor we see was only intrested in his ehcp which is very detailed i was not given time to talk about my worries at home. I was told he had audio process delay was not allowed to call it a disorder as it would be giving him a label ( don't think they get it when all you want is to help your child.) I would be interested to talk to anyone who has a child with audio process so i can find out if things he struggles with are all linked or if i need to keep pushing forward.
My middle child Georgia was diagnosed with Narcolespy and cataplexy at the age of 8. My son has learning difficulties what they are i dont know really don't know what to say feel abit lost with him to be honest.. the doctor we see was only intrested in his ehcp which is very detailed i was not given time to talk about my worries at home. I was told he had audio process delay was not allowed to call it a disorder as it would be giving him a label ( don't think they get it when all you want is to help your child.) I would be interested to talk to anyone who has a child with audio process so i can find out if things he struggles with are all linked or if i need to keep pushing forward.
Replies
Thank you for joining and sharing. Sorry to hear about your children.
You have come to the right place for support, advice and information.
There will be members of our community who can identify what you are going through. Be happy to be in touch.
Please have a look under our Talk about Specific conditions. Where there are a lot of community members sharing there stories. Learning Difficulties Which I hope will be useful for you.
Also have a look under Parents and Carers. For further posts and stories from our community members which may be of interest to you.
Please ask the community anything some one will know.
We are a friendly, supportive community. Care and share.
Hope that helps.
Please take care
@thespiceman
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i didn’t feel very understood with this doctor, more so as I was told apd yet in the letter that come home following appointment started learning difficulties and age related to that of his learning, yet no age to what his learning age is. I wrote a 5 page letter including photos his since been referred to guys and st Thomas we are correctly in a 9 month+ wait to be seen.
The doctor see above thought I was trying to label my son however, it’s more of knowing and then understanding what can help or be changed to help him he does become very distressed at time.
His reading has come on but he struggles with writing, convos, simple things like giving me a school letter when I tell his teacher I don’t get, and explain my son is not well organised his forever being told you need to start organising yourself, we can’t do it for you. I missed his part in the play as I was not informed because there was not letter and went on the day when his class done the main parts to find he done it the day before, which of course upsets him and me.
Hope uou and the family are keeping well
when he said about apd I did say does this explain why when I ask him to get dressed he will just sit there 98% of the time unless clothes are put in his hand, or when I ask him to run a bath he will not think to get in it unless I tell him. His words was it could be a normal 9 year old lazy mood. Not wanting to go to school or because tv is on. I was lost for words.
I am so grateful for your time and help, I am going to save the link and give it a good read though when I am a little bit more awake,
Thank you so much x