Hi new to this group

sarahellenboot

Hi i would like to introduce myself..my name is Sarah and I have two boys first one is 4 and the other 2 who has 22q or also known as digeorge syndrome...is there anyone out there with children with additional needs or find it difficult to answer qs from people who dont understand disabilities? I have this problem all the time..my son is delayed but we dont know how he will be more until he gets older...
Sarah x

steve51

Hi @sarahellenboot

Good Evening & Welcome to our Community?

Here’s some info for you below:

https://www.scope.org.uk/advice-and-support/families-with-disabled-children/

Please please let me know if you need any further help/support???

@steve51

Chloe_Scope

Hi @sarahellenboot and a warm welcome to the community! Thank you for sharing this with us. 

You may find the Parents and Carers board helpful for finding out about parents experiences. 

If there is anything I can do to help then please do let me know

Adrian_Scope

Welcome to the community @sarahellenboot. I really hope you’ll find some support here.
Can I ask how long ago your younger son was diagnosed?

sarahellenboot

Only two yrs ago at birth

thespiceman

Hello @sarahellenboot   Pleased to meet you welcome.

Thank you for joining and sharing.

I am one of the team of community champions. We guide and advise new members who join the community.

Please can I advise have you been in touch with this organisation. Might be helpful.

For children with Digeorge Syndrome.

https://www.maxappeal.org.uk.

Helpline 0300 999 22 11.

Please get in touch if you wish to ask anything.  Some one will know from our community or a member of our team.

Please take care.

@thespiceman