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mouse70mouse70 Member Posts: 4 Listener
Hi I'm new here today I've been diagnosed this year with Ankylosing spondylitis I hate this disease it's caused me lots of physical and mental issues I'm trying to work through them thanks for letting me join today.

Replies

  • Ami2301Ami2301 Community Co-Production Group Posts: 7,471 Disability Gamechanger
    Hi @mouse70 welcome to the community! Sorry to hear this has caused you some issues, have you been offered any emotional support since your diagnosis?
    Disability Gamechanger - 2019
  • Connie00Connie00 Member Posts: 255 Pioneering
    edited July 2019

    Hello @mouse70             :) 

     

     

    Hello My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A very warm welcome to the Community.

    Thank you for reaching out to us.  I trust you are having a good day today.

    We are always here to lend support, help, and advise where we can

    I am sorry to hear about your diagnoses have you been given any help by your rheumatologist, or guidance on how to help alleviate your pain,

    Perhaps you might like to try looking at the link below  

    https://nass.co.uk/

    or joining in with one of our forums

    https://community.scope.org.uk/categories/chronicpain

    Here at scope we welcome people from all walks of life, please feel free to have a look around our online community, and join in, we welcome new blood and would welcome your opinion.

    If we can be of any assistance to you please don’t hesitate to contact us


    Have a good day

     

     

    @connie00   :) 


  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,954

    Scope community team

    Hello @mouse70 and welcome to the community. I'm glad you decided to join us. Have you checked out our chronic pain discussion group?
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • mouse70mouse70 Member Posts: 4 Listener
    Thanks for the replies it's took 13 years to diagnose I've just failed my first biological but all is not lost I'm going back to the hospital next week so fingers crossed they can help.
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,471 Disability Gamechanger
    Good luck with your next appointment and keep us updated! :)
    Disability Gamechanger - 2019
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @mouse70   Pleased to meet you welcome.

    Thank you for joining and sharing.  Sorry to hear what you are going through.

    My friend @Connie00 has given you positivity and lots of links to look at.

    I am one of the team of community champions.  We guide, advise and help new members who join the forum.

    Please if we can help with anything.  Please ask. You come to the right place for support and most of all friendship at this difficult time.

    Please keep in touch and we are here to be supportive.

    Please take care.

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @mouse70 and welcome to the Community.  It is nice to meet you and thanks for sharing with us.  I'm sorry to hear of your health struggles, but you have come to the right place for support and to meet new friends.  I hope you enjoy your time on the Community and look forward to seeing you around it.  Good luck with your upcoming appointment!  If there is anything at all we can help you with then please just ask us.  All the best.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @mouse70

    Welcome it’s great to meet you today!!!!!!

    I am also one of the team here at Scope.

    I also have physical & mental probs + many more!!!!!!!!!

    Please do let me know if there’s anything else that I can help you with??????

    @steve51


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