Are there many people like me, that have fibromyalgia?

marylouise
marylouise Online Community Member Posts: 4 Listener
Are there many people like me, that have fibromyalgia ?

Comments

  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,764 Pioneering
    edited May 2019
    Hi @marylouise welcome to the community :) Yes, we have members here, who have mentioned Fibromyalgia. 
    Please feel free to join our dealing with chronic pain and invisible impairments discussions group.

    How are you doing today? 
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @marylouise welcome to the community! :)
  • Adrian_Scope
    Adrian_Scope Posts: 14,140 Online Community Programme Lead
    A very warm welcome to the community @marylouise! Do you want to tell us anything else about yourself? :)
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @marylouise and welcome to the community! I don't have fibromyalgia but I do have chronic pain and amplified musculoskeletal pain syndrome. How are you doing today? :)
  • marylouise
    marylouise Online Community Member Posts: 4 Listener
    Not too bad today, how about you Chloe??
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Glad you're not too bad! I'm doing good thank you, this warmer weather certainly helps!!! Is there anything I can help you with?
  • marylouise
    marylouise Online Community Member Posts: 4 Listener
    No not at the moment, other than I feel a bit down at present, can't think why?
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    That's okay! Sorry you are feeling a bit down! You might find our coffee lounge or reasons to be cheerful board interesting to look through :)
  • Connie00
    Connie00 Online Community Member Posts: 249 Empowering
    Hi Marylouise  the trouble with Fibro is that this messes with your brain and can cause bouts of depression or feeling low  : :)
  • Beverley2712
    Beverley2712 Online Community Member Posts: 8 Listener
    Are there many people like me, that have fibromyalgia ?
    Yes I do Marylouise
  • barberanna
    barberanna Online Community Member Posts: 22 Contributor
    Hi @marylouise I too have fibromyalgia and it’s one of the most frustrating, annoying , painful and depressing syndromes ever ! 
    I hope you have fairly good days 
    anna
  • Connie00
    Connie00 Online Community Member Posts: 249 Empowering
    Hi Barberanna I suffer with Fibromyalgia and it’s the pits because it’s an invisible illness nobody truly understands how much or what your pain is unless they are fellow warriors that battle this nasty illness themselves  :). Keep your chin up we are here if you need us, do you follow fibromyalgia group on faceBook there are a couple of chat and help groups 
  • marylouise
    marylouise Online Community Member Posts: 4 Listener
    I am in one facebook group & they're very supportive
  • Connie00
    Connie00 Online Community Member Posts: 249 Empowering
    It’s always it’s always nice to know you are not alone @marylouise
  • barberanna
    barberanna Online Community Member Posts: 22 Contributor
    I don’t do F.B ladies but I do love some of my forums . 
  • AnkyieSpon
    AnkyieSpon Online Community Member Posts: 138 Empowering
    Hi @marylouise welcome to the community. I have Fibromyalgia........ How can we help? 
  • jjdd70
    jjdd70 Online Community Member Posts: 80 Contributor
    edited May 2019
    hi i do recently diagnosed my is every day even sat her typing i have pins and needles in my fingers, its so painful every day its not let up at all.even sitting down when i get up every thing is stiff, my grandma walks faster than me lol.omg i even forgot to close my door today I've never done that i feel like I'm forgetting things