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Suprapubic catheter

cat1932
Community member Posts: 13 Listener
Dear community friends
my doctor suggested I should have one of these. Can anyone give me information are they comfortable do they help quality of life.
my doctor suggested I should have one of these. Can anyone give me information are they comfortable do they help quality of life.
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Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Hi @cat1932 I look after adults who have these and they don't really complain about them. They are less intrusive than urethral catheters but need an initial incision in your stomach below the belly button straight into the bladder. My late Dad had one and he said it gave him more freedom. I know having spoken to Urologists that they generally look at doing Suprapubic when the person is still sexually active. Otherwise it just gets in the way
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I have no experience with that specific type of catheter. However they are usually only recommended for people who are sexually active. Ask your urologist for more information. Get as much information as you can possibly get about the whole thing.
Prepare a short list of questions to ask them too. -
Hi all I'm 3 weeks in now on having it all fitted. The upside is I'm able to have more control
Downside it is still settling down and still giving me problems on bypass and leakage but all in all when it eventually settles down it will be the est option. I have had to have it fitted due to Caudia equine syndrome in 2019 and 2 major spinal operations which has left serious nerve damage -
I hope that it settles down for you soon @martin1957! Are your medical team being supportive?
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I have spc I can't lie and say always smooth sailing but definitely is life changing for better I have mine on flip-flows
Which mean I can empty into a toliet you live full life and yes have sex. If what ask anymore questions I'm happy to help -
Thanks for sharing your experience @mollymandy97
Do you mind me asking how long you've had the SPC for?
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2-3 year now i had trey a few different types and advise you to get under they continence service which helped find right catheter and bag plus flip flo for my body which is a open tip advise as well as distract nurses. get a supply company much betty then pharmacys
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https://www.facebook.com/groups/348489945885768
this might be helpful its support group run bladder&bowel a charity -
plus entitled to free ryder key when you have bladder or bowel condition
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Thanks for sharing your experiences with us @mollymandy97. I am sure your experiences will be invaluable for people experiencing similar things.
It sounds like this has been really helpful for you and a really positive thing. How are you finding everything at the moment?Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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