PIP process when living with MS

I have MS and had my PIP assessment last year. I was extremely worried about it, but also didn’t want to go to the assessment centre as I also have sciatica which is aggravated if I have to sit for too long. I informed DWP about this and as a result I was assessed at home. As it was a long process I had to go to the toilet half way through. When I got back to the sitting room the assessor commented on the distance to the toilet and that I had managed to walk there and back. My heart sank as I thought this was going to go against me and worried sick for the weeks between assessment and the decision. Thankfully I did get PIP at the higher level for mobility, I explained that some days I can’t walk at all if I do too much and get that sudden collapsing fatigue. I would advise that you make a list of all your symptoms and how they effect you even if you don’t have them every day. I find that my weakness is worse if I get hot, so summertime is very difficult, showers and cooking too!

@LindaButler1970 I am hoping this summer isn’t going to be as hot as last year. I was housebound as it effected me so badly.