CRPS question pain management

AndyDurham
Online Community Member Posts: 16 Connected
Hello, my CRPS was a result of successful cancer treatment in 2014. I was finally diagnosed in 2016 having CRPS as the condition worsened. I'm very much on a spiral were I'm unable to do more and more without causing significant pain or causing a flare up.
I was on 1,800mg of gabapentin a day but felt to have hit a plato, ie wasn't having any effect. I'm now on 150mg a day of Pregabalin which is the better of the two drugs by far cause I can feel the benefits yet the pain levels remain severe.
I've asked my gp and neurologist about pain patches and have been advised against them. In addition to pregabalin I also have sertraline 150mg a day and have solpadol to help ease the pain. As well as self medicated CBD.
The pain levels are just short of me wanting to cut my legs off and I spend the majority of my time with my legs elevated and under an electric blanket.
My quality of life has drastically gone down hill. I cant walk far even with crutches, and I'm struggling with even light duties around the home.
There has to be more that can be done, is there anything which I can request from my supportive GP?
I was on 1,800mg of gabapentin a day but felt to have hit a plato, ie wasn't having any effect. I'm now on 150mg a day of Pregabalin which is the better of the two drugs by far cause I can feel the benefits yet the pain levels remain severe.
I've asked my gp and neurologist about pain patches and have been advised against them. In addition to pregabalin I also have sertraline 150mg a day and have solpadol to help ease the pain. As well as self medicated CBD.
The pain levels are just short of me wanting to cut my legs off and I spend the majority of my time with my legs elevated and under an electric blanket.
My quality of life has drastically gone down hill. I cant walk far even with crutches, and I'm struggling with even light duties around the home.
There has to be more that can be done, is there anything which I can request from my supportive GP?
0
Comments
-
I'm so sorry to hear about your pain @AndyDurham, I only know a little about CRPS but I've heard how tough it can be to manage.
I wonder if it's worth asking for a pain clinic referral?If you find you're having difficulty managing your pain, ask your GP for a referral to a specialist pain clinic.
Pain clinics offer a wide range of treatments and support. They aim to support you in developing self-help skills to control and relieve your pain.0 -
@Pippa_Scope I've recently asked for one. My GP is very supportive but I feel hes gotten to the end of the what he can do road. x0
Categories
- All Categories
- 15K Start here and say hello!
- 7.1K Coffee lounge
- 81 Games den
- 1.7K People power
- 107 Announcements and information
- 23.6K Talk about life
- 5.5K Everyday life
- 294 Current affairs
- 2.3K Families and carers
- 858 Education and skills
- 1.9K Work
- 503 Money and bills
- 3.5K Housing and independent living
- 1K Transport and travel
- 867 Relationships
- 254 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 858 Rare, invisible, and undiagnosed conditions
- 916 Neurological impairments and pain
- 2K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 38.3K Talk about your benefits
- 5.9K Employment and Support Allowance (ESA)
- 19.3K PIP, DLA, ADP and AA
- 7.7K Universal Credit (UC)
- 5.5K Benefits and income