PIP process when living with MS
Options
LindaButler1970
Community member Posts: 40 Courageous
I wanted to know has anyone out there gone through the process of PIP for someone living with MS recently as I know it quite a task and humiliating as I can walk 20 meters on a good day, first thing with an aid.
Comments
-
I have MS and had my PIP assessment last year. I was extremely worried about it, but also didn’t want to go to the assessment centre as I also have sciatica which is aggravated if I have to sit for too long. I informed DWP about this and as a result I was assessed at home. As it was a long process I had to go to the toilet half way through. When I got back to the sitting room the assessor commented on the distance to the toilet and that I had managed to walk there and back. My heart sank as I thought this was going to go against me and worried sick for the weeks between assessment and the decision. Thankfully I did get PIP at the higher level for mobility, I explained that some days I can’t walk at all if I do too much and get that sudden collapsing fatigue. I would advise that you make a list of all your symptoms and how they effect you even if you don’t have them every day. I find that my weakness is worse if I get hot, so summertime is very difficult, showers and cooking too!
-
thank you for your comments its really helpful. I know what you mean about getting too hot I suffer with this as well. I'm also going through the change so hot is my middle name! Glad you achieved and outcome of sorts. We keep positive.
-
@LindaButler1970 I am hoping this summer isn’t going to be as hot as last year. I was housebound as it effected me so badly.
-
Hi,PIP isn't about a diagnosis, it's how those conditions affect your ability to carry out daily activities based on the PIP descriptors. It totally depends how your conditions affect you. As everyone is affected differently then you can't really compare 2 people.Have you applied or thinking of applying?I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help.
-
Thanks for your comment, just wanted to know about others with MS who have gone through the PIP process.
-
Hi linda
I have set up a petition to abolish these Atos/Capita Lima tick boxing, yes no method ofassessment
which are not fit for purpose! and don't recognise or take into account dibilitating, fluctuating long-term chronic conditions.
Please sign this petition and share it with you family, and friends and social media
I have fibromylagia which is a very similar condition.
Its on Change.org.uk
Here's the link
http://chng.it/v76rwLSH
Good luck keep strong a d let's get changes x
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.7K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.