I have invisible illnesses

MEWarrior
MEWarrior Online Community Member Posts: 3 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
I have some hidden illnesses..ME, Fibromylagia plus osteoarthritis and sleep apnea. All have various symptoms which I'm sure fellow sufferers understand. Just thought I would say hi to everyone ☺

Comments

  • debbiedo49
    debbiedo49 Online Community Member Posts: 2,890 Championing
    Hiya I have fibro and I just wondered how do you distinguish between your conditions as they probably overlap? Was it hard to get diagnosed?
  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,764 Pioneering
    Welcome to the community @MEWarrior :)
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @MEWarrior

    Welcome to our online community/family ?

    Yes there is many members on here that has “Hidden Disability’s”

    We all look ? well but that doesn’t “Paint The Picture !!!!!!’

    Please let me know if you need a hand ? getting around ?????

    @steve51

  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @MEWarrior welcome to the community! :)
  • MEWarrior
    MEWarrior Online Community Member Posts: 3 Listener
    Hi debbiedo49
    It took about 10yrs to finally get an ME diagnosis which I got from Dr Bansal at St Heliers Hospital, Sutton, Surrey. My GP diagnosed the fibro about the same time, i never saw a specialist for that..and the GP diagnosis has been accepted by medical professionals since.
    Looking back at my health history it seems I got ME when I was about 14yrs but just thought the fatigue was normal. The fibro appeared in 2003. I had real flu in 2004 which made the ME much worse.
    It hasnt been easy figuring out whether Im having an ME episode or fibro..as you say the symptoms are similar. I mostly tell people that its my fibro playing up because so many dont understand or accept ME..that applies to friends and professionals alike. Tho no medical professional has questioned my ME..they just accept fibro as a real illness. Even for claiming any benefit it has been better using fibro as my main condition.
    How has it been for you getting your fibro diagnosed and accepted? xx
  • MEWarrior
    MEWarrior Online Community Member Posts: 3 Listener
    Ami2301 Thank you for the welcome :) Look forward to getting to know you x
    steve51 thanks ! I can already tell I shall have probs posting. How do I reply to an individuals post rather than how Im doing ie here?
    Antonia_Scope
    Thanks Antonia. I look forward to getting to know you and the others x

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