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Need assistance

jbautismaware11 Member Posts: 15 Connected
edited May 2019 in Autism and neurodiversity
Im a parent of a 7 yr old autistic child.
In September, SUPPOSEDLY the school SENCO will help me apply for a ehcp as the deadline for it all to go through is now finished. Firstly the school SENCO has done nothing for my son. She's admitted he needs more help and hes struggling in mainstream but thats only saying it verbal to me. No actual evidence. I've been asking for a ehcp since yr 1 and he's now yr 3 soon to be yr 4. He's had a speech and language therapist since nursery and this year they took it off him but now realised hes struggling. The STARS team have had another referral sent to them to help my son. Still waiting. They have taken his full time TA off of him and he now has a TA for half an hour. He' doesn't no wether he's coming or going, hes scared to death, And hes violent to me when I force and drag him to school. He doesn't sleep due to his anxiety. It keeps him up while early morning panicking about school in the morning. Sleep nurse involved. Paediatrician referred him. Hes hypersensitive has ear defenders. Visual aids and he lives by routine. Im house bound due to his anxiety. He has dietician only eats chicken nuggets and wotsits. Hes got allsorts of health problems. He's got a dentist which is for special needs people. And the list goes on and on and on.
I'm sick to death of the primary school not listening to me. I've had numerace meetings with SENCO and its basically a "We will sort it" reply but never follows through. So wether SENCO does it or not, I'm applying for a ehcp in September this year coming.
But.... I really desperately need a independent support advisor to have a look at paperwork and evidence I have, attend meetings as i have no idea or knowledge.
I'm really upset and embarrassed to tell you that my understanding of paperwork, laws and big words are confusing to me and I really don't understand them. I dont have a disability but I'm not brainy or clever. I'm a good mum but its just big words, laws paperwork and meetings I don't understand. People keep saying contact sendiass but i want somebody to actually fight for me and my son and tell me what to say, do, evidence, meetings aswell as sendiass. I keep getting passed back to sendiass but I've got friends at the same school my asd child attends, their children have the same disability, and people from scope attended meetings with them, and went through paperwork with senco before the assessment got sent. And scope was there through assessments. Please help I'm lost. My friend with asd child actually asked me to contact you for a independent support advisor to come help me.


  • Adrian_Scope
    Adrian_Scope Posts: 8,576 Scope online community team
    Hi @jbautismaware11, I'm sorry you're having to fight so hard for your son to get the support you need. You can apply for the EHCP yourself, but I do understand where you're coming from in regards to struggling for forms etc.
    Have you been in touch with IPSEA at all? They've got a lot of guidance and can offer support for this sort of thing. You can visit their website here or you can book an appointment for their telephone helpline here.

    I'm also going to tag @SparkleSheffieldAutismAdvisors in case they have any suggestions for ways to help you with the process.
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  • jbautismaware11
    jbautismaware11 Member Posts: 15 Connected
    Thankyou so much Adrian_Scope xx
  • SparkleSheffieldAutismAdvisors
    SparkleSheffieldAutismAdvisors Member Posts: 32 Pioneering
    Hi @jbautismaware11

    Huge apologies for the delayed response, our notifications got lost! We're here now and hopefully we can help you with something along the way.

    Firstly, there is no 'deadline' for EHCP requests to be submitted. So being told you have to wait until September is not true. However, information gathering may take longer when schools are closed for the summer holidays etc. 

    Secondly, as a parent you also have the right to request an EHCP Needs Assessment directly with your local authority, you do not have to wait for school to do this for you. All you need to do is call, or write to, your local SEND Department stating that you wish for your child to be assessed for an EHCP. IPSEA have some fabulous template letters that you can use for this kind of thing here.

    Check to see if there's any local parent support groups in your area, or local advocate services (people who can act on your behalf at meetings etc) that may be available to help support you along the way. You'll have to contact Scope directly to see if this is a service that they can offer for you.

    Good luck and any other questions please feel free to ask!
  • jbautismaware11
    jbautismaware11 Member Posts: 15 Connected


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