CRPS question pain management

AndyDurham · March 2019

Hello, my CRPS was a result of successful cancer treatment in 2014. I was finally diagnosed in 2016 having CRPS as the condition worsened. I'm very much on a spiral were I'm unable to do more and more without causing significant pain or causing a flare up.

I was on 1,800mg of gabapentin a day but felt to have hit a plato, ie wasn't having any effect. I'm now on 150mg a day of Pregabalin which is the better of the two drugs by far cause I can feel the benefits yet the pain levels remain severe.

I've asked my gp and neurologist about pain patches and have been advised against them. In addition to pregabalin I also have sertraline 150mg a day and have solpadol to help ease the pain. As well as self medicated CBD.

The pain levels are just short of me wanting to cut my legs off and I spend the majority of my time with my legs elevated and under an electric blanket.

My quality of life has drastically gone down hill. I cant walk far even with crutches, and I'm struggling with even light duties around the home.

There has to be more that can be done, is there anything which I can request from my supportive GP?

Pippa_Alumni · March 2019

I'm so sorry to hear about your pain @AndyDurham, I only know a little about CRPS but I've heard how tough it can be to manage.

I wonder if it's worth asking for a pain clinic referral?

If you find you're having difficulty managing your pain, ask your GP for a referral to a specialist pain clinic.

Pain clinics offer a wide range of treatments and support. They aim to support you in developing self-help skills to control and relieve your pain.

AndyDurham · March 2019

@Pippa_Scope I've recently asked for one. My GP is very supportive but I feel hes gotten to the end of the what he can do road. x

CRPS question pain management

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