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Advice on PIP appeal

edwards123edwards123 Member Posts: 12 Listener
edited May 2019 in PIP, DLA and AA
Hi.  Will no doubt be seeking help for our daughters PIP award she has just lost.  We are appealing and taking it further.


  • edwards123edwards123 Member Posts: 12 Listener
    My daughter was seen by an Occupational Therapist at her Assessment.  She has severe ADHD, Personality Disorder, Anxiety and stress related issues.  She was originally awarded enhanced  PIP award, but following this last Assessment went down to six points which means she has lost her PIP.  Plus as she was awarded severe disability allowance on ESA that too has gone...in total nearly £600 per month has been lost. Despite forwarding all necessary GP reports, invoices for private ADHD coaching, Consultants reports and ADHD Clinical Nurse reports. Wouldn't you think that someone who knows about Mental Health should do the Assessment?   Her condition has deteriorated, so things are not good.  We are appealing.  Any further advice please?
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    edited May 2019

    Hello @edwards123 Pleased to meet you welcome.

    Thank you for joining and sharing.

    Sorry to hear this has happened. I know this is a difficult time.

    I am one of the team of community champions. We guide, advise and help new members who join the forum.

    Please can I suggest that you consider getting some intervention with your appeal.

    I have mental health issues my self and have had to contact some additional support for my benefit situation.

    I used a mental health charity. Which helped me with not only assessments but looking at my benefit situation.  Also my mental health and wellbeing.


    Had assessments with floating support in attendance did help.

    To reassure you.

    Please can add we do have Mental Health  Officer on the Scope Team as well.

    Tagged him in. @MickConnon   . Hopefully he can give more advice and support.

    You have come to the right place. For support, advice and information.

    Please take care.


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • edwards123edwards123 Member Posts: 12 Listener
    edited May 2019
    Thank you so much for getting in touch.  Really appreciate.  Yes I did note that @MickConnon was on the site, so will either contact him or he may see my message first.
    i think it would help if the DWP letters were more straight forward to understand. Both my husband and I could not understand a letter re ESA and spent three hours two days  ago waiting to get through. Eventually, yesterday at 08.01 am got through.  My daughter just wouldn't understand any official letter that comes through the post. Thanks again
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger

    Hello @edwards123 Thank you for reply. One of the big problems is the confusion and complexities of benefits.

    Every thing around it.  One of the organisations you could contact is CAB. Another suggestion. Having some one face to face talking to you can be useful.

    One of the other reasons suggested mental health charity. Understand go all the support and care. Your daughter has .

    Sometimes just because has that. Does not mean has to accept what is available.

    Every one is entitled to good mental health and care.

    Many charities have in house welfare support. Often advisors or specific members of staff to give your daughter the opportunities to deal with her situation.  Signposting just some ideas and suggestions.

    Coping methods and strategies.

    This is something I had to do with my own personal circumstances.

    Hopefully our staff member @MickConnon_Scope can give a lot of reassurance.  Be able to give any answers you have.

    Wish you well.

    Pleasure to meet you.


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • edwards123edwards123 Member Posts: 12 Listener
    Thanks for your advice, much appreciated.
  • mikehughescqmikehughescq Member Posts: 5,987 Disability Gamechanger
    edited May 2019
    Here’s some stuff about what to expect on the day - https://community.scope.org.uk/discussion/56379/representation-and-tribunal-hearings#latest - but in the meantime you may want to think about the following issues:

    - personality disorder, anxiety and stress are vague terms. You need to be much more precise about the diagnosis. The symptoms of conditions vary from person to person so you need to describe the specific symptoms your daughter has and give examples as they relate to PIP points scoring e.g. how does anxiety impact preparing food; have a couple of real world incidents with prepping food ready to describe in detail. If you don't have any then they possibly don’t score those particular points.

    - PIP is not about the conditions. It’s about the consequences of the conditions. Being able to ask questions about each PIP points scoring activity and asking for real world examples does not require a mental health specialist. Who did the assessment is neither here nor there at this stage. Your focus is better directed to which specific points she scores; why and based on what evidence and examples. Tribunals already know the weaknesses of HCP reports but panels also contain a medical professional. Focus on points scoring and you’re kicking at an open door. Focus too much on the report and who did it and you may well not have the support of one panel member from the off. 

    - invoices for private ADHD coaching are poor evidence and possibly detrimental to your case. It doesn’t relate to the PIP points scores at all. What are the symptoms of her ADHD? How do they impact her doing the points scoring activities reliably and what examples do you have of that? That’s all you need. 

    This evidence is problematic. Anyone with money can pay for private treatment. The question is why is it needed and what does it say about points scoring. You would firstly need to describe the specific symptoms of her ADHD. Then you would need to provide evidence they (or some of them) were treatable. Then you’d need to show someone had recommended treatment and that it wasn’t available on the NHS. Finally you’d have to describe the treatment and produce at least 1 report as to what it could or could not do. If it suggests she’s improving you could limit the length of an award. 

    - GP, consultant and nurse reports could be very relevant but what is it they actually say? If they all talk about diagnosis, prognosis and treatment then only the middle one might be in dispute. What do they say about the points scoring activities? 

    - it’s worth remembering that a deterioration in a condition does not automatically lead to more points. One does not automatically follow the other. Deterioration is usually only an argument for a new claim. It’s not an argument for reinstatement.

    [Edited by moderator]
  • Antonia_AlumniAntonia_Alumni Scope alumni Posts: 1,781 Pioneering
    Hi @edwards123 please keep us updated and if you have further questions, please let us know. ;)
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