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PIP process when living with MS

LindaButler1970LindaButler1970 Member Posts: 40 Courageous
edited June 2019 in PIP, DLA and AA
I wanted to know has anyone out there gone through the process of PIP for someone living with MS recently as I know it quite a task and humiliating as I can walk 20 meters on a good day, first thing with an aid.


  • jolewjolew Member Posts: 25 Courageous
    I have MS and had my PIP assessment last year. I was extremely worried about it, but also didn’t want to go to the assessment centre as I also have sciatica which is aggravated if I have to sit for too long. I informed DWP about this and as a result I was assessed at home. As it was a long process I had to go to the toilet half way through. When I got back to the sitting room the assessor commented on the distance to the toilet and that I had managed to walk there and back. My heart sank as I thought this was going to go against me and worried sick for the weeks between assessment and the decision. Thankfully I did get PIP at the higher level for mobility, I explained that some days I can’t walk at all if I do too much and get that sudden collapsing fatigue. I would advise that you make a list of all your symptoms and how they effect you even if you don’t have them every day. I find that my weakness is worse if I get hot, so summertime is very difficult, showers and cooking too!
  • LindaButler1970LindaButler1970 Member Posts: 40 Courageous
    thank you for your comments its really helpful. I know what you mean about getting too hot I suffer with this as well. I'm also going through the change so hot is my middle name! Glad you achieved and outcome of sorts. We keep positive.
  • jolewjolew Member Posts: 25 Courageous
    @LindaButler1970 I am hoping this summer isn’t going to be as hot as last year. I was housebound as it effected me so badly.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    PIP isn't about a diagnosis, it's how those conditions affect your ability to carry out daily activities based on the PIP descriptors. It totally depends how your conditions affect you. As everyone is affected differently then you can't really compare 2 people.

    Have you applied or thinking of applying?
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • LindaButler1970LindaButler1970 Member Posts: 40 Courageous
    Thanks for your comment, just wanted to know about others with MS who have gone through the PIP process. 

  • Survivorgirl58Survivorgirl58 Member Posts: 6 Listener
    Hi linda 
    I have set up a petition to abolish these Atos/Capita Lima tick boxing, yes no method ofassessment
    which are not fit for purpose! and don't recognise or take into account dibilitating, fluctuating long-term chronic conditions.

    Please sign this petition and share it with you family, and friends and social media 
    I have fibromylagia which is a very similar condition. 
    Its on  Change.org.uk
    Here's the link

    Good luck keep strong a d let's get changes x
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