Our Community Guidelines and How To Guide

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  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Me118

    Good Morning it’s great to meet you this morning.

    I am one of the Community Champion’s here at Scope.

    Please please let me know if there’s anything that I can help you with?????

    @steve51
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @1961hoppy

    Welcome & Good Morning.

    I’m one of the Community Champion’s here at Scope.

    We are all here to “Help & Support” any new members.

    @steve51
  • lillyanne
    lillyanne Online Community Member Posts: 1 Listener
    Hi im new on here .thanks for accepting  me ,,can someone tell me how i can get a social worker for my 20 yr old grandson thats living with me plz
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @lillyanne

    Good Afternoon!!!!

    You would be best to speak to your/grandsons “GP” 

    They should be able to point you in the right direction l

    Please please let me know if there’s any problems ???

    @steve51
  • jolew
    jolew Online Community Member Posts: 26 Contributor
    Hi, I joined this evening. I have been searching google most of today for a local art group for the disabled, with no luck! I couldn’t even find any type of disabled group near me. Scope came up in one of my searches and I decided to join. 
  • Connie00
    Connie00 Online Community Member Posts: 249 Empowering

    Hello @jolew

    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    Welcome to the Community.

     

    Sometimes it can be very frustrating finding groups for the disabled.

    We are very pleased you have joined our community

     

    if we can be of any further help to you please let us know.

     

    Have a good day

     

    @connie00

     


  • GettinOlde
    GettinOlde Online Community Member Posts: 495 Empowering
    edited June 2019
    I have read the Community Guidelines but it seems to be lacking some information, particularly regarding certain forum functionality, e.g.
    • How do I use Saved Drafts?
    • Why can't I see a link to 'My drafts' in my profile page?
    • How do I create a forum 'signature'?
    • Where do I find the different smileys/emojis that I see others using?
    • How do I Private Message someone?
    • Can I contact an administrator/moderator by PM?
    ... etc., etc..
    You get the picture? :wink:
    Thank you kindly.
  • rajeshroyal
    rajeshroyal Online Community Member Posts: 2 Listener
    hello
  • Adrian_Scope
    Adrian_Scope Posts: 11,736 Online Community Programme Lead
    I have read the Community Guidelines but it seems to be lacking some information, particularly regarding certain forum functionality, e.g.
    • How do I use Saved Drafts?
    • Why can't I see a link to 'My drafts' in my profile page?
    • How do I create a forum 'signature'?
    • Where do I find the different smileys/emojis that I see others using?
    • How do I Private Message someone?
    • Can I contact an administrator/moderator by PM?
    ... etc., etc..
    You get the picture? :wink:
    Thank you kindly.
    Hi @GettinOlde
    Sorry you've had to figure out some of these yourself. Perhaps we can look at putting together a basic guide to the use of some of these functions.

    You can find the saved drafts here - https://community.scope.org.uk/drafts
    Once you save a comment as a draft, it'll appear there.

    Many of our members access the community via mobile device, which of course allows them to use their device's own extensive range of emojis.

    We tend to recommend contacting an administrator/moderator via email (community@scope.org.uk)
  • Adrian_Scope
    Adrian_Scope Posts: 11,736 Online Community Programme Lead
    Welcome to the community @rajeshroyal.
  • Ails
    Ails Online Community Member Posts: 2,237 Championing
    Hi @rajeshroyal and welcome to the Community.  It is nice to meet you.  Please let us know if we can be of any help to you.  All the best.  :smile:
  • blessed
    blessed Online Community Member Posts: 2 Listener
    Hiya
    My name is blessed so happy to join thank you 
  • Adrian_Scope
    Adrian_Scope Posts: 11,736 Online Community Programme Lead
    Welcome to the community @blessed. How are you doing?
  • Ails
    Ails Online Community Member Posts: 2,237 Championing
    Hi @blessed and welcome to the Community.  It is nice to meet you.  Please let us know if there is anything we can do to help you.  :smile:
  • Tammyjane33
    Tammyjane33 Online Community Member Posts: 755 Pioneering
    Hi everyone I'm Tammy, I have recently joined this lovely online community as a community champion and I'm enjoying getting to know alot of different people from all over. What was your reason for joining us here at scope? Come say hello. :) I hope everyone is safe and well. 
  • skiptonlady
    skiptonlady Online Community Member Posts: 4 Listener
    Hello, I'm Annie's Mum, she has  got CRPS in her leg and it is spreading downwards, I wish I knew what to say or do to comfort her. I feel at a loss about the benefit system and the hoops you have to jump through, only last week she was told that she needs to pull herself together! when will they get it? The mental anguish it causes her turns into agonising physical pain.  I look forward to chatting with you.
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @skiptonlady

    Good Afternoon & Welcome ??

    I am one off the “Community Champion’s” here at Scope.

    Yes I would be very very happy in helping where I can.

    I am currently in the “Mandatory Reconsideration  Stage”

    U’mmmm very very interesting indeed.

    @steve51
  • Ails
    Ails Online Community Member Posts: 2,237 Championing
    Hi @skiptonlady and welcome to the Community.  It is nice to meet you.  Yes, the benefit system is a minefield!  Please let us know if we can be of any support to you.  All the best.  :smile:
  • romanywoman5
    romanywoman5 Online Community Member Posts: 1 Listener
    Hi I'm new but also old 
  • jackie005
    jackie005 Online Community Member Posts: 25 Contributor
    Hi to everyone, hoping this is where I introduce myself. I've just joined the site, I'm very familiar with both SCOPE and the M.E. Association as my adult son has mild Cerebral Palsy and some learning difficulties and my adult foster son (23 yrs old) is diagnosed with M.E. but I had his bloods tested in Germany early last year which showed him to be positive for both Lyme disease and the horrendous co-infection of Bartonella. The NHS Lyme test is notoriously unreliable and as expected his NHS Lyme test came back negative so NHS will not treat him or investigate and as my only income is my state pension I cannot afford private treatment. He is very, very ill with lots of mental health issues, we have had to go through the mental health route who are now saying that it's anger issues and he has to learn to control his anger which is impossible as he has no control whatsoever over his impulses caused by the Bartonella. .At my wits end, have been for many years. 
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