If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
PIP MR Rejected

KeyLuke
Member Posts: 8 Connected
Hi Guys,
for those is who don’t know; I have cystic shadowing on my lungs resulting in breathlessness when walking at all. I also have anxiety (treated with CBT) and dyslexia. I also have ASC but this is currently undiagnosed.
I have had my pip claim rejected at MR stage as I don’t receive medication for my anxiety and there was no breathlessness observed by the assessor despite her putting in the report that “breathing returned to normal after using an inhaler”. They’ve referred to my IAPT prognosis letters as “appointment” letters and also have disregarded any medical
evidence I’ve sent them regarding the condition of my lungs. I’m at a bit of a loss; and wondering if it’s worth my time applying to appeal (im thinking I should speak to the CAB about this).
any advice people have that’d be super appreciated!
for those is who don’t know; I have cystic shadowing on my lungs resulting in breathlessness when walking at all. I also have anxiety (treated with CBT) and dyslexia. I also have ASC but this is currently undiagnosed.
I have had my pip claim rejected at MR stage as I don’t receive medication for my anxiety and there was no breathlessness observed by the assessor despite her putting in the report that “breathing returned to normal after using an inhaler”. They’ve referred to my IAPT prognosis letters as “appointment” letters and also have disregarded any medical
evidence I’ve sent them regarding the condition of my lungs. I’m at a bit of a loss; and wondering if it’s worth my time applying to appeal (im thinking I should speak to the CAB about this).
any advice people have that’d be super appreciated!
Comments
-
KeyLuke said:Hi Guys,
for those is who don’t know; I have cystic shadowing on my lungs resulting in breathlessness when walking at all. I also have anxiety (treated with CBT) and dyslexia. I also have ASC but this is currently undiagnosed.
The assessor told me to give a good lungful of air into a tube, after 3 attempts she took it from me. The readings were in the high 200's to low 300's which ties in with the tests at the GP surgery. However the assessor reported that I sabotaged the three attempts by holding it incorrectly. Result of which was breathlessness does not exist!
-
Thanks for the insight @ilovecats very much appreciated!
I’ve already scored on the dyslexia;
for me it was more the issue that breathlessness was observed and noted in the assessors report as such (despite not observing me walking) and then contradicted by “no breathlessness observed” and at no point was my breathing measured (@twonker ; I’ve heard of people having the opportunity to give a peak flow...I wasn’t given that; which I find odd) and yeah I have a long history of depression and anxiety and cbt is being tried as I reacted badly when I was on medication previously. Hope that helps and thanks again for the info and advice!
-
ilovecats said:
That may be why they did not do a peak flow with you. I’m surprised that they asked @twonker to do one! It’s largely uneccessary.
To my way of thinking is that it should have been pretty obvious given that the inhaler was on page 4 of the repeat prescription I submitted.
note. I have just remembered when you said that they would not do these tests, my GP refused to test me for lung pressure or something like that - like blowing into a hard rubber balloon. I remember him telling me that I could not have that test due to having a diagnosed aneurism in the oesophagus? If that makes any sense.
Brightness
Categories
- 55.3K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 840 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 303 Dating, sex, and relationships
- 270 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 706 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 953 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.