Parents, carers and disabled parents
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Family with autism and dyslexia

Does anyone struggle to cope with family member who has autism 
My husband has autism and my 14 year old daughter has dyspraxia some times I feel I'm all on my own my mum say I'm very strong sometime I don't feel it as iam a carer for them both and have bipolar my self 
Anyone understand how I feel it would nice to know iam not on my own anyone want to chat would love to hear from you just so I don't feel so alone 
Thanks Kathryn 

Replies

  • April2018momApril2018mom Posts: 2,869 Member
    edited September 2019
    Hello @kath1
    Welcome to Scope! If you have other questions, please do not hesitate to ask. 
    Have you contacted the NAS or not? They are the UK’s leading autism charity. 
    I have also tagged @SparkleSheffieldAutismAdvisors as they may be able to provide advice for you.
    Also check out our autism forum 

    https://community.scope.org.uk/categories/learning-disabilities-and-autism
  • kath1kath1 Member Posts: 5 Listener
    Thanks will have a look thanks 
  • April2018momApril2018mom Posts: 2,869 Member
    edited September 2019
  • SparkleSheffieldAutismAdvisorsSparkleSheffieldAutismAdvisors Member Posts: 32 Pioneering
    Hi @kath1 and welcome! 

    Are there any local support groups you could attend for families of children with additional needs? If so this may be a good way for you to talk to others in similar situations and share experiences. You can find out support groups via your local council, or local parent/carer forum. 

    If this wouldn't be suitable for you for whatever reason, there are lots of online support groups, particularly via social media/Facebook. Not all forums may be suitable for yourself, but join a few if you can and get a feel of what might be right for you. 

    Also, does your husband receive any support from adult services? Although these are often in short supply dependent upon where you live, check out what support services there are also available for adults. 

    You are certainly not alone in feeling overwhelmed at times, is there anything in particular that you would like to talk about? Feel free to ask any questions you may have and we'd be happy to help!

    The Sparkle Sheffield Team  :) 

  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @kath1 and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  I am sorry to hear of you and your family's health struggles and can appreciate how difficult this must be for you at times.  Please be assured that you are not alone with this and there will be other members of the forum who can relate to your experiences.  You have been given very good advice so far and have done the right thing in reaching out to us on the forum as we are all here to support you.  You will always find someone to chat to and it is a great place to meet new friends.  Please keep in touch and let us know how you are getting on.  If there is anything we can do to support/help you meantime then please just let us know.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
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