Our Community Guidelines and How To Guide

Adam_Alumni

If you need to have a look through our How To Guide that talks you through the ins and outs of the Scope online community, or if you want to read the Community Guidelines, you can access them by going to the Community Guidelines Page here. 

Thanks for being part of the community

Antonia_Alumni

Thanks @Adam_Scope

steve51

Hi @Adam_Scope

Many Thanks 🙏🙏

AnkyieSpon

Thank you 

gillyfrog

Thanks .@ADAM_SCOPE

loulabell

Hi my name is Louise 

Shareen

Hi, my name is Shareen and I am not very clever with computers.

steve51

Hi @Shareen

Good Afternoon!!!!!!

Please please let me know if there’s anything that I can help you with (pc’s)

@steve51

Shareen

Bless you. I have myeloidysplasia, osteoporosis, fibromyalgia and have had regular blood transfusions for the past nine years. so very grateful to blood donors and the medication Exjade that takes the iron from my body. But side effects also leave me with memory loss and deafness, a small price to pay for still being alive.  I only bought an iphone last year and have already damaged the face of it with pressure in my handbag and still sometimes can't work out how to answer it. I moved last year to Birmingham and began to have anxiety attacks venturing out in a new area. I hate the dreaded PIP assessments and have to appeal every time and no wonder sick people kill themselves. I used to work in hospitals in the 70s and 80s and other jobs too and raised my two daughters alone when my second marriage broke down. I also have a son who has schizophrenia like my late brother and I worry over him and my daughter in London who struggles to raise her two children while looking after her sick partner. I moved to be near my youngest daughter but she works all hours so I am often alone. But I have made a few friends here now with my Buddhist organisation SGI-UK who come and chant with me in my flat. I feel so lucky to have a home and benefits to live on because all I can see are the hundreds and thousands dying on UK streets because there is no social housing and the government and media do not see this as urgent.  I am angry and wish all the wealthy uncaring people in the government actually came out of parliament and talked to the homeless, the ill, the pensioners too poor to heat their homes and the huge amount of families and single adults with little or nothing to live on up and down the country, as well as the over worked and over populated prison service, hospitals, police, and the list is endless, farmers now killing themselves too, it is all disgusting. This government is so out of touch and doesn't give a toss about anyone except their wealthy friends. As you can see I do get worked up about life and the lies the media tell to turn the public away from the humans who are suffering right now in the UK. Judging desperate people who have nothing. I have bouts of depression and anxiety and of course I guess everyone does but now these awful PIP assessment people and the government are targeting GP's to stop them even telling the truth and writing sick notes. I will be 63 at the end of March and I was told I would be dead aged 60, so I try to treasure each second, even the sun shining on my window is precious to me. If we carry on allowing the media and government to ignore the plight of destitute sick homeless as well as trying to make sick people homeless we are just as bad. All I have are words to write to fight the injustice. Please feel free to post this for me to all fellow Scope people. Mine is a hidden disability but I still feel dizzy and sick on transport etc even if it can't be seen. Thank you. Shareen

Seanchai

What a lovely caring letter you have posted Shareen......maybe you should send a copy to your MP....and other MP,s as well. The only thing I can say is " why did the ruling party get voted into power again when we all know what they are like . It's like turkies voting for Christmas.  I feel exactly as you do Shareen . Thank you for taking the time to write this . I hope everybody remembers what a mess society is in , homeless people , people using food banks,  young people who cannot get work , the stabbings ect.....Thank God I am on my way out of this world and not coming into it . We were told by a certain politician that there is no such thing as as communities.  Its 'man mind thyself 'as far as I can see . That same politician made a split in society by selling off good social housing stock ....divide and conquer was her want .....and it worked . Now the young cannot get social housing and buying privately is way beyond most people.
Good luck for your future Shareen ....I have quite a few health problems myself and I am also now completely deaf ( apart from tinnitus and menieres ) My tinnitus is a jet engine in my ear 24/7 ...and my Menieres makes me so dizzy It  makes the world spin and in turn causes vomiting ....thankfully I have not been dizzy for over a week now ....May your God go with you .

Shareen

Bless you Seanchal. My daughter in London is stuck up flights of stairs in a one bedroomed small flat with a baby, a 6 year old and a partner with COPD. The tiny amount I fought and won for her anxiety and panic attacks was stopped and the other daughter took out mortgage on flat that needs huge repairs with no central heating in Birmingham and has no money left to get this after bills, she is a sweet young woman of 30. My son has spent past 18 years as a handyman but now bloated from medication side effects, gets no benefit, and is currently a care taker of a finca in Mallorca, spending hours alone hearing voices and seeing things, he has no home to return to here in UK. What a mess this greedy government has made of the poorer sections of UK society helped by the media. I will chant your hearing problems and tinnitus dizziness improve, we only have prayer left now. Nam Myoho Renge Kyo. I don't know how to do the heart or any emojis but send you all my love for health, wealth and happiness. xx

Seanchai

Thank you Shareen .....We have got people who care about other's ...but it's not a community it used to be . I also have COPD and use a nebuliser  Shareen ....but I live in a village in the hills of Scotland . Thank God I do not have to venture into the town or cities often , as each time I went to the town or city the fumes made me unwell ....I could not get a breath . 
Yep, it's terrible the way people are treated by the government and my wife missed the pension by three weeks when she was sixty...and will not get the pension at her 65th birthday , she will have to wait until I turn 66 in two years time.  The government saved billions and billions of pounds when theybehifted the pension age ...plus they made billions of pounds by the people that continued working and paying tax for another five years ....what happened to the " equality " the government go on about ? What about the " We are all in this together " ...I feel so sad that this is what the UK has come to . No care for disabled jo dare for the homeless, no care for the starving ....even children are affected by this government's stance .  The gap between rich and poor is widening but it's all down to how we vote . ....and much of the suffering is inflicted , by the way people voted last time .I hope everyone has learned their lessons and vote for ordinary people who are not born with a silver spoon in their mouth .
I hope you and your family keep better in the future ...i know how hard it can be ...i will pray for you and your family .

Shareen

You are spot on, the people mustn't listen to the lies and vote instead for those who help the poor and sick and homeless etc.  All the media adverts don't help, along with everyone wanting to be famous, they should make the poor, the sick, the homeless famous instead, and show more of the rubbish strewn streets, the animals and sea life dying from all our waste and the under funded and over worked social care system, mentally ill people thrown back on streets after being in mental hospitals and prisons, a national disgrace. If you can't look after your own people in a country why are we accepting more people?  I am mixed race and have friends of all nationalities with my Buddhist organisation but if there is no social housing for our own people why even accept and hand it first to people coming in?  This government is so blinkered it hasn't a clue, they wine and dine at taxpayers expense and then stop the disabled, the mentally ill, the homeless, the pensioners, the single and double parents and children's money while meeting round a table drinking champagne. They laugh at us and talk the talk but do nothing once they get in power, abusing their positions of power to judge and punish poor citizens. Their friends run the tabloids and internet I am sure to whip up hatred and ignore suffering dying homeless people.  If it doesn't come back to them in this lifetime I am sure it will in the next.  I never could do posts and could write a book about the injustice that I see daily here in the UK. You take care and your wife. xx

Seanchai

Thank you Shareen ....yes indeed , my family were immigrants from Ireland , so I am for immigrants being admitted to the UK.  ....but....that's after our own people are looked after first. No wonder every immigrant wants to come to the UK ...The government tells lies about the amount of people sleeping rough and the amount of people using food banks.   I know London is bad but we have our share in Scotland ...although our first minister us arresting those problems . I know a woman who has a house in London and she has 470 spare rooms...and she and her family dine on the finest banquets...the family are on benefits as well . She has other huge houses that she uses at other times and the one she has in Scotland lies empty for most ot the year . Yep, it's an unfair world Shareen ...Namo Buddhaya , my friend .xx

Shareen

Yes I agree, my father came from India and was Anglo Indian because his great grandfather was from Ireland, he spoke Urdu and English but hardly spoke to us as children and worked all hours as a nurse, he came after India's independence and had been in the RAMC of the British Army in India. My mother also had Irish ancestry and her name was Kathleen, she also had been in the WAAF during the second world war and later worked as a GPO telephonist, we lived all over the place and I was born in the East End of London in the fifties, not a good time to be mixed race even though my skin was white, my brother and sister had dark skin, black hair and brown eyes. I am all for immigration so long as everyone is respectful I see no problem. But I lived in a housing co-op in South East London for 26 years and in 2003 it started having dozens of Cameroonian men turn up and they started taking over, the 10 person houses which were designed in the 70's for students and had a shared kitchen and bathroom and basically you just got a locked bedroom, so for ! person, basically started having up to 4 Cameroonian men in them until the place got infested by cockroaches etc all these men up to 40 living in one house. The council did nothing because they said it was private land. Then these men got in power by intimidating other co-op members by being aggressive, until people stopped going to meetings. By 2008 and after I had been told by one of these men who had taken over our co-op office that held all our records and had sacked our co-op worker, that when I died my two daughters would not be allowed to live in the house we shared when I died, I had had enough. They were racist even to other Africans telling a Nigerian woman she would never get a room in the co-op. The hippie feeling of loving all and peace and understanding had died. I was so lucky my sister managed to get me a flat with Colchester Council but I felt the whole area had changed by then.  Having disabilities helped me rehouse but what about my poor neighbours still stuck there? I found out a Cameroonian family of 10 moved into my 3 bed home once I had gone. There has to be a watch on people and surely the millions on social housing waiting lists should come first. It is policy to give the housing to refugees first so I understand the nation's fury over immigration. I also understand the plight of the refugees. If they stopped bombing their homes we would not have refugees in the first place. God Bless.

clare_1

Thank you 

Seanchai

Maybe if Britain would stop selling arms then things would be a little better ....of course Britain says that if they don,t do it then somebody else will ....that to me is no argument for selling arms to anyone . 

mpazz

Hi 👋🏽 my name is MPazz, but you can call me Mazz🤗

Murphy1926

Hello everyone.im new and also not very good with internet.

Rebecca_de_Winter

Hi everyone, I'm new, disabled and a carer for my husband who has HSP.

steve51

Hi @Murphy1926

Welcome to our online community/family.

I am one off a number off “Community Champion’s “ on here.

We are all here to help anyone that might need any help or support.

Please please let me know if there’s anything that I can help you with ????

@steve51

steve51

Hi @Rebecca_de_Winter

Good Morning & Welcome 🙏🙏

Please please let me know if I can help you around???

@steve51

Murphy1926

Hi and thanks Steve 51.

steve51

Hi @Murphy1926

You are more than welcome my friend.

@steve51

Rebecca_de_Winter

Hi Steve51

thanks for the welcome, sorry for the late reply - I was in hospital this morning having nerves burnt out in my spine  shocking, as in electrically! Resting up now though.

Rebecca_de_Winter

steve51

Hi @Rebecca_de_Winter

Thanks for your post & don’t worry about the delay.

How has the treatment gone????

I have never come across this before on my desperate journey to reduce my pain levels.

I do hope that everything is okay today ????

@steve51

Rebecca_de_Winter

Hi Steve51'

I am feeling okayish, a bit fragile, but nothing I can't cope with. They always have problems with my lumbar spine as my fractured pelvis and spine have sacrilised together so it is hard to get a needle to what should be the S1 disc space. 
I had needles from L4 To S1 all connected up to a machine which then burned the nerve roots away. The pain from this procedure was moderate to severe and at one stage my right foot was burning and felt like it was going to explode, but that only lasted some seconds.
Hopefully when this is all settled down I should have less pain.

Rebecca_de_Winter

steve51

Hi @Rebecca_de_Winter

Many thanks, how are you this morning???

Sorry but how is your pain levels today???

I have never heard of this procedure before.

What part off the country do you live??

 @steve51

Rebecca_de_Winter

Hi Steve51,

How are you doing? I hope the sun is shining where you are, I am in the north.

My lumbar spine feels reasonable this morning 🤞thanks. Unfortunately my neck is the problem now. 

I had an anterior cervical discectomy in January to replace discs C6 and C7. The op must’ve been more complex than expected as instead of a cage at the back and plate at the front, I have these plus two steel rods from the front of my neck anchored in my skull 💀my husband says I only need the red eye and I’d be the Terminator! Anyway unfortunately replacing the discs nudged disc C5 out, so I have to have the same op again. It’s caused pain across my shoulders plus pain and weakness down my left arm - and I’m left handed.

I have a pre op assessment on Friday then I should get the op within two months. It took me six weeks just to get my voice back last time as the ‘go in’ through the front and move the larynx etc. out of the way.

what can’t be enjoyed must be endured 🤗.

Rebecca_de_Winter

steve51

Hi @Rebecca_de_Winter

Unfortunately the weather is up & down at present.

I do hope that everything is ok with you today????

@steve51

Rebecca_de_Winter

Hi Steve51,

just had one heck of a shock! 😱 A sound like aliens landing at the back of the house, scared the beJayzus out of us! It was the blooming washing machine! Sounded like the bearings had gone, but it has taken all the electronics with it! Can’t complain, it must be over 20 years old!

Rebecca_de_Winter

steve51

Hi @Rebecca_de_Winter

I am very very sorry to hear about your aliens 👽 👽👽

It’s gone very cold 🥶 

I am staying in the house in the warm.

My cat has gone the same idea.

She is sat on my lap currently.

@steve51

Rebecca_de_Winter

I think @steve51,

It is still sunny here, just as well since the stuff from the washing machine was still quite wet when they needed pegging on the line. The new machine arrives tomorrow - one expense we could have well done without😟. Still I can’t be going down to the river to pound them on the rocks 🤣.
How are you anyway apart from being cold? I love cats! We had to have our lovely cat Samson put to sleep last year and we miss him dearly, but he was our last cat there would be no replacing him.

@Rebecca_de_Winter

steve51

Hi @Rebecca_de_Winter

No the washing machine is unfortunately on the list of very important things that we have around our homes 

I am starting to warm up now thanks 😃😃

@steve51

benjamintolmer

Adam_Scope said:

If you need to have a look through our How To Guide that talks you through the ins and outs of the Scope online community, or if you want to read the Community Guidelines, you can access them by going to the Community Guidelines Page here. 

Thanks for being part of the community

Thanks for the guidelines.

Me118

Hello x new to All This. For years iv bern ill  only just found out i could claim and receive disabled allowance help because I have a small personal income sent off the first set of paperwork for Pip Waiting for the second lock to come now been a couple of weeks
Wish me luck

Ami2301

Hi @Me118 welcome to the community! Good luck and let us know if you need any further help

Me118

Thank you x 

1961hoppy

Hi I’m a new member but I went to my f2f assessment but it wasn’t half a bad as I thought it would be the hc professional say he was going to recommend that I get enchaned mobility and that I should have had a home vistas any one else been told this

Harryfils

I have been trying to introduce myself to the community, but am not being given the option to do so. I am also struggling to open pages and even typing this is proving difficult as the site is running very slow, on top of which I keep getting error messages. has the site been hacked by government agents in an attempt to sabotage my attempts to use this site?

steve51

Hi @Harryfils

Welcome to our online community/family.

I am very very sorry to hear about your current problems.

I am one of the Community Champion’s.

Yes I would be more  than happy in helping/supporting “you in & around”

@steve51

steve51

Hi @Me118

Good Morning it’s great to meet you this morning.

I am one of the Community Champion’s here at Scope.

Please please let me know if there’s anything that I can help you with?????

@steve51

steve51

Hi @1961hoppy

Welcome & Good Morning.

I’m one of the Community Champion’s here at Scope.

We are all here to “Help & Support” any new members.

@steve51

lillyanne

Hi im new on here .thanks for accepting  me ,,can someone tell me how i can get a social worker for my 20 yr old grandson thats living with me plz

steve51

Hi @lillyanne

Good Afternoon!!!!

You would be best to speak to your/grandsons “GP” 

They should be able to point you in the right direction l

Please please let me know if there’s any problems 😃😃😃

@steve51

jolew

Hi, I joined this evening. I have been searching google most of today for a local art group for the disabled, with no luck! I couldn’t even find any type of disabled group near me. Scope came up in one of my searches and I decided to join. 

Connie00

Hello @jolew

My Name is Connie00

I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

Welcome to the Community.

 

Sometimes it can be very frustrating finding groups for the disabled.

We are very pleased you have joined our community

 

if we can be of any further help to you please let us know.

 

Have a good day

 

@connie00

 

GettinOlde

I have read the Community Guidelines but it seems to be lacking some information, particularly regarding certain forum functionality, e.g.

• How do I use Saved Drafts?
• Why can't I see a link to 'My drafts' in my profile page?
  
• How do I create a forum 'signature'?
• Where do I find the different smileys/emojis that I see others using?
• How do I Private Message someone?
  
• Can I contact an administrator/moderator by PM?

... etc., etc..

You get the picture?

Thank you kindly.

rajeshroyal

hello

Adrian_Scope

GettinOlde said:

I have read the Community Guidelines but it seems to be lacking some information, particularly regarding certain forum functionality, e.g.

• How do I use Saved Drafts?
• Why can't I see a link to 'My drafts' in my profile page?
  
• How do I create a forum 'signature'?
• Where do I find the different smileys/emojis that I see others using?
• How do I Private Message someone?
  
• Can I contact an administrator/moderator by PM?

... etc., etc..

You get the picture?

Thank you kindly.

Hi @GettinOlde
Sorry you've had to figure out some of these yourself. Perhaps we can look at putting together a basic guide to the use of some of these functions.

You can find the saved drafts here - https://community.scope.org.uk/drafts
Once you save a comment as a draft, it'll appear there.

Many of our members access the community via mobile device, which of course allows them to use their device's own extensive range of emojis.

We tend to recommend contacting an administrator/moderator via email ([email protected])

Adrian_Scope

Welcome to the community @rajeshroyal.

Ails

Hi @rajeshroyal and welcome to the Community.  It is nice to meet you.  Please let us know if we can be of any help to you.  All the best. 

blessed

Hiya
My name is blessed so happy to join thank you 

Adrian_Scope

Welcome to the community @blessed. How are you doing?

Ails

Hi @blessed and welcome to the Community.  It is nice to meet you.  Please let us know if there is anything we can do to help you. 

Tammyjane33

Hi everyone I'm Tammy, I have recently joined this lovely online community as a community champion and I'm enjoying getting to know alot of different people from all over. What was your reason for joining us here at scope? Come say hello. I hope everyone is safe and well. 

skiptonlady

Hello, I'm Annie's Mum, she has  got CRPS in her leg and it is spreading downwards, I wish I knew what to say or do to comfort her. I feel at a loss about the benefit system and the hoops you have to jump through, only last week she was told that she needs to pull herself together! when will they get it? The mental anguish it causes her turns into agonising physical pain.  I look forward to chatting with you.

steve51

Hi @skiptonlady

Good Afternoon & Welcome 🙏🙏

I am one off the “Community Champion’s” here at Scope.

Yes I would be very very happy in helping where I can.

I am currently in the “Mandatory Reconsideration  Stage”

U’mmmm very very interesting indeed.

@steve51

Ails

Hi @skiptonlady and welcome to the Community.  It is nice to meet you.  Yes, the benefit system is a minefield!  Please let us know if we can be of any support to you.  All the best. 

romanywoman5

Hi I'm new but also old 

jackie005

Hi to everyone, hoping this is where I introduce myself. I've just joined the site, I'm very familiar with both SCOPE and the M.E. Association as my adult son has mild Cerebral Palsy and some learning difficulties and my adult foster son (23 yrs old) is diagnosed with M.E. but I had his bloods tested in Germany early last year which showed him to be positive for both Lyme disease and the horrendous co-infection of Bartonella. The NHS Lyme test is notoriously unreliable and as expected his NHS Lyme test came back negative so NHS will not treat him or investigate and as my only income is my state pension I cannot afford private treatment. He is very, very ill with lots of mental health issues, we have had to go through the mental health route who are now saying that it's anger issues and he has to learn to control his anger which is impossible as he has no control whatsoever over his impulses caused by the Bartonella. .At my wits end, have been for many years. 

jackie005

Just received this really useful info from M.E. Association regarding claiming disability benefits, really worthwhile reading..https://www.meassociation.org.uk/2019/08/navigating-disability-benefits-hints-tips-and-information-resources-07-august-2019/?fbclid=IwAR14bdPh_61TpfxzzcFsuN-SBVWh2HrgTq2d6z-t41h9osW341Y9-aoG7xw#Hints 

GettinOlde

Hi @jackie005

This might be a good  place for you to post your findings ...

https://community.scope.org.uk/categories/neurological-conditions

jackie005

Many thanks, I'm having problems how to access and which which communities will be best for me..

GettinOlde

jackie005 said:

Many thanks, I'm having problems how to access and which which communities will be best for me..

The site does take a little getting used to, particularly if you are using a mobile device.

Let me know if I can help you any further - and if I can't I'm sure someone else will be able to.

Ails

Hi @romanywoman5 and @jackie005 and welcome to the Commmunity.  It is nice to meet you both. Please let us know if we can be of any help to you.  All the best. 

Dianegrace

Hi my name is Diane grace and I’m new to this lovely site 

Ails

Hi @Dianegrace and welcome to the Community.  How are you today?  It is nice to meet you.  If there is anything we can help you with at all then please just let us know.  All the best. 

Adrian_Scope

Hi @Dianegrace and welcome to the community. Really glad you've found us.

kev64

Hello all I'm kev64 I have Ankylosing Spondylitis diagnosed 34 years ago suffered since I was a child. I am no1 face on faces of Ankylosing  Spondylitis web site.

GettinOlde

Hi @kev64

Just a hello from the no1 trouble maker.

Ails

Hi @kev64 and welcome to the Community.  It is nice to meet you and thanks for sharing with us.  I'm sure you will meet other members of the Community who share similar health issues to you.  I hope you enjoy your time on the forum and meet some new friends.  If there is anything we can help you with then please just let us know.  All the best.  

Lilypad1

Hello, I am new to the community. I have two children with Asperger's and I find it hard to cope sometimes! Daughter in her twenties living at  home, and son 11. Currently trying to work out how best to help them...

paineveryday

Hi, 
Lilypad1 I'm new to the community too. It's great too feel welcomed. So welcome

Daviesheeley1

Hi everyone I'm Adel from Durham 

paineveryday

Hi, Adel I'm new too. I live in N.Ireland.😊

Ails

Hi @Lilypad1, @paineveryday and @Daviesheeley1 and welcome to the Community all of you!  It is nice to meet you and thank you for sharing with us.  I hope you enjoy your time on the forum as it is a great place to share and meet new friends.  I hope you are all well today and having a nice day so far.  If there is anything we can help/support you with then please just let us know.  All the best.  

steve51

Hi @paineveryday

Welcome to our Online Community/Family.

How are things in “N Ireland” today???

I love your “username name” 

It hits home with me “big time”

@steve51

steve51

Hi @Lilypad1 @Daviesheeley1

It’s great to meet you both.

Please please let me know if there’s anything that I can help/support you with??

@steve51

Maimarsh

Hi i'm new to site just saying hello

paffuto10

@Maimarsh

Hi and welcome, make yourself at home 

mike62

Hi all I joined a few days ago. I'm Mike 62 with two sons. I've had mild cp on my left side since birth, foreceps I think, giving drop foot and about 12mm (1/2 inch) shorter leg. But I have been able to be full time employed. 

Ails

Hi @Maimarsh and @mike62 and welcome both of you to the Community.  It is nice to meet you.  How are you today?  I hope you are both having a nice weekend.  It is nice to have you on board and I hope you enjoy your time with us.  You will find the Community to be a great, supportive space with lots of lovely people on here.  I'm sure you will meet some new friends on the forum too.  Please fee free to look around the site and join in any discussions you are interested in.  If there is anything we can help/support you with then please just give us a shout.  Looking forward to seeing you both on the Community.  All the best. 

Maimarsh

Hi joined yesterday so glad even if it's just for chat lost my partner in august finding in hard mentally and financially so if anyone got advice what I can claim would be helpful as my partner use to deal with it all they have put me on universal credit plus I get disability pip payment when all bills are paid left with 50 pounds a week

Ails

Really sorry to hear of your loss, @Maimarsh.  It must be a really difficult time for you, but please be assured that everyone is here to support you.  So feel free to chat anytime as there will always be someone here to listen.  With regards to your own finances, some of our members or one of the Community Team maybe best to advise you.  I will tag in one of our members, @poppy123456, who is very knowledgeable in this field, to see if she can be of help to you.  Please keep in touch and let us know how you are getting on.  

steve51

Hi @Maimarsh

Good Afternoon & Welcome.!!!!

I am one of the Community Champion’s here at Scope.

I’m very very sorry to hear about the loss of your partner.

We have got some great info/advice on Benefit’s.

I would be more than happy in going through it with you if that would be helpful????

There is a “Benefit Calculator” that will give you a good idea of what “Benefits” are available for you at present.

Please please let me know if this will be okay & we can get the “ball rolling” straightaway.

@steve51

Maimarsh

Hi Megan I have just lost my partner of 13 years to cancer he did all financial side now on my own no body makes it easy to put claims in for yourself I'm not grieving to good beside myself and have the hassle with benefits e.g. Universal credit 

buckbeak

Hi. My user name is Buckbeak. In real life i am a 52y old woman with SPMS. Lots of fatigue, brain fog abd balance probs. Bling in one eye. 
Just bought myself s new super active wheelchair, as I’m ambulatory but now tortured by the fact that it is d****ned hard to use. Any advice anyone? Please?

buckbeak

I meant blind, not bling!

mamof1

Hi, I’m a Mum of a 17yr old daughter. I have many disabilities/problems. 

My G.P is injecting my knee on the 16th Dec & I’m not looking forward to it - I think it’s either a cortisone injection or a steroid ( not sure ) 
I’d love to hear from anyone who has had this done & what to expect afterwards please 😀
Many Thanks
Tracy x

VOB

Hi, mamof1,
 Although I  have not  had injections in my knee I have had ultrasound  guided injections to the insides of my feet. Unfortunately it didn't work. The pain was really bad when the needles were inserted and wiggled around to find the exact position to inject. I just bit on my fist. I had anasthetic and cortisone given together.
I don't think it will be that bad though having the injections in your knees because the skin is thicker.
Good luck with the treatment.

KITKAT64

Hi, I am new to this site. I am a single parent /carer to my adult disabled son.
Not very tech minded, so not even sure if I am posting in the correct introductions part?
I did try to make another post asking for help with benefits.
I titled it... What benefits am I entitled to.
Not even sure where that post has gone and whether I will be notified of any replies?

steve51

Hi @KITKAT64

Good Evening & Welcome it’s great to meet you today.

I am one of the Community Champion’s here at Scope.

We have got a “Benefit Calculater” on here I have posted the link below for you.

https://community.scope.org.uk/discussion/70033/benefit-calculator

Please please let me know if you need a hand with this?

@steve51

KITKAT64

Hi @steve51
Another member kindly sent me a link to another benefits calculator.
It looks like I will basically be getting the same amount as I was when receiving income support.
Except for the fact I will now be entitled to the extra £20 per week due to the covid19, which is a nice bonus.

Would you know if there is anywhere on this site that I could get help concerning care charges?
My son has been assessed and for some reason I had an email saying his care charge would be £50 per week. I called and explained I thought this was wrong and it was then reduced to £25 per week, which I feel is still wrong as they have not taken into account the cleaning, washing, extra heating, water etc. He has never paid care charges in the past and his circumstances have not changed in years.
My son claims P.I.P. and U/C
Thank you in advance

steve51

Hi @KITKAT64

Yes no probs I will try to help you with your “Care Charges”

Hi @Richard_Scope @Adrian_Scope @Chloe_Scope

Can you please offer me some help with regards to “Care Charges”

Many Thanks.

@steve51

KITKAT64

@steve51,

Thank you

I have just found out that the care finance team did not take into account any DRE (Disability related expenditures)
I have now been asked to send in proof of purchase of any extra bedding,clothes,shoes etc, which unfortunately I can not do as I find it difficult to shop with my son and I am not very tech minded, so I will normally withdraw money from our joint account and then pay my daughter for what she has ordered online or when she visits Ikea and buys bedding or a bed etc.
It was never ever mentioned to me in the past that I had to keep every receipt/proof of purchase when buying for my son.
I shall definitely keep all receipts from now on.

Just another query that someone on here maybe able to help me with.

My son has no mental capacity (aged 23) He also has challenging behaviours and very high sensory needs.
The problem I am having, or rather he has is that he constantly destroys/breaks things like beds,blinds,light switches, door handles, toilet seats. The list is never ending and as you can imagine is costing a fortune in repair bills or replacing.
Would anyone know if there is any kind of financial help that I can get to help towards repair bills, replacements?
I was told a few years ago by his disability social worker that if he had challenging behaviours then he would be allowed a certain amount from his personal budget for this, and that they would assess him for this on his next annual assessment . The social worker in question then left and each year when I mention it, I just seem to get brushed off.

Thank you

Richard_Scope

Hi @KITKAT64
Good to meet you.
I would point in the direction of our free Helpline 0808 800 3333. Give them a call and you can go into much more detail about your specific situation.

steve51

Hi @KITKAT64

Good Afternoon Yes I will try to help you further.

I am very very sorry to hear about your current problems.

 I have found some info for you below.

https://www.scope.org.uk/campaigns/extra-costs/

Please please let me know if there’s any problems with the above info!!!!!!!

@steve51

KITKAT64

@Richard_Scope, @steve51.

Thank you for the info

steve51

Hi @KITKAT64

No probs it’s my Pleasure 😃😃

@steve51

alex72

hi i am new here its the first time i have posted although i have been reading some posts for a little while now i have decided to take the bull by the horns and say hello i dont talk a lot i think having two strokes has affected me quite a lot and losing my wife played around with my head as well my name is alex by the way