PIP, DLA and AA
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PIP Update

[Deleted User][Deleted User] Posts: 587 Listener
edited September 2019 in PIP, DLA and AA
So my Son called the DWP for me and asked about what was happening with my claim (it was a review) the lady said it can take up to 12 weeks atm but when my Son said it had taken 18 weeks so far she went off and started looking into it all, she came back to him and said that the DM has contacted my medical centre for more info because there is a dispute with the assessors report? She said the Medical Centre's holding it up because they've been asked twice for info and haven't responded, so my Son called the medical centre who said they are aware of it and they are waiting for a GP to sort it out.

This has spiked my anxiety and made me worry :/
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Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Hi @WF2k, I'm sorry it has taken such a long time, and that this has affected your anxiety. Is there anything we could do to help?
    Scope

  • [Deleted User][Deleted User] Posts: 587 Listener
    Thank you for responding @Chloe_Scope

    If you can remove my anxiety and worry that would be awesome! lol.

    I don't know? I just know it's having a really big knock on effect to my mental and physical health.


  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    I'm sorry it's having such a big affect. I know it is easier said than done but please try take some time out for yourself and be easy on yourself. It's not an easy process to go through and you are doing great. :)
    Scope

  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Anytime @WF2k, we're always here. :)
    Scope

  • [Deleted User][Deleted User] Posts: 587 Listener
    Hey @Chloe_Scope are there any links on the site that give advice about MR's for PIP, please? Not that I know how to explain about my mental health but still.

    It turns out that even though the decision maker messed me around for six months and also bothered my GP for information that he's still gone along with the assessors report/recommendation, which means I've been dropped from enhanced in both to standard when nothing has changed since the first assessment apart from being diagnosed with FM, it's pretty disgusting really.

    I tried the search feature but it comes up with stuff that isn't helpful and I don't want to post a fresh thread because I'm not keen on a few of the people that respond on this site, they make my anxiety worse which is why I very rarely post on here now (no offence, just being honest).

    Thanks in advance
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger


    To add more advice, you need to put the request in writing stating where you think you should have scored those points and your reasons why. Adding a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you. Mentioning any lies or contradictions that may have been told in the report will not help your claim for the MR or Tribunal, if it gets to that stage and most do.

    Good luck.


    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Hi @WF2k, that's okay! We can help you on this thread. :)

    I hope the links @poppy123456 has provided are helpful.

    Here is the MR article we have on the Scope website
    Scope

  • Adrian_ScopeAdrian_Scope Testing team Posts: 8,001

    Scope community team

    Hi @WF2k, I'm really sorry that despite seeing the discrepancies, the decision maker still went with the assessment report. 

    I hope you don't mind me adding another link but this is quite a useful guide as well: https://www.advicenow.org.uk/guides/how-win-pip-appeal.

    Best of luck and please let us know if we can do anything else to support you. 
    Community Manager
    Scope
  • [Deleted User][Deleted User] Posts: 587 Listener
    edited October 2019
  • [Deleted User][Deleted User] Posts: 587 Listener
    @Chloe_Scope @Adrian_Scope Just an update and I'm a bit mind boggled but hopeful, last week someone put a complaint into the DWP on my behalf due to a few different reasons, even though it states that I struggled to use the phone in the complaint the a manager still called *shrugs* anyway, during the conversation I find out after asking what was the point in asking my GP for information and ignoring it that the award I've been given isn't final, apparently not only did Capita ask for information from my GP but so did the case manager and it's the case manager who is waiting on the information from the GP, the person I spoke to said that they had to award me something because my award was ending in November? He also said that there was a note on my case saying that the case manager would look at my case again in two weeks to see if she's received the information that she's asked for.

    The problem is now, I'm having to chase the medical centre up again to see what information they've actually sent back and who to, they aren't exactly helpful :(
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    @justdon Yeah, I've been very stressed since they contacted me in 2017 about ESA! I just want to be left alone, I'm no better and all they are succeeding in doing is making me worse.

    Thank you, I've emailed the practice manager about it to see if she can tell me what was requested exactly.
  • 66Mustang66Mustang Community Co-Production Group Posts: 5,097 Disability Gamechanger
    Sorry can’t add anything helpful but, “I just want to be left alone”, I can totally resonate with that. Whenever I get the brown envelope my heart sinks! I wish they would just leave me to get better, as I have been slowly improving over the last months, but when I have to deal with this stuff it makes my health worse again!

    (Yes I do understand they need to do assessments to make sure we are still eligible for benefits, it is just that the way they do it is unnecessarily stressful.)
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    @justdon true. I've just gotten the decision letter and omg, she's literally just gone along with the report... it doesn't seem like she's read any evidence or checked the previous assessors report? I'm pretty peeved to say the least and if she doesn't change anything once she gets the GP's info then I'm be doing an MR, I'm not having someone tell lies about me.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    Yeap way too much of it to happen for it to be an error, she's also left me with not much money until November 14th.. not sure how I'm going to pay certain bills :/ 
  • [Deleted User][Deleted User] Posts: 231 Pioneering
    edited October 2019
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  • [Deleted User][Deleted User] Posts: 587 Listener
    edited October 2019
    Ahhhh!!!!!! This is causing me so much stress and I don't really know why because I was expecting my award to be dropped after reading the report, I think it's because they are discrediting my mental health problems and haven't fully understood the nature of both my mental health and physical health problems. I didn't sleep very well due to it and I've been feeling very low, fed up, like I'm being called a liar.

    Also, am I right in thinking, if my new award started on the 14th of October 2019 and your PIP is paid in arrears, don't they owe me at least three weeks money from my original award which I assume ended the same day they started the new award? In the letter she claims I've been paid money and I'll get a letter about it but I never did because it was recalled by the DWP.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    Thanks @justdon it's not nice when you are pretty much being called a liar about something you have struggled with for many years.

    Sorry you're feeling low also, if you ever want to chat in private feel free to pm me :)
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    @justdon I'm glad someone gets what I mean, thank you.
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  • Adrian_ScopeAdrian_Scope Testing team Posts: 8,001

    Scope community team

    Hello @WF2k. Did you manage to get in touch with your surgery to find out what information they sent? 
    Community Manager
    Scope
  • [Deleted User][Deleted User] Posts: 587 Listener
    Hi @Adrian_Scope I did manage to get someone eventually who told me it was sent back at the beginning of September, but I've had to contact them again to double check who asked for what and if they needed to send back two lots of info because the DWP told my Son two lots were requested but not who requested and after speaking to one of the DWP managers on Friday it seems that the case manager is still waiting for my GP's info but as made an award decision anyway? Apparently it's not the final decision which is beyond me because she sent me a decision letter with inaccurate reasons on it which pretty much says you can do an MR, so that's what I've done with the help of Welfare Rights.

    The clerical/admin staff at the medical centre aren't that great if I'm honest

    Was it right to point out the descriptors he awarded me points in but shouldn't have? I've been told it's best to be honest about it.
    .
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    WF2k said:


    Was it right to point out the descriptors he awarded me points in but shouldn't have? I've been told it's best to be honest about it.
    .
    Yes but do be aware that if points are removed then you may end up losing everything you already have but of course honesty is always best.

    Good luck.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 587 Listener
    It was just in one descriptor is all.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    If points are removed because of that will it take you below 8 points?

    I really hope for you that you're awarded what you should be. In all honesty, i've never heard a story like yours before. DWP decision maker telling you that the decision made isn't final and a decision had to be made because your award was due to end, it's just ridiculous. Even more so because you've been sent a decision letter, which says it must be final. :|
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 587 Listener
    edited October 2019
    It will take me below, yeah, I only have 8 points in each :( 

    Yeah it was a "manager" (not the case manager) that called me and said it wasn't the final decision. He called after someone made a complaint on my behalf.

    The fact is that both the assessor and case manager have access to information which explains why I don't take meds or have input, they've both ignored it and used that as part of their reason for me not having problems 50% of the time over 12 months, there were other false claims made in the report and no I'm not just saying that because my money was dropped. He didn't even recognise that I was having a panic attack at the beginning of the assessment for about 10 - 20 minutes of it, he claimed it was leg bouncing, it was shaking.. there is so much stuff that both of them have missed and in turn they have both impacted my health because they are pretty much making me out to be a liar. 

    Also I don't think it's good just awarding someone because their claim is running out if you don't have the full info to go on, this also causes stress because she's sent me a letter with false reasons on it.

    I'm actually tempted to make a complaint about the case manager as well.. 

    Edit: Managed to get a hold of the Welfare Rights officer, he hasn't sent the MR yet. I deleted a bit of this post because I feel like I'm repeating myself out of annoyance and frustration which is what I tend to do when my anxiety flares up.

  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    @justdon Yeah that's the thing, they shouldn't go on about people taking meds because they don't help everyone, like in my case, god knows how many I tried for my mental health and how many painkillers I'd tried for other things, nothing helped so I'm not going to keep taking meds just to appease Capita and the DWP!
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    @justdon that's pretty interesting, I know I'm allergic to certain meds and that a GP I saw was reluctant to prescribe me painkillers because I have stomach problems, she thought they might make it worse, plus I can't really swallow tablets/capsules properly anymore anyway.

    That's the problem isn't it, they have access to info but don't look at it and then go off based on someone who has had 5 weeks training, who are a lot of the time not specialised in anything, in my case it was a nurse. They can't expect these people to understand certain mental and physical health problems when not even GP's and specialists always understand them. 
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • [Deleted User][Deleted User] Posts: 587 Listener
    Sounds lovely, not :/ 

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  • [Deleted User][Deleted User] Posts: 587 Listener
    Who can I ask to call the DWP on my behalf? I'm unable to call due to how bad my anxiety is, I tried to call the other day about my PIP payment and got myself into a mess because I was very anxious, I don't want to ask my Son to call because he also has anxiety and doesn't like using the phone. Welfare Rights seem reluctant to call for some odd reason.

    I'm getting conflicting information from the DWP and my medical centre, I don't know who has asked for what, all I know is that my GP filled in a "factual report" and the assistant practice manager is saying that Capita requested this, but when I spoke to this DWP manager he told me the case manager requested this and even though it was sent back on the 2nd of September, they still haven't received it.

    My Son was also told that two requests for information were sent to my GP but my GP only received one.

    I'm already very annoyed at the fact I've been messed around for 6 months and that the case manager has awarded me PIP before she had this factual report, plus she's ignored information that she had access to already.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    If Welfare rights aren't willing to call on your behalf do you have another family member to call for you? You will have to go through security when the call is made but then you can tell the adviser that you're passing the phone onto another person to continue for you.

    If the factual report was sent by your GP and it wasn't received are you able to ask for another one to be sent? If the report was asked for after the assessment report was returned to DWP then it will be the decision maker that requested it and not IAS.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 587 Listener
    edited October 2019
    Hi Poppy, thanks for the response :)

    No sadly I don't, I only really have anything to do with my Mum and Son and I can't ask my Mum because she lives miles away. I don't mind the security bits.

    It was sent on the 2nd of September, surly the DWP would have received it by now? Yes the assistant practice manager has offered to do just that, she said she can send it via fax or email if needed but I need to find out if the DWP have gotten it yet or not and see if they would like the medical centre to resend the report. Ok that's confusing, this is what the APM said, I'm not sure she got the bit about Capita being the same as the DWP? but anyway.

    "With regard to DWP we have only had one request for information which we received via fax on 6th August 2019, Dr completed the forms and we returned them to DWP on 2nd September 2019. It was a request for a GP factual report from Capita, a lady called Angela. Capita is the same as DWP, Capita issue the forms and process the claims on behalf of Department for Work and Pensions. We still have a copy if they have not received the one we sent, we can fax it, post it or e-mail it to them."
  • FetlockFetlock Member Posts: 79 Courageous
    edited October 2019
    WF2k said:
    Who can I ask to call the DWP on my behalf? I'm unable to call due to how bad my anxiety is, I tried to call the other day about my PIP payment and got myself into a mess because I was very anxious, I don't want to ask my Son to call because he also has anxiety and doesn't like using the phone. Welfare Rights seem reluctant to call for some odd reason.

    I'm getting conflicting information from the DWP and my medical centre, I don't know who has asked for what, all I know is that my GP filled in a "factual report" and the assistant practice manager is saying that Capita requested this, but when I spoke to this DWP manager he told me the case manager requested this and even though it was sent back on the 2nd of September, they still haven't received it.

    My Son was also told that two requests for information were sent to my GP but my GP only received one.

    I'm already very annoyed at the fact I've been messed around for 6 months and that the case manager has awarded me PIP before she had this factual report, plus she's ignored information that she had access to already.

    Both will be right.
    The case manager will have requested the GP factual report but it has to be requested via a health professional (in your case, this was one at Capita) . So the case manager sends the request to Capita, who then send a request to the GP surgery.
    If it was sent back that long ago and not received, I doubt it's going to turn up now. If you're able to get to your GP surgery, I would pop in, get a copy of it and post it to DWP yourself. Alternatively, ask your GP surgery to send another copy of it in to DWP themselves.
    If you do get a copy from your GP surgery, you could always ring DWP and tell them what the report says (instead of or in addition to sending it in again)

  • [Deleted User][Deleted User] Posts: 587 Listener
    Ok thanks @Fetlock for explaining that, it's been confusing the hell out of me and causing me to be stressed out.

    Is this kind of thing normal where they make an award anyway without having the full info? The manager said it was because my award was due to end in November?

    I was thinking about asking for a copy as well to be honest.
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  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k

    So sorry you are going through this. 

    Have you tried your MP? 

    Our MP helped with adult son's case when he was give zero points. 
    Decision was that he needed NO support yet he's lived in supported housing for five years. 
    Why do they think he's in supported housing then? The clue is in the name?!!!!! 

    It was overturned at mandatory reconsideration with the help of MP. 

    I wish you luck and sincerely hope it gets sorted out <3

    Talk about stress!! 
  • [Deleted User][Deleted User] Posts: 587 Listener
    edited October 2019
    Yes I have tried and he is terrible, he's been of no help to me at all, he doesn't email me himself he gets someone else to do it.

    Thank you :) 

    Just to update the thread, my Son managed to call the DWP, the lady looked at the system and said the case manager now had the report and that it was up to her if she changed the award or not (obviously). So at least that's with the case manager and being looked at.

    Also the Welfare Rights did an MR the other day which has been sent back so IF the case manager does change the award in my favour, am I able to cancel the MR?

  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k

    Sorry your MP isn't helping. We must have got lucky. Ours is Labour and is trying to get this system changed. He sent us a humdinger of a letter saying how disgusting and stressful the current system is. 
    Of course, he may be just trying to get our votes but either way he helped our son. 

    When you say "case manager" is that the DM or someone else? 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    The decision has already been made because you've received the decision letter, even though you were advised, that isn't the final decision which makes no sense to me at all. In my opinion the MR is the correct procedure.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 587 Listener
    @paffuto10 yeah the decision maker.

    Well it's not what the DWP are saying Poppy although I do agree with you, which is why I went with the WFO's advice to do the MR, I did manage to get him to change a couple of bits I was concerned about before he sent it. I was just wondering that IF she did change the award if I'm able to cancel the MR, I'm obviously not going to cancel it unless the award goes back to the same as it was before.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    When you were told that the decision was made was not the final decision, did you have this in writing?
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 587 Listener
    Nope, the "dwp manager" said it over the phone and when my Son called to check if they had the GP's info they also said the info was with the case manager and that it's up to her if she changes it or not.

    Honestly Poppy, I'm very annoyed, frustrated and anxious, the whole process has had a big impact on my health and I'm contemplating making a complaint in regards to how they've handled my claim/review.
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k
    Whoops, that certainly would have been better in writing obviously. 

    If you receive any more calls (whether you answer or someone else) ask them to put it in writing. 

    Not very helpful right now, sorry 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I agree, that having that in writing would certainly have been the better way, all you have now is your work against theirs, unless the call was recorded by DWP.

    I'm not surprised this has caused a lot of stress. I'm not good with stress either, so i can relate to that. I've just never heard of this happening before and it really doesn't make any sense at all, why they would be a decision and say it's "not final" yet go on to send a decision letter out and reduce your money in the meantime. To me, that can only mean it's a final decision.

    At least the MR letter has been sent now so you're prepared.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k

    Totally understand about the stress. 

    I was crying for days last week after I received mine (and that was a good result)!! 

    Still haven't recovered properly now. 

    Can you switch off a bit by watching films or something? 
    I did that A LOT whilst waiting for mine. 

    And of course, keep coming on here for support.   x
  • [Deleted User][Deleted User] Posts: 587 Listener
    @poppy123456 Yeah it's all very silly and unnecessary, she only had to wait a bit longer for the GP's report before making the decision instead of doing it because my award was due to end next month. I think I would have rather my award run out than be given a decision before she's finished looking at the info.

    paffuto10 I find it very hard to switch off once I'm stressed and anxious, I'm already someone that worries about anything and everything.

    I had some men here yesterday replacing and fitting in new extractor fans but they were getting on my nerves because I didn't want them here (I'm not good with people, especially men), so the more anxious and annoyed I got the more I started to rant, then my poor Son had to deal with it and calm me down and yet I have Capita and the DWP say I'm pretty much ok from just a 65 minute assessment? If only I was, I'd be out working. Pardon the rant.
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k

    Absolutely come and have a rant on here, many of us do. 

    I know how very difficult anxiety can be. Have a daughter with borderline personality disorder and son with severe autism. 

    Daughter was up all night because a gas engineer was coming to fix the boiler in her new flat. 
    I've had to rebook him. 
    She's only just been given the flat (council). She's been living here at home recuperating for a year because she had a really bad episode last year with anxiety and depression. 

    She's much better now in general but even an engineer coming is too much for her. Her dad is going to the new flat with her for next appointment. He couldn't go this time unfortunately and I'm usually laid up in bed. 

    I do hope your PIP is sorted soon. x

  • [Deleted User][Deleted User] Posts: 587 Listener
    @paffuto10 sorry to hear about your daughter, it's really stressful having people I don't know come to my home, I hate it, we tried to cancel the council surveyor because I was so anxious, they said it was cancelled but he still turned up and when I mentioned it to him he asked why so I explained and he said something like you seem fine.. and I said, well I don't feel it. This is what a lot of people don't understand, we may look ok but it's what's going on inside us and in our heads that affects us, you can only really tell when a person is having a full blown meltdown.

    I typed out a bit of a rant but deleted it as I don't feel comfy ranting about what happened in the assessment because people sometimes pick fault with what you're saying and try and correct you which just adds to my anxiety.

    Thanks for being so understanding.
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    Totally agree with you about people not understanding. 

    Someone once said to me and hubby "your son doesn't look autistic"!

    Hubby replied "oh, what does having autism look like then?:pensive:

       :p
  • [Deleted User][Deleted User] Posts: 231 Pioneering
    edited October 2019
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  • [Deleted User][Deleted User] Posts: 587 Listener
    @paffuto10 I know right? It's really annoying when people assume and make assumptions. I've also had therapists and a physio assume I have mental health problems because I'm overweight when it's nothing to do with that, I lost 8 stone and feel no better.. the fact is, I was abused and I took the death of my Dad badly, what's so hard to understand about that?

    @justdon what? I can't believe someone expected that.. people are so narrow minded sometimes.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
    edited October 2019
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  • [Deleted User][Deleted User] Posts: 587 Listener
    @justdon That's pretty disgusting, he's not meant to judge people, he's meant to help them.

    I do try and speak out if I can and if I feel the need, I feel it helps others to speak out as well.

    I'm very sorry you were treated like that and failed by the system. 

    Justdon, If you're interested, this is a blog I wrote a while ago with the help of a friend of mine. It obviously doesn't go into full detail of things that happened to me because I don't want to trigger people mental health, plus I can't remember some of it.

    https://raiseawarenessblogblog.wordpress.com/


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  • [Deleted User][Deleted User] Posts: 587 Listener
    Okie dokie, hope you have a good rest :)
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Hi everyone, I just wanted to check in and see if we could do anything to support any of you. I know some really difficult things have been disclosed. You are all valuable members. :)
    Scope

  • [Deleted User][Deleted User] Posts: 587 Listener
    Hi @Chloe_Scope thanks, I often try and get support but I don't seem to get anywhere, a lot of people don't seem to give a stuff about people who have mental health problems, I've even contacted Mind for help and they try and send me here, there and everywhere and the last thing they suggested was the Samaritans who I've also been in touch with previously but their help is limited.

    I pretty much sit here with anxiety, depression and pain among other issues on a daily basis, the whole thing with the DWP and Capita haven't helped matters, they've succeeded in making me feel worse if anything.
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  • [Deleted User][Deleted User] Posts: 587 Listener
    Agreed, I'm tired of trying to seek help, it took almost 20 years to be referred to a psychiatrist and diagnosed.. and even then treatment hasn't helped. 
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @Chloe_Scope

    Hi and thanks for asking. Still muddling through at this end  :)

    Although, I am just going through a bout of either colitis or IBS (don't know which yet until I have further tests). So can only eat about 4 crackers a day until it passes.!!
    Could murder a chicken and chips!!  :p


    @WF2k
    You're so right about lack of support for mental ill health. 
    Daughter is having to pay for private therapy for her Borderline disorder and I am on a ten month waiting list for PTSD treatment. 

    So annoying when TV programmes depict it as being able to get help immediately!! 

    And as you say, dealing with PIP and it's complications as well is just far too much!! x
  • [Deleted User][Deleted User] Posts: 587 Listener
    @paffuto10 I agree with you.

    when I first started getting help with my mental help (which took how many years of taking different meds), it was much faster and you were given more sessions, like for counselling I had around 26 sessions.

    I can't remember how many sessions I had for my first lot of CBT but I know when I tried CBT again I was only given 6 sessions which I didn't complete because the therapist was a bit ugh.

    I was also considering going private until they dropped my PIP, there's a nice lady on Scope I was going to do the counselling with.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k

    Are you waiting for result of MR now?
    Sorry, I've lost track of where you're up to. (fuddled brain today) 

    And have you managed to find anything at all (apart from coming on here) to take your mind off things while you're waiting? 
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    The waiting is the worst!! 
  • [Deleted User][Deleted User] Posts: 587 Listener
    @paffuto10 Nah it's ok, my stuff is complicated because the DM made a decision without my GP's report which she was waiting on, I was told it wasn't the final decision but she still sent me a decision letter anyway and Welfare Rights wrote an MR for me which has gone in, so we'll see what happens, I'm hoping she'll see the GPs info and realise the assessor was wrong, but I doubt it, if not and the MR goes nowhere, I'll just appeal, hopefully they don't touch my current award in the meantime.

    Thanks @Chobbly that tune is pretty awesome, I'm sat here listening to it while typing this lol. Yeah anxiety is a nightmare to deal with, it's like having a little devil on you shoulder telling you how to think!
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    WF2k said:
    Hi @Chloe_Scope thanks, I often try and get support but I don't seem to get anywhere, a lot of people don't seem to give a stuff about people who have mental health problems, I've even contacted Mind for help and they try and send me here, there and everywhere and the last thing they suggested was the Samaritans who I've also been in touch with previously but their help is limited.

    I pretty much sit here with anxiety, depression and pain among other issues on a daily basis, the whole thing with the DWP and Capita haven't helped matters, they've succeeded in making me feel worse if anything.
    Hi @WF2k

    Thank you for sharing this with us. I am so sorry that you feel like this, it cannot be nice to be passed around. I know we don't provide crisis support, but I hope the online community can continue to be there for you.
    Scope

  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    paffuto10 said:
    @Chloe_Scope

    Hi and thanks for asking. Still muddling through at this end  :)

    Although, I am just going through a bout of either colitis or IBS (don't know which yet until I have further tests). So can only eat about 4 crackers a day until it passes.!!
    Could murder a chicken and chips!!  :p

    Hi @paffuto10

    I imagine this can be very frustrating! I hope the chicken and chips will be waiting for you! If there is anything we can do then please do let us know. :) 
    Scope

  • [Deleted User][Deleted User] Posts: 587 Listener
    @Chobbly we'll see, it shouldn't have changed period as it was just a review and nothing had changed since my first assessment apart from being diagnosed with fibromyalgia, that's it, I've gotten no better and I still don't take meds or have input just as I didn't when I was first assessed (because they didn't help when I tried meds, counselling etc.) but this time the assessor seems to have made a big deal out of the no meds and no input despite the information provided explaining why that is. I'm not going to continue to take meds and try counselling/CBT when it doesn't help just to appease Capita and the DWP.

    Sorry every time I start talking about it I get annoyed and waffle! 
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k

    No need to apologise for feeling annoyed and as for waffling, I'm such a waffler you could put jam on me!! 
     ;) 
  • [Deleted User][Deleted User] Posts: 587 Listener
    @paffuto10 that actually made me laugh out loud haha, thank you!

    I think for me it's the fact I feel like me, my Son, a shrink, my previous GP and the previous assessor are being called liars, I mean it's really stupid because the previous assessor totally got my agoraphobia/anxiety and had less info and yet this recent one had my old psychiatrist report and other information plus access to the previous assessors report which I'm told the DM would compare to the newer one (DWP told me that) and yet I don't struggle with my problems 50% of the time over 12 months, really? and how would someone know this by doing a 60 minute assessment where he was looking at his laptop for at least 90% of the time, didn't even recognise that I was having a panic attack and was struggling to the point my Son was having to try and help, oh no he didn't notice any of that.. and then the fact the date of the assessment and the completion date on the report are 6 days apart ring alarm bells for me.

    Also something else I'm trying to get my head around, why make a decision before you have all the info.. I'm wondering if I ought to complain about the decision maker as well and no it's not about having my award dropped, it's about pretty much having my mental health problems shoved to one side and not taken seriously.

    I wish I could show you guys both of my reports so you can see why I'm so annoyed.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    The assessment report isn't always written and completed on the day the assessment took place, especially if they needed more information, they wouldn't have been able to complete it until they received that information.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 587 Listener
    edited October 2019
    The assessor I saw didn't request any info, he just didn't complete his report for 6 days and didn't send it for a further 3 weeks, there was no mention of the report being audited when we enquired about it. Not only that, the only reason information was requested was because the DM disputed something and it wasn't the assessor I had that requested the info, it was a female from Capita that requested it, the assessor I had was a male. A person isn't going to remember what happened 6 days ago when they've seen x amount of people during those 6 days. I've spoken to someone who helps people with claims and such from an advocacy place and even she said that a flawed system. That's all I have to say about it.

    I do wish that Scope would fix the block feature, I've reported it how many times. I don't want to keep seeing blocked people's posts in the you've commented section. What's the point of having block if you can still see what people are posting..
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I do believe it's not the actual HCP that sees you that requests evidence, i believe it's someone else before the assessment takes place. if needed. Of course it can also be requested after the assessment takes place. For others reading this, it is rare for them to request any medical evidence.

    Yes, i know what you mean by the block feature.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 587 Listener
    Yup, the assessor I saw didn't request anything, in fact the assessor I saw was very unorganised, was slouching all over my sofa, gave me screwed up paperwork to sign and just seemed like he couldn't be bothered and was in a hurry. I edited my post above because it sounded weird and I wanted to explain properly.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • cristobalcristobal Member Posts: 968 Disability Gamechanger
    edited October 2019
    @justdon - the assessor doesn't have to ask for any evidence from you during the assessment - it's up to you to supply this if you think that you have information that's relevant.

    If you do offer extra information then they have to take account of this...guidance is below. It doesn't mention when you can give the assessor this evidence - like you I gave my assessor it at the end of the interview. She didn't include it in her report!

    "If a claimant brings further relevant evidence to a face-to-face consultation which is not already on PIPCS, the HP should always consider its relevance when completing their assessment report. Under normal circumstances the HP would make copies of the original evidence and hand the originals back to the claimant. In circumstances where it is not possible to copy the further evidence, perhaps during home consultations or where the claimant does not wish to part with the evidence, then it is permissible for the HP to make notes from the original further evidence documentation. The copy of the evidence or HP notes from the evidence should be sent to the CM with the completed report."

    (I believe PIPCS is the computer system that DWP use, HP = assessor and CM = Case manager)

    Hope this helps ...
  • [Deleted User][Deleted User] Posts: 587 Listener
    @justdon Yeah I get you, mine was called worse than "it" lol. The first assessor I had was lovely, very friendly, understanding, polite and her assessment wasn't even that long. Honestly, I think it depends on the assessor and their understanding of your conditions, people can try and correct me all they want, I have my own opinion on the whole system, even when I was awarded enhanced I still thought the system was ****, I'm not one who sits and judges others and blames them because they've not been awarded. Also for my first assessment the assessor DID request information BEFORE she assessed me, not after and her report wasn't disputed by the DM.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    justdon said:

    Dont you think it should be mandatory for them to request evidence at the beggining of an assesement?and what excuse do they have for NOT doing this ?
    Not everyone understands the asessment process..i certainly didnt ?
    I mean she had no problems asking to see a list of my medication at the beggining.
    So whats that all about if not to make things as difficult as possible for the claiment ?




    It states on the form you received, at the front what evidence should be sent with the form to support your claim. They don't ask for it during any assessment, whether it's at home or in a centre. It's your responsibility to make sure it's sent with the form.

    During my daughters home assessment, i had one piece of extra evidence to give the HCP but he refused to accept it and gave me an envelope to send it to DWP.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • cristobalcristobal Member Posts: 968 Disability Gamechanger
    edited October 2019
    @justdon - I can't disagree with what you say, although to be 100% fair I believe that you are supposed to send it to the DWP - that's what I was told as well.

    I recorded my assessment so I have an accurate record of what went on. I gave the assessor my additional info and she scanned through it - took about 10-15 seconds from when I gave it to her to when she passed it back. 10-15 seconds to read/ make notes on approximately a page and a half of A4 typed. It wasn't included in her report.

    I also wasn't asked for consent before I was examined, neither was the procedure explained, and when I stopped because I was in pain I was asked "Are you sure it's definitely pain?" (Paraphrasing here - I don't remember accurately without checking)

    The answer to your question about why procedure wasn't followed is that no-one is interested. The overwhelming majority of assessments are done correctly - those that aren't, if you complain, are just ignored.

    The key is just to try not to let it bother you - although in my case I found this very difficult. and I got very stressed/angry until I concluded that it wasn't worth it. The consent thing didn't really bother me - if I hadn't consented I wouldn't have done it. Doesn't mean that it shouldn't be done properly though...
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • cristobalcristobal Member Posts: 968 Disability Gamechanger
    edited October 2019
    @justdon - I can't see a contradiction - @poppy123456 's experience seems to be the same as mine as far as i can see. Have I missed something?

    I don't have any stats - sorry. They would be very difficult to interpret anyway because, without looking at an individual case, no-one know whether a claim is valid or not. I'd guess that most people who get PIP think the system is great; those who don't think it's rubbish. But again I don't know.

    Speaking generally people tend to concentrate on the negative stuff. No-one wants to hear that thousands of trains run on time; everyone will let you know about the one that doesn't. People don't say how polite traffic wardens are when they've got a ticket. Or that they didn't have to queue in the supermarket.

    It's the same here I think. My assessor wasn't very good but you can't generalise and say "all assessors are xx" - it's very important, in my opinion to treat people as individuals...

    Have good day..
  • [Deleted User][Deleted User] Posts: 587 Listener
    I have PIP and I still think it's rubbish, even when I was awarded enhanced I thought it was rubbish, but that's just my opinion and I'm not going to pick at or question anyone who has a different opinion :)

    I've had both positive and negative experiences with PIP.
  • cristobalcristobal Member Posts: 968 Disability Gamechanger
    @WF2k - I agree. I'm the same.

    Where the system seems to fall down, in my opinion, is that it doesn't seem to allow for the fact that some people find it very difficult to claim because of their illness - which is why they're claiming in the first place e.g. find it difficult to fill forms in, go to interviews etc.

    As you say, we each have our own opinion..

    Have a good day ...
  • [Deleted User][Deleted User] Posts: 587 Listener
    edited October 2019
    Very true, I have difficulty with both forms and explaining how my health problems affect me (verbally and written), I'm also not good with people anyway so that makes it worse.
  • [Deleted User][Deleted User] Posts: 231 Pioneering
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  • cristobalcristobal Member Posts: 968 Disability Gamechanger
    @justdon -  you're not picking holes at all...but it's possible you might have misunderstood my post because I completely agree with what you say.

    Totally.

    If you offered the assessor additional evidence then the assessor should have noted it, and you should have been told to send the it to DWP (who scan it I understand?)

    If this didn't happen - as in my case, and yours - then the assessor, in my opinion,hasn't followed the correct procedure...
  • paffuto10paffuto10 Member Posts: 388 Pioneering
    @WF2k

    How are you feeling this week? And have you heard anything from your mandatory reconsideration? 

    Hope you're coping.
    Wishing you well x
  • [Deleted User][Deleted User] Posts: 587 Listener
    @paffuto10 Aww thanks for reaching out to check on me, I appreciate that! :D 

    Feeling poopy still and trying to figure out what's going on with my dog, she's being weird with her food, it could be her anxiety playing up because of the stupid fireworks :/ I've ended up contacting Wellness in Mind for my area and the person thinks I may need secondary mental health care so I said I'd get back to him as I'm quite stressed out atm.

    Not heard a thing about the MR or anything else yet, I do know the DM got the GP's factual report though but don't know if she's looked at it yet. I don't think the MR would have been looked at yet, I think it was only sent about 2 weeks ago, I mean it took my GP's report 7 weeks to get to them and to be put on their system lol.

    I hope you are doing ok?
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