PIP 10 YEAR LIGHT TOUCH?

Adrian_Scope

Hi @tcellmutation, that's great news, thank you for sharing it and updating us all.

twonker

tcellmutation said:

I think I’m very lucky to get this
[IMAGE REMOVED BY MODERATOR]

I’ve read some horror stories of people worse off then me not even getting any points. I hope the system works for these people in the end

Unfortunately it doesn't. Some claimants despite their problems and issues will always have the cards stacked against them. Be it because they have little clue how to fill out the PIP2 form, not have a real clue what type of evidence to submit, be unable to put over their issues to the assessor/get a poor assessor, give up because of stress and fail at a Tribunal because of these problems they have as well as giving answers that are not relevant.

tcellmutation

twonker said:

tcellmutation said:

I think I’m very lucky to get this

[IMAGE REMOVED BY MODERATOR]
I’ve read some horror stories of people worse off then me not even getting any points. I hope the system works for these people in the end

Unfortunately it doesn't. Some claimants despite their problems and issues will always have the cards stacked against them. Be it because they have little clue how to fill out the PIP2 form, not have a real clue what type of evidence to submit, be unable to put over their issues to the assessor/get a poor assessor, give up because of stress and fail at a Tribunal because of these problems they have as well as giving answers that are not relevant.

You have summed it up in the best way I have ever read. I have been in hospital for a few days with a flare up of encephalitis which in my case affects my central nervous system. My Sirolimus tablets have been upped. These are trial drugs in the field relating to my condition. They aren’t having much affect so it’s likely my consultants will change to another immunosuppressant in the coming weeks.

This maybe a useful website for some as it is for me.

https://www.neurosymptoms.org/welcome/4594357992

“Some people have troublesome systems that they wish to understand without necessarily having a ‘disorder’ - these are called functional neurological systems, and this site is for you too”

tcellmutation

Here’s an early example of the “light touch” review form

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/756542/ar1-pip-award-review-how-your-disability-affects-you.pdf?fbclid=IwAR0Vf0EoV4uJIv894cjzYB8Iw-UrM870q6asDNte_lnN7chGPkufbmhnkB0

twonker

tcellmutation said:

Here’s an early example of the “light touch” review form

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/756542/ar1-pip-award-review-how-your-disability-affects-you.pdf?fbclid=IwAR0Vf0EoV4uJIv894cjzYB8Iw-UrM870q6asDNte_lnN7chGPkufbmhnkB0

That form (AR1) is the review form that everyone gets who is receiving a PIP award which is up for review. It is not the type of document that should be used for the light touch of a 10 year award. 
Put it bluntly I doubt that many pensioners current aged 71, and will get reviewed at ages 81 & 91 who are receiving PIP will have the ability to fill that lengthy form out. The 10 review is likely to be in letter form asking if there are any improvements to the health & impact.

tcellmutation

twonker said:

tcellmutation said:

Here’s an early example of the “light touch” review form

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/756542/ar1-pip-award-review-how-your-disability-affects-you.pdf?fbclid=IwAR0Vf0EoV4uJIv894cjzYB8Iw-UrM870q6asDNte_lnN7chGPkufbmhnkB0

That form (AR1) is the review form that everyone gets who is receiving a PIP award which is up for review. It is not the type of document that should be used for the light touch of a 10 year award. 
Put it bluntly I doubt that many pensioners current aged 71, and will get reviewed at ages 81 & 91 who are receiving PIP will have the ability to fill that lengthy form out. The 10 review is likely to be in letter form asking if there are any improvements to the health & impact.

Ok my bad. More research to do before posting. Thanks!

[Deleted User]

I wish they'd leave me alone for 10 years lol. It's good to see something positive. I'm on enhanced/enhanced but the last assessor suggested they check on me in 5 years to "make sure she's getting the correct care".

tcellmutation

What condition/s do you have? (I know it about how they affect you and not the condition itself)

5 years is good but as with the other awards they will send forms out after 4 years.

With my 10 year award it says they will not contact me until after 2029 so it’s a true 10 years!

[Deleted User]

I have been diagnosed by a psychiatrist with significant anxiety (agoraphobia) and depression but a therapist I saw for CBT said something about social anxiety and I was also diagnosed with fibro (wasn't diagnosed with fibro when I first applied). My Son pretty much does everything around the home, comes everywhere with me, I feel like a pain in the bum most of the time, I feel like I should be looking after him, not the other way around. My Mum also helps us.

tcellmutation

https://youtu.be/vnItQ9-atjw

tcellmutation

@twonker  

@WF2k

On your statement of entitlement letter does it show the breakdown of the points you have been awarded?

My statement of entitlement letter is 2 pages, front and back showing all descriptors and points.

I need to renew my CEA cinema card and they want me to upload the statement of entitlement letter as proof of my disability benefit. This information is very personal to send.

On previous statement of entitlement letters it only shows my entitlement and award dates.

twonker

Unfortunately in common with many companies such as the railways, if you want the discount then you have to follow their rules.
I agree it can be intrusive but there is not much you can do about it.

[Deleted User]

Yes it shows the breakdown of points.

I had another home assessment on the 4th.. ugh.

tcellmutation

twonker said:

Unfortunately in common with many companies such as the railways, if you want the discount then you have to follow their rules.
I agree it can be intrusive but there is not much you can do about it.

Ok, at least it’s normal practice, from my old award letter at least.

tcellmutation

Username_removed said:

Answered on other thread.

Link?

tcellmutation

marcushodgkiss93 said:

Dont know what your on about people who have 10 year awards dont have assessment I know that for a fact. 

We all know that now fella. 2 year old thread

tcellmutation

marcushodgkiss93 said:

What you mean and last time I have always had a 10 year award and all that happend was that I received a letter of my new award still the same money enhanced rate of daily living component 

Edit your above comment. I cannot understand it. Not being funny. Sorry.

tcellmutation

I’m out!