completing questionnaire advice

willz37

hi I'm hoping you lovely people can give me some advice on completing the moving around question.  My daughter has Hyper-mobility EDS and fibromyalgia, she sublaxes shoulders, hips and knees quite frequently no pattern or warning.  Some days she's able to walk quite far some days very little at all.  Even on good days when she is able to walk further she is still in loads of pain and again will make her worse the following day/s   She's the type of person that is extremely  stubborn she would rather try to carry on as normal and not ask for help or admit to others there is anything wrong.  whilst she was pregnant her consultant wanted her to use a walking stick as she had SPD but she was adamant she wasn't using one as shes only 23. she is currently awaiting urgent MRI as she has no feeling in her right thigh and has real bad back pain, also lost control of her bowels and bladder about a fortnight ago (didn't go to a&e went to drs about 2 days later)   What is the best way for me to complete this section please.  Thank you in advance

April2018mom

Be honest! For question 14, I wrote a bit about paralysis and no leg function plus spina bifida. Definitely mention the fact she relies on a walking stick, has back pain and no control of her bladder/bowels either on the form. Does she need a wheelchair? If so, say so on the form. Good luck! 
Visit this link with more information on question 14
https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/fill-in-form/14-moving-around/

poppy123456

Hi,

Bladder and bowels isn't part of the moving around criteria for mobility. It's all about how far she can walk regularly, reliably, without pain and discomfort.

Also bare in mind that PIP is about how you're affected at least 50% of the time over a 12 month period. Given some real life examples too will also help.

If her bladder and bowel is a new condition then this won't be taken into consideration for any activity because you need  to have had the condition for at least 3 months and expect it to last at least a further 9 months.

This link will help you understand the descriptors more. https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria#daily-living-activities