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Thanks for being part of the community
Thanks for being part of the community

Replies
Many Thanks 🙏🙏
I'm a Pain Warrior
Good Afternoon!!!!!!
Please please let me know if there’s anything that I can help you with (pc’s)
@steve51
Good luck for your future Shareen ....I have quite a few health problems myself and I am also now completely deaf ( apart from tinnitus and menieres ) My tinnitus is a jet engine in my ear 24/7 ...and my Menieres makes me so dizzy It makes the world spin and in turn causes vomiting ....thankfully I have not been dizzy for over a week now ....May your God go with you .
Yep, it's terrible the way people are treated by the government and my wife missed the pension by three weeks when she was sixty...and will not get the pension at her 65th birthday , she will have to wait until I turn 66 in two years time. The government saved billions and billions of pounds when theybehifted the pension age ...plus they made billions of pounds by the people that continued working and paying tax for another five years ....what happened to the " equality " the government go on about ? What about the " We are all in this together " ...I feel so sad that this is what the UK has come to . No care for disabled jo dare for the homeless, no care for the starving ....even children are affected by this government's stance . The gap between rich and poor is widening but it's all down to how we vote . ....and much of the suffering is inflicted , by the way people voted last time .I hope everyone has learned their lessons and vote for ordinary people who are not born with a silver spoon in their mouth .
I hope you and your family keep better in the future ...i know how hard it can be ...i will pray for you and your family .
Welcome to our online community/family.
I am one off a number off “Community Champion’s “ on here.
We are all here to help anyone that might need any help or support.
Please please let me know if there’s anything that I can help you with ????
@steve51
Good Morning & Welcome 🙏🙏
Please please let me know if I can help you around???
@steve51
You are more than welcome my friend.
@steve51
thanks for the welcome, sorry for the late reply - I was in hospital this morning having nerves burnt out in my spine
Rebecca_de_Winter
Thanks for your post & don’t worry about the delay.
How has the treatment gone????
I have never come across this before on my desperate journey to reduce my pain levels.
I do hope that everything is okay today ????
@steve51
I am feeling okayish, a bit fragile, but nothing I can't cope with. They always have problems with my lumbar spine as my fractured pelvis and spine have sacrilised together so it is hard to get a needle to what should be the S1 disc space.
I had needles from L4 To S1 all connected up to a machine which then burned the nerve roots away. The pain from this procedure was moderate to severe and at one stage my right foot was burning and felt like it was going to explode, but that only lasted some seconds.
Hopefully when this is all settled down I should have less pain.
Rebecca_de_Winter
Many thanks, how are you this morning???
Sorry but how is your pain levels today???
I have never heard of this procedure before.
What part off the country do you live??
@steve51
How are you doing? I hope the sun is shining where you are, I am in the north.
My lumbar spine feels reasonable this morning 🤞thanks. Unfortunately my neck is the problem now.
I had an anterior cervical discectomy in January to replace discs C6 and C7. The op must’ve been more complex than expected as instead of a cage at the back and plate at the front, I have these plus two steel rods from the front of my neck anchored in my skull 💀my husband says I only need the red eye and I’d be the Terminator! Anyway unfortunately replacing the discs nudged disc C5 out, so I have to have the same op again. It’s caused pain across my shoulders plus pain and weakness down my left arm - and I’m left handed.
I have a pre op assessment on Friday then I should get the op within two months. It took me six weeks just to get my voice back last time as the ‘go in’ through the front and move the larynx etc. out of the way.
what can’t be enjoyed must be endured 🤗.
Rebecca_de_Winter
Unfortunately the weather is up & down at present.
I do hope that everything is ok with you today????
@steve51
just had one heck of a shock! 😱 A sound like aliens landing at the back of the house, scared the beJayzus out of us! It was the blooming washing machine! Sounded like the bearings had gone, but it has taken all the electronics with it! Can’t complain, it must be over 20 years old!
Rebecca_de_Winter
I am very very sorry to hear about your aliens 👽 👽👽
It’s gone very cold 🥶
I am staying in the house in the warm.
My cat has gone the same idea.
She is sat on my lap currently.
@steve51
It is still sunny here, just as well since the stuff from the washing machine was still quite wet when they needed pegging on the line. The new machine arrives tomorrow - one expense we could have well done without😟. Still I can’t be going down to the river to pound them on the rocks 🤣.
How are you anyway apart from being cold? I love cats! We had to have our lovely cat Samson put to sleep last year and we miss him dearly, but he was our last cat there would be no replacing him.
@Rebecca_de_Winter
No the washing machine is unfortunately on the list of very important things that we have around our homes
I am starting to warm up now thanks 😃😃
@steve51
Wish me luck
Disability Gamechanger - 2019
Welcome to our online community/family.
I am very very sorry to hear about your current problems.
I am one of the Community Champion’s.
Yes I would be more than happy in helping/supporting “you in & around”
@steve51
Good Morning it’s great to meet you this morning.
I am one of the Community Champion’s here at Scope.
Please please let me know if there’s anything that I can help you with?????
@steve51
Welcome & Good Morning.
I’m one of the Community Champion’s here at Scope.
We are all here to “Help & Support” any new members.
@steve51
Good Afternoon!!!!
You would be best to speak to your/grandsons “GP”
They should be able to point you in the right direction l
Please please let me know if there’s any problems 😃😃😃
@steve51
Hello @jolew
My Name is Connie00
I am one off the community Champion’s here at Scope. it’s really nice to meet you.
Welcome to the Community.
Sometimes it can be very frustrating finding groups for the disabled.
We are very pleased you have joined our community
if we can be of any further help to you please let us know.
Have a good day
@connie00
- How do I use Saved Drafts?
- Why can't I see a link to 'My drafts' in my profile page?
- How do I create a forum 'signature'?
- Where do I find the different smileys/emojis that I see others using?
- How do I Private Message someone?
- Can I contact an administrator/moderator by PM?
... etc., etc..Sorry you've had to figure out some of these yourself. Perhaps we can look at putting together a basic guide to the use of some of these functions.
You can find the saved drafts here - https://community.scope.org.uk/drafts
Once you save a comment as a draft, it'll appear there.
Many of our members access the community via mobile device, which of course allows them to use their device's own extensive range of emojis.
We tend to recommend contacting an administrator/moderator via email ([email protected])
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
My name is blessed so happy to join thank you
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Good Afternoon & Welcome 🙏🙏
I am one off the “Community Champion’s” here at Scope.
Yes I would be very very happy in helping where I can.
I am currently in the “Mandatory Reconsideration Stage”
U’mmmm very very interesting indeed.
@steve51
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Lilypad1 I'm new to the community too. It's great too feel welcomed. So welcome
Welcome to our Online Community/Family.
How are things in “N Ireland” today???
I love your “username name”
It hits home with me “big time”
@steve51
It’s great to meet you both.
Please please let me know if there’s anything that I can help/support you with??
@steve51
Hi and welcome, make yourself at home
Good Afternoon & Welcome.!!!!
I am one of the Community Champion’s here at Scope.
I’m very very sorry to hear about the loss of your partner.
We have got some great info/advice on Benefit’s.
I would be more than happy in going through it with you if that would be helpful????
There is a “Benefit Calculator” that will give you a good idea of what “Benefits” are available for you at present.
Please please let me know if this will be okay & we can get the “ball rolling” straightaway.
@steve51
Just bought myself s new super active wheelchair, as I’m ambulatory but now tortured by the fact that it is d****ned hard to use. Any advice anyone? Please?
I’d love to hear from anyone who has had this done & what to expect afterwards please 😀
Many Thanks
Tracy x
Although I have not had injections in my knee I have had ultrasound guided injections to the insides of my feet. Unfortunately it didn't work. The pain was really bad when the needles were inserted and wiggled around to find the exact position to inject. I just bit on my fist. I had anasthetic and cortisone given together.
I don't think it will be that bad though having the injections in your knees because the skin is thicker.
Good luck with the treatment.
Not very tech minded, so not even sure if I am posting in the correct introductions part?
I did try to make another post asking for help with benefits.
I titled it... What benefits am I entitled to.
Not even sure where that post has gone and whether I will be notified of any replies?
Good Evening & Welcome it’s great to meet you today.
I am one of the Community Champion’s here at Scope.
We have got a “Benefit Calculater” on here I have posted the link below for you.
https://community.scope.org.uk/discussion/70033/benefit-calculator
Please please let me know if you need a hand with this?
@steve51
Another member kindly sent me a link to another benefits calculator.
It looks like I will basically be getting the same amount as I was when receiving income support.
Except for the fact I will now be entitled to the extra £20 per week due to the covid19, which is a nice bonus.
Would you know if there is anywhere on this site that I could get help concerning care charges?
My son has been assessed and for some reason I had an email saying his care charge would be £50 per week. I called and explained I thought this was wrong and it was then reduced to £25 per week, which I feel is still wrong as they have not taken into account the cleaning, washing, extra heating, water etc. He has never paid care charges in the past and his circumstances have not changed in years.
My son claims P.I.P. and U/C
Thank you in advance
Yes no probs I will try to help you with your “Care Charges”
Hi @Richard_Scope @Adrian_Scope @Chloe_Scope
Can you please offer me some help with regards to “Care Charges”
Many Thanks.
@steve51
Thank you
I have just found out that the care finance team did not take into account any DRE (Disability related expenditures)
I have now been asked to send in proof of purchase of any extra bedding,clothes,shoes etc, which unfortunately I can not do as I find it difficult to shop with my son and I am not very tech minded, so I will normally withdraw money from our joint account and then pay my daughter for what she has ordered online or when she visits Ikea and buys bedding or a bed etc.
It was never ever mentioned to me in the past that I had to keep every receipt/proof of purchase when buying for my son.
I shall definitely keep all receipts from now on.
Just another query that someone on here maybe able to help me with.
My son has no mental capacity (aged 23) He also has challenging behaviours and very high sensory needs.
The problem I am having, or rather he has is that he constantly destroys/breaks things like beds,blinds,light switches, door handles, toilet seats. The list is never ending and as you can imagine is costing a fortune in repair bills or replacing.
Would anyone know if there is any kind of financial help that I can get to help towards repair bills, replacements?
I was told a few years ago by his disability social worker that if he had challenging behaviours then he would be allowed a certain amount from his personal budget for this, and that they would assess him for this on his next annual assessment . The social worker in question then left and each year when I mention it, I just seem to get brushed off.
Thank you
Good to meet you.
I would point in the direction of our free Helpline 0808 800 3333. Give them a call and you can go into much more detail about your specific situation.
Specialist Information Officer - Cerebral Palsy
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Good Afternoon Yes I will try to help you further.
I am very very sorry to hear about your current problems.
I have found some info for you below.
https://www.scope.org.uk/campaigns/extra-costs/
Please please let me know if there’s any problems with the above info!!!!!!!
@steve51
Thank you for the info
No probs it’s my Pleasure 😃😃
@steve51