Find out how to let us know if you're concerned about another member's safety.
Today my sister recieved the decision letter for PIP , she was awarded enhaced moblity scoring 16 points and nothing for daily living scoring only 6 points , my sister suffer from epilepsy she have unwarned tonic colonic seizures almost every day , she needs continuous supervision and help for everything , she was always awarded dla high care for more than 10 years.
The DM say she have to wear a padded helmet when going to the toilet so when she fall she will not get harmed when she hit her head by the sink again ( because this incident happend to her before ) , and wear a helmet and knee protection so when she have a seisure and fall will not get hurt , and that the presence of someone will not avoid seizures anyway so she doesnt need supervision , are this reasons logic or a nonsense ?
We have asked for a copy of the assessment report as it seems there is some lies and some twisting and missing information like they say she can eat without supervision because she never had shocking incident but during the assessment my sister said yes I had many seizure during eating and shocked by food.
She wants to know please if she ask for mandatory reconsideration they will look again for both components or only the daily living ? As she doesnt want to lose the mobility award.
- 55.2K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 837 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 302 Dating, sex, and relationships
- 268 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 704 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 773 Autism and neurodiversity
- 952 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.