Sleep apnea cpap machine

christ125

Why is respiratory clinic just give you the machine and no help to manage day to day  sleep apneas I have cpap machine at night and under respiratory dept and  neurologist  but  so far no help with day ones any help gratefully appreciated  thank you  I can be gone anywhere from.few mins to at least 15 mins 

April2018mom

Hello @christ125

This leaflet should help demystify your new CPAP machine - 

https://www.ouh.nhs.uk/patient-guide/leaflets/files/090428cpap.pdf

christ125

I need them.to sort out day ones I've been told just use it at night april2018mom

April2018mom

Can you email the respiratory team @christ125? This is not right. They should have provided you with a leaflet detailing how to use it. If that doesn’t work, contact Patient Advocacy Services. 

christ125

I have seen them in person at me hospital for the 2-6 week review all the said when I explained about day ones was see neurologist at the hospital took a few weeks just to track down/get through to drs/neurologists secretary you have to go through the secretary 

christ125

April2018mom  I cant email them

April2018mom

Contact the secretary then for the neurologist. This is completely unprofessional to me.
Patient questions should be handled in a timely manner. 

christ125

I have just awaiting a call back aswell keep you posted also gotta see neurologist  on 8th of October  april2018mom

Chloe_Scope

Hi @christ125, I'm sorry you are still waiting for this equipment. Did they say when they would call back? I hope they are able to provide more guidance 8th October.

christ125

Thank you and I have the machine  it's not good when they dont listen to you at respiratory clinic 

airbusA346

I have used CPAP since Oct 2015 and have been using a non-invasive ventilator since March 2018.

What are you struggling with?

Chloe_Scope

Hi @christ125, I hope your appointment goes well next week. How are you getting on?